Lisa
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Linda,
The diet is very confusing in the beginning. Fear Not
We can walk you through it step by step.I don't know what I would have done when I was first diagnosed several years ago. It's great to have someone hold your hand.
Let us know Tuesday after your doctors appointment. And, don't let your doctor blow you off. Insist on the Celiac Blood Panel.
Good luck, Lisa
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Hello Veronica,
Here is the Hagan Daz site. This will list the ingredients for every flavor of ice cream. I don't know if there is a gluten free listing from Hagan Daz. You can also e-mail the company.
Open Original Shared Link
I hope you enjoy your holiday to the US.
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Linda Welcome!!!
As you can see, this is a great site with the best information around.
Here is the link again, that happygirl listed. Copy this information and take it to your doctor on Tuesday:
Open Original Shared Link
Insist on the full Celiac Blood Panel as listed above and keep eating gluten until your endoscopy is completed.
Let us know! This could be a new beginning.
Lisa
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A new baby in the house is always fun. Don't forget to take lots of pictures Jenny. They grow too fast.
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My 2 year old daughter is ready to go to pre-school. She always wants to stay when i drop my son off. Does anyone have a list of gluten free craft supplies i could have?
This might help:
Open Original Shared Link
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I am not sure how to quash that effect - it amplifies things and seems counterproductive.
You can't, but it will make to good times all that much better. (those good times aren't free, you know. You earn them
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It's a lot to take in, trust me!!!
We have members with different levels of sensitivity. In the beginning, a good thought is "if in doubt, don't".
Keep your diet simple. And, add new things slowly and deliberately.
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We all have our trials. Some seem to have more than their share. I hope your friend's youth and strength can carry him through this tough time. Dear friends like yourself can help hold him up and offer than strength.
Hugs to you, your friends, your friend and his family. Don't loose HOPE!
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Hash Brown:
Potatoes, vegetable oil (canola oil, hydrogenated soybean oil, natural beef flavor [wheat and milk derivatives]*), citric acid (preservative), salt, corn flour, dehydrated potato, dextrose, sodium acid pyrophosphate (maintain color), extractives of black pepper. Prepared in vegetable oil ((may contain one of the following: Canola oil, corn oil, soybean oil, hydrogenated soybean oil with TBHQ and citric acid added to preserve freshness), dimethylpolysiloxane added as an antifoaming agent). *
CONTAINS: WHEAT AND MILK.
(Natural beef flavor contains hydrolyzed wheat and hydrolyzed milk as starting ingredients). That's right from the McDonalds website and it clearly states that it has wheat in it.
Yes, I am aware of this. Do a search here and get some additional information on McD's FF - there's a lot.
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Hello and Welcome!
You might have an allergy to wheat and perhaps a gluten sensitivity.
Celiac can be diagnosed by a Serologic Blood Panel:
Antigliadin antibodies (AGA) both IrA and IgG
Antiendomysial antibodies (EMA) - IgA
Anti-tissue transglutaminase antibodies (tTG) - IgA
Total IgA level.
Generally, a good test is a positive dietary response and that seems to be working for you. You could continue on a gluten free diet and do a challenge at a later time. The autoimmune response in Celiac Disease is triggered by ingesting wheat, rye, barley and malt (some oats). You might also have a wheat allergy with your respiratory symptoms.
Try directing your doctors in this direction. But, should you request further testing, you must remain on gluten until testing is finished.
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It's not the amount of gluten that makes you sick, it's the autoimmune reaction to the gluten which makes your body attack itself.
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Given that gluten doesn't make me feel sick at all, what are the risks of an occasional cheat?
The potential risks could be life threatening eventually. No, you won't die from a piece of cake or slice of pizza.
If you are officially diagnosed with Celiac, it's an autoimmune disorder. It's not the amount of gluten that will hurt you, it the fact that the gluten make your body attack itself, thereby causing damage.
You may not be symptomatic when you consume gluten, but I can assure you that there is a major war going on in your intestines.
There are many disorders associate with uncontrolled Celiac. Diabetes, lymphoma, fibromyalgia or any type of arthritis. Gluten can cause ataxia which can cause neurological damage and some pretty serious malabsorption can make you talk funny and walk into walls or forget where you're driving.
SO...it's your choice to weigh the risks
Welcome and read some posts here. It will be helpful to learn from other's experiences.
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Just wanted to add that the Celiac Associations consider McD's fries and hashbrowns to be safe for Celiac to consume. The McD's website does indicate wheat, but the processing is said to eliminate the danger for Celiac.
With that said, some do, some don't. I do.
There is a number of previous thread regarding McD's French Fries and you can find them with a site search.
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This is a personal choice. Some very sensitive celiacs may respond to the chance of possible cross contamination during the manufacturing process. Frito/Lay products mentioned here frequently, although some contain no gluten, many here react.
On the other hand, it often is a CYA statement. Due to the fact that many companies do not have the resources to TEST for gluten, therefore they cannot say, that there is no gluten in the product due to possible cross contamination
Considering your daughter is so young and unable to speak for herself, I would error on the side of safety and not use those product that are produced in a facility that also produces wheat products.
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Well LynsiMarie, it's nice to meet you! And you most certainly DO have a full house.
Let us know how your test come out!
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Just a little note ....I think if you choose to use www.celiac.com in your letter, it might be best to get a "release" from Scott Adams, owner of the site.
He has proprietary rights to the site. -
Your brother might be busy with other preparations. Ask him how to reach the caterer and contact them yourself. Check and see if they can prepare a separate meal without gluten (au jus or seasonings) plain veggies or whatever is on the menu. It won't be as good, but it won't make you sick.
I always feel better when I am not depending upon other interpretations of my needs.
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I would like to know how to obtain the Biocard for Celiac testing.
Thanks
Open Original Shared Link
https://www.celiac.com/gluten-free/index.php?showtopic=53391
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Sorry, there are too many shared experiences with doctors.
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I don't know about the Campbell's Chicken broth, but the US listing and the Canadian Campbell's gluten free listing is very different.
Chili and cornbread sound great.
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Can you give me your opinons about being dairy free initially? I read that I should go dairy free for at least a few weeks as well before I will see real results. I am only 2 days in and craving something sweet, but aside from fruit or peanut butter I feel like there are not many options. So far i have been eating fruits and veggies, plain meats, and peanut butter. Any other ideas???
I just found this link. It's not dairy specific, but may be helpful to you in your beginnig days:
Open Original Shared Link
Dairy is not required to eliminate, only if it seems bothersome to you.
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I think it's monumental.
I also like the fact that it directs you to a medical doctor should you test postitive for further testing.
I wonder if this could be used to make sure no "hidden" gluten is getting into your system, or for those who are not healing well enough on the diet.
Studies indicating the rate of accuracy would be paramount.
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If I recall, there was a labeling issue and they are correcting the problem.
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Pizza and Bakery!!!
We can walk you through it step by step.
Fast Food Restrants
in Introduce Yourself / Share Stuff
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