Lisa
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Latest Celiac Disease News & Research:
Everything posted by Lisa
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ARCHIVED Pos Blood Test Neg Biopsy?
Lisa replied to Roob's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the Club Chris. If you had a positive blood test for Celiac - that is your diagnosis. An endoscopy exam with biopsy can be hit and miss. There are twnty-something feet of intestines and it's highly likely that not all of it is viewable. I had six biopsies and two were positive. There are currently three ways to diagnosis Celiac: ... -
ARCHIVED La Choy Soy Sauce
Lisa replied to Wakeboarder's topic in Gluten-Free Foods, Products, Shopping & Medications
San-J "Wheat free" Tamari is also gluten free. Yup, once you have mastered label reading, and learning the companies that you can trust, life becomes to much easier. -
ARCHIVED Why Isn't Cellulose On The Unsafe List?
Lisa replied to DavidB's topic in Gluten-Free Foods, Products, Shopping & Medications
You may find this interesting: Open Original Shared Link -
Glad that you are doing well David - two years later
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ARCHIVED gluten-free/cf Pancake Or Waffle Recipes Or Mixes
Lisa replied to missy'smom's topic in Gluten-Free Recipes & Cooking Tips
I like Pamela's Mixes. One member here (Gulia) likes to make fried onion rings with the pancake batter. Yum! -
ARCHIVED Reviewing My 'negative' Test Results
Lisa replied to dbmamaz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here is a link that you may be interested in: Open Original Shared Link I am not so good with interpreting testing, but I do know that being gluten free for two months would certainly effect your testing. -
ARCHIVED Blood Test Negative - What To Do?
Lisa replied to motif's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The blood tests are not always accurate. They can rule Celiac in, but the can not rule it out. A negative blood test does not mean that you do not have Celiac. There are the test that you should have had: Anti-gliadin antibodies (AGA) both IgA and IgG Anti-endomysial antibodies (EMA) - IgA Anti-tissue transglutaminase antibodies (tTG) - IgA... -
I would assume that your Doctor would refer you to a Gastro guy familiar with the proceedure. I bet it's rather pricey, too.
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ARCHIVED Tuna Fish
Lisa replied to Wakeboarder's topic in Gluten-Free Foods, Products, Shopping & Medications
MSG is not gluten related. A good general rule would be to look for products with the least amount of ingregients, and look for wheat, rye, barley and malt. Fresh tuna is far better and naturally gluten free. -
While reading this thread, I got the feeling that the mail man (person), may be the last bastion of personal service. In this age of cell phone, texting, computers, e-taxes, e-everything, I am afraid that mail delivery by foot may lost in the near future. It still rings of 1950's good old days - mail man, milk man, egg man. ( , a VERY VAGUE recall...
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Ever heard of the term "Going Postal" When postal workers, overstressed, go crazy. Other pursuits may be more of an option. I do certianly admire those who work for the Postal Service. Remembering three years ago when we we hit directly from Hurricane Isabel. You could not manuver through the streets, due to fallen trees, wires and fallen utilitiy...
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ARCHIVED Help! New Celiac Still Having Reactions
Lisa replied to JDMurray's topic in Gluten-Free Foods, Products, Shopping & Medications
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ARCHIVED How Long Does It Take To Notice A Reaction
Lisa replied to a topic in Coping with Celiac Disease
Could the reaction take longer if the glutening was pretty small (say just in the seasoning) at dinner? Has anyone else had trouble with coconut? -
ARCHIVED Probiotics Effects
Lisa replied to Acersma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I did not do well with Probiotics. I remember that I felt nauseated and stopped them after only a few days. If they don't work for you, try some yogurt which also has the "good" bacteria. -
Open Original Shared Link Here is a listing of glutenfree drugs. Some drugs have binders which may be gluten related. I would contact Tylenol and get their current gluten free listing. They are very good about that and they will send you samples and coupons as well.
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ARCHIVED Mini York Peppermint Patties
Lisa replied to key's topic in Gluten-Free Foods, Products, Shopping & Medications
Hershey will not disclose it's source for "Natural Flavors" in any of their products, and thus, will not consider these products to be gluten free. -
ARCHIVED Just Diagnosed
Lisa replied to minnow's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Here is a list of companies who will clearly list all gluten (as in wheat, rye, barley and malt): Open Original Shared Link Learning to read labels will be the key to your success. It does get easier. -
ARCHIVED Hi- I Am A Newbie...
Lisa replied to constantly questioning's topic in Coping with Celiac Disease
We have all been where you have. I did have to laugh at your doctors saying "just get married and your problems will go away". I wonder where he was coming from with that statement. You are not alone. I have been hanging around here for two and half years and I have learned everything I know about Celiac from here. My medical community was of no help... -
ARCHIVED Just Diagnosed
Lisa replied to minnow's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the Club! You have found yourself the best source of Celiac information around. The best advise I can give you is to start simple. Simple meats, seafood, rice, potatoes, fresh veggies and fruits. Limit your seasonings to salt and pepper until you learn what you can expand upon. Wheat, barley, malt, rye and oats are your enemy. Your old... -
ARCHIVED Cross Contamination
Lisa replied to jmcbride4291's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't think so in regards to appliances. Pots and pans are another thing. Leftover residue may exist. A good clean washing would help. I never felt the need to buy new pots and pans. I do cook wheat pasta in a special pot for other family members. -
ARCHIVED Am I Grasping At Straws?
Lisa replied to Petrafan4life79's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"When I was at my chiro's for an appt. she put some wheat grains in my hand and I reacted to it. The same thing with sugar. She told me if I'm not careful I could end up getting Celiac " ...Now, I have heard a lot of things, but this is the first time I've heard this. Celiac is not a virus, you can't catch it. It is an autoimmune disease that you are... -
You're welcome. Hurricane season is about to begin here.
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EDUCATION & AWARENESS Planning Ahead: Creating a Gluten-Free Emergency Kit By Linda King NFCA Volunteer The idea of a gluten-free survival kit became important to me recently as my family was subject to some of the floods that made their way across the Midwestern states. Suddenly, we found ourselves with almost two feet of water in our basement...
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ARCHIVED Hershey Candy
Lisa replied to celiacsucks's topic in Gluten-Free Foods, Products, Shopping & Medications
Hershey is not a reliable company. They will not disclose whether their products are gluten free due to propriety ingredient information from their suppliers. It more important to be loyal to their suppliers than the millions of people who buy their products. Here is a list of companies who will clearly disclose all forms of gluten: Open Original... -
If you have Dermatitis Herpetiformis, you do have Celiac Disease. A doctor can biopsy these blisters during an outbreak for a diagnosis.