
Lisa
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Have you reacted to it? I am starting to get desperate on long drives, I read the website and it says a few of them are gluten-free - but I'm just wondering about cross contamination etc.
Cross contamination is not the correct term, but it's frequently used, so I understand what you are asking.
Cross CONTACT is a high risk at fast food restaurants, where the staff is paid minimum wage and not well informed. There in is your risk. The burgers, out of the freezer are most likely gluten free. What happens after that is subject to cross contact.
I have ordered one on a bed of lettuce and the lettuce wilted and it was a big mess. I don't remember getting ill, but I'm not too sensitive. But not very impressed with the offer McD's offered me.
French fries, I have never had a problem. You can find other options on line. The Fries are tested and considered safe for people with Celiac to consume. Some people choose to, others, not.
If I was on the road, I would look for Wendy's. You have more options and you can find their gluten free menu online.
The bottom line is...that it won't be the same thing that you remember.
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I know coffee does me in and I need to get rid of it. It is just so hard. Thanks for your ideas. What should I eat for breakfast to try to lesson this situation? Is there a good gluten-free cereal or I just have no clue. I have to eat some fiber because I had a precancerous polup2 years before my celiac diagnosis. That Dr. told me I should be eating more, but then I get this problem. It is gross, but gets progressively looser. I have to drive my kids 20 minutes each morning to the gym so this is an issue.
Maybe some decaf in the morning or tea and wake up earlier and eat...affording you more time before work. Add you fiber intake later in the day, after your road "work" (It is road work, been there
)
If I need to be somewhere when I'm out of routine, Immodium helps and relieves some of the anxiety too (which could add to the issue).
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This is why we might need Genetically Modified Crops. It's not a simple fix.
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The only useful thing that I can add is, if you have facial issues with DH or otherwise, please use the Highest skin protection available. Disturbed skin will tan more than the rest of your skin.
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I'm not too sure if this is what you're looking for, but...:
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I was diagnosed with late stage celiac disease almost a year ago (probably had it my whole life and only got diagnosed at age 37 when I asked specifically for the test). I've been very vigilant about being gluten free but not all my symptoms went away. In fact not much changed really. Going back to the doc he gave me prescription digestive enzymes (that didn't work). He put me on a strong antibiotic to kill possible bacterial overgrowth. That seemed to work after it gave my horrible D for a couple of weeks. Suddenly I was having perfectly formed stools! He said the bacteria might grow back and apparently it did because the perfect stools didn't last too long. I decided to try the SCD (specific carbohydrate diet). I was very skeptical but it seems to be helping. I just wanted to share this as I first heard of SCD from this forum. Thought this info maybe helpful to someone else that is suffering from unresolved symptoms. You might want to give the diet a try.
So glad things are resolving for you! Keep up the good work. There is a very LARGE thread here on the SCD diet that you might be interested in....check it out!
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I don't know what's making you ill, but keep a food diary. Document everything that gets past your mouth to include lotions and lipsticks/lip balms.
Gluten intolerance and dairy intolerance often go hand in hand until some healing can take place in the small intestines. Dairy can be successfully be reintroduced after a time out.
If your GI might recommend an endoscopy test to check out your small intestines, it's recommended that you continue to digest gluten. If that's not an option try to schedule your appointment asap.
Celiac can be triggered by many things like stress, mono, illness, pregnancy, surgery or any trama. Never heard about coffee
. Hopefully, you will know soon.
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Loved reading the stories.
I woke up to a phone call from the doctor saying "Do you want the good news or the bad news first?" The good news was my thyroid and other blood tests were good but the results came back positive for celiac. It was the strangest experience. At first I just wanted to break down but then I realized 1) I don't have to rely on medication 2) my symptoms will finally go away 3) the cure is as simple as changing my diet.
I usually eat before social functions or bring something with me. And you know I'm usually pleasantly surprised that they made something gluten free for me. I really hope you guys don't limit yourself socially because of food. It should never get in the way of living life.
Funny story, one time I tried to dodge a date when a guy asked me to dinner. I was like, well it would be hard because I eat gluten free. I thought he'd be clueless and shy away. He goes, OH well I can take you to -named a couple places-." I was like, err....
What a GREAT attitude you have pianoland! You will be just fine on the diet. And welcome to your first day of recovery. Welcome here!
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If you are already a baker, then you are ahead of the game. Learning to bake AND bake gluten free at the same time would be a challenge.
The homemade gluten free products are every bit as good as the gluten. It just takes the right combination of ingredients and a willingness to experiment. When I first started, I had very few end-products that were inedible. . . which just so happened to all be loaves of bread
. The sweet stuff (the non-yeast products) are much easier. Just jump right in (I always preferred to start with my current gluten recipe and convert) and then tweak away what you don't like about it (crumbly/dry/gritty) the next time you make it. If you are not sure what to do, you jump on this forum and ask for recommendations on how to keep you cookies from crumbling or whatever.
I get a lot of "If you hadn't told me, I would have never known this was gluten free." And believe me, I tell people!! I'm doing my share to dispell the myth that gluten free isn't as good . . . one person/chocolate chip cookie at a time.
I agree with Darn210! I just posted this:
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This is so easy and really, really good.
Follow the recipe on the box of Bisquick Gluten Free Flour for the biscuits.
Add lots of shredded cheddar cheese or cheese blend, McCormick's Garlic Salt and Parsley and some dried Italian herbs. (when you think that you have added enough, add more)
Bake per box directions. Enjoy them or pop several in the freezer for later for a sausage/bacon and egg biscuit - for lunch or work.
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There is a HUGE thread here, but not too sure how active it is currently.
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This seems to be a pretty complicated topic... I think any situation where you have to balance feelings and fact can be difficult. Plus the problem is one that makes it hard to know exactly where the line is. So just keep it simple and remember your final goal... The health and happiness of you and your loved ones. If you can all keep that in mind and keep the communication open then I am sure that you will be able to find the balance you are all looking for.
Good advise offered to the OP, Nick. I think we have totally covered all the bases.
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Hi. I'm new to the site. My name is Sarah. I've been wondering if I have Celiac disease for a while now, but I can't afford testing and have no insurance. Here's where I'm at: for a little over year now, i've had diarrhea. Literally every day I have to RUN (not always making it...super embarrassing) to the bathroom, especially after eating, have terrible stomach pains that precede that. I'm constantly bloated, and always exhausted. I bruise so easily that my husband is afraid that people think that he abuses me. Now, lately I've had this consistent itching...not really any rash to be seen, but I do have bumpy bits on the tops of my legs that look a bit like whelps only not red.
I'm really at a loss as to what to do. Should I go gluten-free and see if that makes a difference? My credit can't afford to take another hospital bill that i can't pay, it's already a bad score. I just feel really alone. I've missed work because of how I feel and my boss has asked why I go to the bathroom so much...i'm so embarrassed.
You can go to your Primary Care Doctor and request these tests:
Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA
Or you can go 100% gluten free and see if your symptoms subside. But, we are not doctors and I would encourage you to seek medical advise first. If for nothing else, to rule out more serious issues.
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I have been getting horrible stomach aches and bloating as of lately and I'm fairly certain it's related to gluten. My question is, the other night I started twitching horribly. It started with my leg and then very shortly my entire body was shaking. As I am typing I feel as though my hands don't want to work with me 100 percent. Has anyone with celiac ever had a problem with uncontrollable shaking?
Two things come to mind from my experience. Extra hydration and B-12.
But depending on the severity of these symptoms, consulting with a medical professional might be in order.
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I don't have much confidence in Enterolab, but that's my personal opinion.
I would suggest that you put them both on a gluten free diet and document their symptoms, along with a food diary. But, their diet MUST be 100%. The smallest amount of gluten will retard any healing. Good luck.
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I am only speaking for myself when I give an opinion. I did not give an opinion earlier on this thread. Because I had to compose myself first.
I honestly do not comprehend why anyone with this story would put their child back on gluten..... I have seen and read here of other people doing this, with the same eventual dismal result. I hope this child is put back on a gluten free diet as soon as possible. Because once off of gluten for a long period, it is very difficult to have the standardized re- tests show that the patient is celiac. And the medically ordered gluten - challenges are used as an excuse to keep eating the garbage, yet they frequently give a negative result, because the damage sometimes takes years to be medically detectable in the intestines. Meanwhile, the ravages of auto immune disease reactions continue destroying other body organs and glands, damaging bone, joints, even attacking the brain. Thus the patient is now officially labeled "normal." When they are not. They suffer.
And that is about as polite as I can be about it.
I can assure you that Vincent is an extremely passionate parent, who in no way would endanger his child. I was around when his son was going through difficulties, many years ago. He came here to ask for information.
I hope he found what he was looking for.
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OMG! Can I be Queen for the Day! Holy
Crap.... Nope! Forget that... looking for cover!!!