Lisa

Does anyone out there take this...........I take once a night .

Don't know whether it is gluten free, nor do I know whether it is good for me now, in the healing process.

Any suggestions, any input.....would be helpful.

Lisa B.

I stand down........you are more knowledable than I and your answer is more conclusive to the question asked. Glad for your impute.

Floridanative, I hope we have not confused you in this discussion. If your insurance will cover testing and your are confident in your doctor and his and your concerns...do it.

We will be thinking about you and feel free to ask or comment about anything.

Take care. Lisa B.

I had the endoscopy first, two weeks later the colon........ from a Gastro Dr.?

What part of the intestines would the anemia come into play? Don't know other that iron diffic.?

I have no earthly idea........still trying to travel around the local Food Lion grocery store.

I guess rice, rice, rice. Good luck

Have you had a full-panel blood test to check what diffencies you may have?

I have gradually lost weight over many years until a period of high stress kicked in celiac disease full blown. You can be A-symptomatic for a long time, even by birth and sometimes it takes a significant issue in your life for celiac disease to rare it's ugly head.

I too have malabsorption issues and am currently talking B-12 shots once a week. I really helps. I have been so run down for so long I don't know what it's like to feel better.

Gluten free cooking is a non-event and easy to handle. (once you understand what to look for), but, dinning out is another.

If you do have Celiac, eating gluten will cause you harm whether or not you have symptoms. So, please read everything you can get your hands on about this. This is a wonderful source of information -- click into all the forums and you will learn sooooooo much. Then you can make your choices.

Celiac is definately a major inconvience, but you can have a very full life once you know what you are dealing with.

Celiac Disease affects the small intestines.  Perhaps, depending on your symptoms, there are other digestive diseases that affect the large intestines.

Perhaps he needs to be sure to make a complete diog..  Also, if you are over or around 50 it is not such a bad idea.

I had both, small intestines indicated Celiac as well as a biopsy, large intestines were clear of any issue.

Others on this site have large intestine issues.  I am sure that the will sign in.

Testing is the beginning of healing.  Best of luck and ask away if you need to.

Lisa B.

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PS: Celiac/Sprue Disease is not an allergy to Wheat....it is an intolerance to Wheat. (Wheat and other things are toxic to us.)

Celiac Disease affects the small intestines. Perhaps, depending on your symptoms, there are other digestive diseases that affect the large intestines.

Perhaps he needs to be sure to make a complete diog.. Also, if you are over or around 50 it is not such a bad idea.

I had both, small intestines indicated Celiac as well as a biopsy, large intestines were clear of any issue.

Others on this site have large intestine issues. I am sure that the will sign in.

Testing is the beginning of healing. Best of luck and ask away if you need to.

Lisa B.

Dr. Bev will do very well.......

Try it and see how it works. Don't know how sensitive you are, but this may be a start.

I joined the Celiac-Sprue Association and with their newsletter, I did see a ranch out west that will guarrentee a gluten-free menu with riding and other activities. Sounds really cool to me.

Wishing you well in your riding and wish I could ride with you.......English, I do hope. Any riding is good and keep loving those tall four legged creatures.

Keep me updated cause I want to know your progress and where you are in your training/riding. Taking any fences yet? That's the best. When I was in my early teens, I would jumps 4' bareback with not fear. Since then, reality came into issue.

Keep me update.

Lisa B.

Sue:

Thanks for your reply. I too have good days and bad ones.

What I don't understand is the difference between traveling through the healing process and eating something that day that may not be gluten-free.

I know that healing takes a while and the symptoms may continue until the healing progresses. I know that I have to do what I have to do in the car after the breakfast bathroom break. After that I am good to do errands. After lunch, even though a gluten-free lunch at home, will keep me in the house until about 4:00.

After 6 weeks, I don't know if I have gotten "hidden gluten" or the healing process is still in the works.

Today, after reading that they are gluten-free, I tried McD's fries and a side salad with Nuemans Ranch - gluten-free Ranch. Didn't do well by me.

I haven't been here long enough to know whether, I am still healing, or the salad is too much ruffage, fries too greasy........ I guess time will tell.

When most people are "glutened", I would like to know, how long do they know it...an hour, 12 hours, or 24 hours....... This I don't know yet.

I am certain that it varies from person to person - and sensitivity as well -- but curious?

Lisa B.

PS: I am learning.....today at the grocery store, I felt myself a little off ballance and I had a dry mouth, lathargic..... (B-12 shot had not kicked in on Friday maybe)

I don't know where the post was listed....try the search with" inhaling flours", maybe symptoms or coping with forum.

I assume that the horses have been out in the field and rolling in the dirt. Dirt is dirt, but........they also poop in the field. Horses don't like to roll in a dirt/poop area and will go elsewhere. But, you need to keep this in mind when you have many horses at pasture for a long time. There is poop in the dirt.

As you groom, you are stirring up dust that they have rolled in (as they LOVE to do).

In other words, horses eat wheat, oats....horses poop, horses roll in fields that they poop in, therefore, horses have residue of digested wheat and oats on the dirt/dust that you groom off.......... Horse poop, let unattended, will grow wheat and oats, or whatever is feed and digested.

Therefore we have a problem Berneses.......

Try to get one of those masks that dentists use, craftsman use, or woodworkers.

Wet it with water. So as you groom, the damp filer will do just that.......filter alot of the dust/dirt/body scales. This may be no sure fix, but may be helpful.

If not, you may have to get someone to help you groom before tacking up. But, as we has said.........don't let celiac disease keep you from doing what you love to do. You control IT. IT does not control you.

as usual, my disclaimer is that I cannot spell............

Lisa B.

This pics are awsome.........wish I could take one home.

Hi Everyone- I'm seriously thinking about leasing a horse and I'm a little concerned because barns are FULL of gluten- I can't think of any animal that eats more wheat, rye, barley and oats. I don't have DH BUT I'm just worried about the whole touching something and then putting my fingers near my mouth and boom! I'm micro-sensitive.

i was looking online today and there are lots of gloves you can buy for around the barn which I will probably do, but I'm wondering if anyone else out there rides and is really sensitive and how they handle it. I won't be feeding the horse, just grooming and riding. Thanks, Beverly

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Go for it, you will never regret it. Don't let celiac disease limit your life.

Lisa B

Michelle:

Very glad that you have jumped in. Please feel free to ask any questions or join a response at any time. We are all together in the same boat......sometimes we can help and sometimes we just are hear to, just be here.

My girls were in combined- training. Dressage, Statium and Cross Country and involved in Pony Club and I have never been so proud.

Keep on with those horses, I am envious, so let me know how they are doing as well as you...........

This is always an open door.

Lisa B.

NEVER LET THE JOY OF HORSES OR BEING AROUND THEM STOP YOU FROM YOUR INTEREST.........................

We have had many horses and the pleasure and joy of just being around them is worth the world.

At that time I was A-symptomatic (i.e didn't know what I have now as I am sure you are well aware of.)

If you lease a horse, you may be totally responsible for the care. Many barns will feed and hay, or course with added fee.

If you are NOT totally sensitive to "air-born" wheat products, you may do well around horses.

Are these horses bedded down with Hay (and what kind) or shavings (cedar is good for them - oak, walnut and hard oaks are not so good) Cedar is the best - for the horses.

Feeding: You will deal with Oat Hay, Alfalpha Hay, Burmuda Hay, and most likely Wheat Hay (we dont have that here). They DO get dustly and you will inhale alot of the dust -- especially if it not fresh.

All of this depends on your level of sensitivity to glutens. Inhaling is one thing, but putting your hands in your mouth may be another. There has been a discussion on this board about inhaleing flours -----so cant confirm for you.

But, being around the joy of horses, would not hold me back.

If you are leasing...explain your issues and I am sure that they will work with you.

After you feed and finish out "mucking" out the stall, the last thing you want to do is put your fingers in your mouth.

Lisa B.

Here are a couple of choices that are SAFE:

Capt. Morgans Rum and coke or pepsi

Seagrams 7, Seagrams VO and 7-up

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Glad to help...call me anytime. Lisa B

I am certainly not an expert in any avenue of this disease. I do think that your wife is unable to help herself. If she is not eating, has ongoing symptom of celiac disease, she most likely is not getting the nutrients that she needs through malabsorbtion, with many mineral diffencies, those including iron, calcium-D, B-12 and most likey many more.

These diffencies can cause many of the symptoms that your wife may have.

I would encourage you to get a complete blood work-up and have it reviewed by a DR that will know what to look for. With the proper suppliments, she may return to her old self and get the energy back to take things into control on her own.

Your help is very admirable, but the cure is in her hands.

This is not a disease that is fatal in any means ---we determine our fate unlike a cancer. WE CAN MANNAGE THIS, and not depend on drugs, radiation, or surgery.

Someone once told me that "The power is with us". This is not an easy disease, but, I would choose this over the alternative.

Good luck to you and your wife. Twelve stars to you for your caring and consideration for the wife you must love greatly.

Let us know. Lisa B.

Here are some halloween candies that are gluten free from delphilist:

Cadbury Trebor Allan (Open Original Shared Link) (vw=1-31-03)

Regular Bars: Jersey Milk 45g, Caramilk 52g, Caramilk Rolls 47g, Burnt Almond 48g, Jersey Milk Buds 37g, Dairy Milk Rolls 47g, Caramilk Dark 52g, Pep 48g, Cerises 45g, Sweet Marie 60g, Coconut 48g, Dairy Milk 48g, Fruit and Nut 48g, Fruit et Noix 48g, Hazelnut 48g, Gold Mine 45g, Ivory Mountain 48g, Amazon Brittle, Nut Supreme 48g, Almond 48g, Crunchie 44g, Yogurt 52g, Crunchie Crush 44g,

Family Bars: Hazelnut 100g, Fruit et Noix 100g, Fruit and Nut 100g, Dairy Milk 100g, Caramilk 100g, Gold Mine 95g, Ivory Mountain 100g, Amazon Brittle 100g, Nut Supreme 100g, Almond 100g, Orange 100g, Jersey Milk 100g, Burnt Almond 100g, Premium Dark 100g, Mint 100g, Caramilk Dark 100g, Jersey Almond 100g, Jersey Toffee 100g, Raspberry 100g

Miniature Bars: Caramilk 1 bite, Dairy Milk 1 bite, Jersey Milk 2 bite, Caramilk 2 bite, Crunchie 2 bite, Dairy Milk 2 bite,

Sharing bars: Dairy Milk 200g, Fruit and Nut 200g, Fruit et Noix 200g, Hazelnut 200g, Caramilk 185g,

Fundraising Bars: Almond 100g, Caramilk 100g,

Hope you are feeling better Karen.  Hope your kids have a great holloween. 

SnackBoxes/Willopack: Golden Buds 145g, Coconut 145g, Coolmints 145g, Nut Fudge Clusters 145g, Macaroons 145g & 485g, Dark Buds 145g & 485g, Golden Buds 485g

Cadbury Easter Products: Mini Eggs, Crème Eggs, Caramilk Eggs, Truffle Eggs, The Great Bunny, Magic Hollow Eggs, Hunting Eggs, Peter Rabbit, Wishing Well Hen, Solid Bunny Pops, Rabiteers,

Starch /Jelly Candy: Cherry Blasters, Fuzzy Peach, Gummi Bears, Gummi Worms, Jujubes, Sour Patch Kids, Sour Patch Keys, Swedish Berries, Wild Strawberries, Wine Gums

Other Candy: Candy Canes, Karnival Pops, Halloween Kisses

Cadbury (Cadbury Trebor Allen) CANADA (Open Original Shared Link) (vw=09/2002)

Miniatures (Caramilk 1 bite, Dairy Milk 1 bite, Jersey Milk 2 bite, Caramilk 2 bite, Crunchie 2 bite, Dairy Milk 2 bite)

Chicklets (Warner Lambert) (ve=01/12/2004)

Chicklets gum are gluten and dairy free.

Eatmore (000.000.0000) (00/00/00)

Glosette Peanuts; Glosette Raisins; Hershey Favorites (with Choc. Covered Almonds); Oh Henry; Reese Miniatures; Reese Peanut Butter Cups

Hershey's (800.468.1714) (vp=12/10/04)

Kisses, Kisses with Caramel, Rich Dark Kisses, Kisses with Almonds, Milk Duds, Almond Joy, Mr. Goodbar, Hershey Bar, Hershey Bar with Almonds, Reeses Bites (food starch corn or tapioca)

Hershey's (800.468.1714) (vs=4/24/02)

Jolly Rancher (hard candy and lollipops); 

Hershey Chocolate Bars (Hershey Canada Inc)(1-800-468-1714) (vp= 07/08/2004)

Both the Creamy Milk Chocolate bars and the Special Dark Chocolate Bars are gluten-free.  Since wheat is one of the eight protein allergens, it will be listed on the label, including if there was a possibility of cross-contamination. It is Hershey’s policy to list clearly list allergens on their labels. NOTE:  Miniature candy bars are not gluten free (including the Special Dark and Hershey's Milk Chocolate and Mr. Goodbar candies). Hershey's says that you cannot assume that the same candy bar is gluten free in different sizes

Jelly Belly Candy (800.522.3267) (ve=4/2/02) Candy Corn (ve=09/11/02) (modified food starch is corn)

Jolly Rancher (Hershey’s) (800-468-1714) (www.hersheys.com) (ve=03/26/04)

Fruit Chews (all varieties) also Casein Free

Jolly Rancher (Hershey Foods) (800.468.1714) (vs=4/24/02)

Hard Candy and Lollipops

Just Born Candies (888.645.3453) (ve=1-13-05)

We do not use wheat, rye, barley or oats in any of our candies, which, to the best of our knowledge, are all gluten-free. The modified food starch we use in the manufacture of our jelly bean candies is corn starch. Following is a complete list of our current product line:

HALLOWEEN

Marshmallow Peeps Pumpkins, Spooky Cats And Ghosts

Marshmallow Peeps Delightfills And Cocoa Cats

Snack Pack And Variety Pack Bags - Mike And Ike, Hot Tamales And Zours

M&M's (800.551.0702) (vp=09/24/02)

The following are gluten-free: Snickers (except mini's in Canada); Skittles; Starburst; Dove (milk & dark choc); Mars Almond Bar; 3Musketeers; MilkyWay Midnight (all other MilkyWay's are not gluten-free). All mini versions of the above are gluten-free except Snickers in Canada)

Nestle chocolate & confections (Nestle USA) (800-258-6728)

Nestle will clearly label gluten ingredients. “This information includes products, which, to the best of our knowledge, do not contain wheat, rye, or barley/malt ingredients. The list may not be complete subsequent to the date of issue (8-19-03) due to formula changes and new product information. Please read each product ingredient statement for the most current information.”

CHOCOLATE BARS AND PIECES:  Baby Ruth, Butterfinger, Butterfinger BBs, Chunky, Goobers, Nestle Milk Chocolate, Nestle Treasures, Nestle Turtles, Oh Henry!, Raisinets, Sno?Caps, Wonderball

CONFECTIONS AND WONKA:  Bit?0?Honey, Bottlecaps, Gobstoppers, Laffy Taffy, Lik?M?Aid Fun Dip, Mix?ups, Nerds, Nips, Pixy Stix, Runts, ShockTarts, SPREE, SweeTARTS, Tangy Taffy, Tart'N Tiny

VALENTINES:  Milk Chocolate Hearts, Milk Choc w/Butterfinger Hearts, Milk Choc w/Butterfinger Tigger, SweeTARTS Lollipops

EASTER:  Baby Ruth Creme Egg, Butterfinger Nesteggs, Caramel Nesteggs, Milk Chocolate Nesteggs, Peanut Butter Nesteggs

CHRISTMAS:  Milk Chocolate Jingles, Milk Choc w/Butterfinger Jingles, SPREE Candy Canes, SweeTARTS Candy Canes

Pez Candies (203.795.0531) (vp=09/24/02)

Pez products are gluten-free.

Smarties (USA ONLY) (Ce De Candy) (908-964-0660) (vp=10/15/2003)

Please note, these are the Smarties in the USA ONLY.  Canadian Smarties are NOT gluten-free

Tootsie Rolls/Pops (www.tootsie.com) (ve=3/20/04)

Tootsie Roll and Pops are gluten-free.  No flour on lines, or dusting of packaging

3 Musketeers (M&M Mars) (800-627-7852) (vp=01/15/2004)

Full size, Snack Size, and Bite Size are all the same formula and gluten-free

NOTE:  THERE ARE SOME NOTATIONS THAT DIFFERENTIATE BETWEEN CANADA AND U.S. PLEASE READ CAREFULLY!

Hugs.

Karen

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Karen, I hope that you are feeling better and enjoy a great holloween.  Enjoy these time,  too soon they will become teenagers and they turn into very strange creatures.  Lisa B.

I will keep that in mind. I do think that working out and building up my butt muscles will help grately. Thanks for your imput. Our insurance is getting a little tired of doctors and billing. Any information is good information.

Thanks, Lisa

Cover Girl Continuous Color is gluten-free. 

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Rachel: Like the new pic.

Cover Girl Continuous Color is gluten-free. 

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Thanks both of you for the suggestions for lipstick. That will get me over the vanity hump.

Lisa

You sound like me 4 weeks ago.  Even though I knew the endo would come back positive, I still felt like I'd been smacked upside the head, so here's a ((hug)) for you.

I have tossed all the cosmetics that I thought might get in my mouth.  Like my facial scrub and moisturizer and stuff like that.  My lipstick is ok.  So far, I'm still using my old shampoo and stuff.  I figure when it's gone, I'll get something different, but for now, I don't plan to eat it and I'm just being careful not to get it in my mouth.  I don't have reactions, but some celiac disease sufferers have very bad reactions to even a drop and are very debilitated by it.  While I know the internal damage is going on even though I don't react, I have had to make priorities in how I do this.  I have had to restock my kitchen and it's been very expensive.  So, the stuff I do put in my mouth had to change right now, but the stuff that might sorta make its way there will have to be phased out gradually.  The fact is I simply can't afford to change it all in one day so I have had to prioritize.

Gluten will not be absorbed through your skin, so it's more about the gluten finding its way into your mouth after you handle your food or something.

Probably not very helpful, sorry.  There are lists available of what cosmetics are gluten-free or you can write the company.

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What Lipstick do you use? I saw somewhere that Revlon and Almay are gluten-free, but can't get a confirmation. I DO love my lipstick.

I would like to find a witness.........

Does anyone else suffer from a disease, that I call," Noassatol."

I cannot sit in a hard chair unless I sit on my thighs, if not, my tail bone and (don't know what they are called, but my bottom hip bones?) grind into the chair and it compresses my spine. I have terrible lower back problems.

Anyone else have this problem? What do you do?

I am geneticly high risk for Osteoperosis. Have not been tested until the celiac disease gets undercontrol. Most likely have it.

Would excercise to rebuild the atrophy make sense? I guess that's a "duh".

Lisa B.

If you use alot of antacids...this too will receed your gums.

Things like Prilosec, Zantac, and Pepsid will. I would recommend to use them just when you need them and not overuse.

Lisa B.

Here are a couple of choices that are SAFE:

Capt. Morgans Rum and coke or pepsi

Seagrams 7, Seagrams VO and 7-up

If you want a touchable printed list call the Celiac Sprue Association and they have a list, not as detailed as the Delfi Forum Product List, but it may help you get started.

They have a toll free # 1-877-272-4272

They will also offer you many web sites that will give you SO much valuable information regarding celiac disease. ( as small fee is required, but worth it and you may also join the association and receive newsletters and updated on celiac disease research)

Good luck and keep us posted about our progress.

Lisa B.

Question for all the "old schoolers".........

I have been gluten-free for six weeks, as best as I am able. I still have many symptoms (i.e., D after lunch, fatigue, as my husband tells me, irratibility, some acid with D with mucus -- totally gross to talk about, but, guess we all have been there/done that. (BTW- hubby said I was grumpy BEFORE celiac. - go figure) ....next one will be a younger man with older money!!!

Generally, overall, I feel that this is a slow progression toward healing although the listed symptoms still continue, slowly better, but continuing.

My assumption is that until the small intest are healed the symptoms will continue with less and less with the gluten-free diet. Is this correct?

I can only assume, that new to the diet and experienced cook with spieces and marinades, I will have slip-ups.

I guess my true question is: If I remain on a TOTALLY gluten-free diet, I will experience symptoms of celiac disease until the small intest. heals -- decreasing graduately without gluten and the healing process will continue.

Thanks for your thoughts and feed-back

Lisa B.