Lisa

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McDonald's, on the other hand... almost nothing's gluten free, and the french fries are dipped in the same oil as the nuggets.

McDonalds has dedicated fryers just for the fries. Nuggets are not allowed. You can find McD's gluten free menu in the earlier section of this thread.

are they ok? when something says "natural flavoring" or "modified food starch" should i flip out and worry and avoid it, even though im feeling terribly hungry? i read somewhere that most of america's modified food starch is from corn. could i be wrong, eating yogurt and peanuts and jelly on gross rice bread?

Planters Peanut, read the label cause wheat must be listed and they aren't likely to have barley, malt or rye.

Yoplait Yogurt is gluten free except for the obvious cookies and crumbs. Again, read the label and some now have gluten free labeling.

All Smuckers Jelly's and Jam are gluten free. They have a great lableing policy to list all forms of gluten.

AND NO RICE KRISPIES...THEY CONTAIN MALT.

Modified food starch in the US is general derived from corn unless otherwise listed as "Modified Food Starch (wheat)".

Here is a listing of companies who will clearly lable all forms of gluten to include barley, malt and rye.

So there is no worry about "natural flavors".

Open Original Shared Link

....and yes, rice bread is gross. Look for Kinnikinnick Bread Products. They make the best frozen chocolate covered donuts. I eat them frozen...to die for.

Life is good.

Funny about personal taste

I really liked the Glutino crackers--I thought they were flaky and kind of buttery-tasting.

Patti, I never liked bread or crackers before gluten free. Thought it all was "blah". (ain't I the lucky one )

The crackers are good, but you need some cheese that "speaks" to overcome the blah. I keep a box or two in my freezer for guests.

Easy..

Gluten free chutney or pepper jelly over cream cheese, served with Glutino Crackers.

Cheese and fruit tray

Crustless quiche squares

Hillshire Farms Mini links - grape jelly and BBQ Sauce - heated in chaffing dish

Marinated shrimp

Grilled pork tenderloin - served with honey mustard

Wheel of Brie, topped with brown sugar and sliced almonds - lighly broiled and served with

crackers or apple slices.

Gluten free ginger snaps with brie - yummmmm

California rolls can contain artificial crab meat, which is not gluten free. Most soy sauces contain gluten, except LaChoy and Wheat Free Tamari.

Peoples reaction time varies widely, for almost immediate to several days. You just h ve to feel your way through it. Mine is about 24 hours.

I can understand your frustration. I don't have an answer for you, but this link may offer some direction:

Open Original Shared Link

I still support the fact that DH is an associated risk with Celiac Disease and is not Celiac Disease. It is referred to Dermatitis Herpetiformis as a gluten response reaction in the skin, but not exclusive to Celiac. Celiac Disease reaction remains in the small intestines.

But, there is a great deal of research needed.

Back to the Celiac vs. Intolerant discussion.

I would assume, if the Butternut Squash Soup does not list wheat, then the modified food starch in NOT derived from wheat. Remember, barley, malt and rye CAN hide in "natural flavors". That's when you call.

Campbell's has such limited option for those gluten free (except V-8 and Splash), that I just don't go there. They could do better, but don't. Their answer to you was a bit of mombo jumbo, but they did state their allergen statement.

https://www.celiac.com/articles/21519/1/Spe...rmis/Page1.html

Specific Gene Tied to Dermatitis Herpetiformis

Celiac.com 01/08/2008 - Scientists at the University of Finland have announced the discovery of a particular gene that is tied to the development of the celiac-associated skin disease dermatitis herpetiformis, which is the form of celiac disease found in a full 25% of all celiacs. The gene is called myosin IXB, and it is located on chromosome 19p13.

In addition to being connected with a higher risk of celiac disease in both Dutch and Spanish populations, the gene has been associated with a higher risk of inflammatory bowel disease, systemic lupus, erythematosus, and rheumatoid arthritis, which means that myosin IXB is likely a shared risk factor in all of these disorders.

Researchers looked at nearly 500 Hungarian and Finnish families, plus another 270 patients and controls. What they found was a substantial linkage to chromosome 19p13 (LOD 3.76 P=0.00002) that lends great weight to the notion that this is a substantial risk factor. Other variants of the myosin IXB gene showed no connection with celiac disease, though they did show a small connection to dermatitis herpetiformis.

Both phenotypes show a significant connection indicating that the role meaning that there still may be a role being played by nearby genes. They are calling for more comprehensive genetic and functional studies to determine what the exact nature of the role the myosin IXB gene in both celiac disease and in dermatitis herpetiformis.

As more studies are conducted, and more data emerges, we are likely to get a much clearer genetic picture of both celiac disease and dermatitis herpetiformis. A clearer genetic picture will likely lead to new and novel approaches to treatment that permit much more effective targeting of treatment.

Journal of Med. Genet. 2007 Dec 12

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This article implies a DH relationship with Celiac Disease and the specific gene's role of myosin IXB associated with Celiac but not specific to. And it is indicated as a shared risk factor with other disorders.

they replied that their modified food starch could be derived from wheat. All other ingredients listed looked safe, but that one (modified food starch) didn't name the source so I questioned it. So that ended that.

If their modified food starch IS derived from wheat and it is not listed, they are in violation of the law. I think that their customer service rep is not informed.

SO--we know that celiac disease is an autoimmune reaction that CAN bypass the intestines and attack the skin. So why is it such a stretch to think that it can also attack something else, like the thyroid, the brain, the pancreas, the joints....

I believe that it has been proven that gluten autoimmune can cross over to other parts of the body. It no longer is called Celiac, which is exclusive to the small intestines.

Just a note here - Campbell's US and Campbell's Canada have TOTALLY different gluten free listings.

I believe this change is for Campbell's US gluten free products.

I am often confused when doctors say "mild". What they should say, is that it was caught before major damage could accure.

it seemed to me that the implication in Lisa's post was that ONLY people who used Enterolab had the right to sign. .

Fiddle-Faddle,

It seems that you are indeed reading too much into my post. I believe Gentleheart addressed ME personally and inquire as to MY desire to sign MY name the the Dr. Fine letter.

I declined politely. What more is there! Find another issue!

So sorry about your brother. I hope he has a speedy recovery.

I am newly gluten free, just about 2 months now. I am pretty sure that around the time I went gluten-free, i started experiencing lots and lots of tenderness in my breasts. Anyone else experience this? Its not the normal premenstrual symptoms i have had in the past. i am unsure if it is because of my new lifestyle, or if it independent of that and i need to see a doc.

I don't know your age, but I started experiencing peri-menopause symptoms, including tender breast, at age 35, several years prior to my diagnosis. It lasted a good ten years.

Unflavored coffee is certainly gluten free. It can be an irritant to a compromised digestive system, especially on an empty stomach.

Spraying on gluten with flavors is news to me. Can you identify that source?

I think I answered Gentleheart's question.

https://www.celiac.com/gluten-free/lofivers....php/t8494.html

Here is another thread regarding low cholesterol. It's a bit dated (2005), but the information may be somewhat current.

I do not think that there is a connection between high cholesterol and celiac diseasse. There may be a connection with a distressed liver.

Gluten free processed food a often high in fat and can effect your cholesterol levels.

What is your history of testing regarding Celiac If you have not already done so, a Celiac Panel with a return to the gltuen free diet, might render a diagnosis. An endoscopy/biopsy exam can indicate Celiac, but it can also look for other concerns.

If you are in pain or symptomatic, I would encourage your to pursue testing.

Linda,

Hopefully you're on the right track. Glad to help.

After the first of the year I will be starting a Support Group in my area. I am about an hour and fifteen minutes from you. So not so far.

I will let you know about the details after the holidays. If there is anyone in Northeastern North Carolina who would be interested, please contact me.

Good luck today Linda.

anyone know a good celiac doc in or near the virginia beach area?

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The Chesakeake Tidewater Celiac Support Group is one fo the best in the country. Trish can help you find a doctor in your area.

It might be a good idea to retest a Celiac Blood Panel to make sure that you are not getting any hidden gluten into your diet.

Refractory Sprue is indeed rare. It would not be unusual for someone to take up to a couple years to heal. And, also for some, an occassional glutening could set healing back for a good while.

It's good that your doctor is trying to rule out other concerns.

Momma Goose, do you wish to be included? If so, how would you like to sign?

I was diagnosed through a biopsy before I knew anything about Celiac Disease. I have no personal experience with Enterolabs.

I think it's a great letter! As a common discussion here, I look forward to Dr. Fine's response.