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powerofpositivethinking

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by powerofpositivethinking

  1. powerofpositivethinking
    anti-soprano because of your post I visited the Chicago site even though I use it often, and just for fun searched "DGP" They now have this posted: Open Original Shared Link I got a positive DGP-IgG score but nothing else, and although they kind of dance around the question, it relates the test to celiac instead of gluten intolerance. I plan on...
  2. powerofpositivethinking
    wanted to add this link from Chicago's Celiac Website regarding DGP-IgG http://www.cureceliacdisease.org/archives/faq/are-raised-dgp-igg-levels-an-early-sign-of-celiac-disease
  3. powerofpositivethinking
    as I was searching the Chicago Celiac Center website, and I inputted DGP, this now the first link that appears: Open Original Shared Link even though it doesn't clearly answer the question, it's the name of a test I got a positive on three times, and I can send this link to family members to help back me up. oh happy day
  4. powerofpositivethinking
    welcome! make sure they take at least six samples from the small intestine, though the more the better! Good luck tomorrow, and let us know how it goes
  5. powerofpositivethinking
    welcome! I'm so sorry you are feeling this way now, but it does get better! So much better!! I was on anti-depressants for awhile but was able to stop them before going gluten-free, but I still had some trouble with anxiety. After going strictly gluten-free, anxiety is almost off the radar!! I can only imagine how hard it must be to face that...
  6. powerofpositivethinking
    welcome I think you should definitely get tested based on what you wrote above. Remember in order for tests to be accurate you MUST be actively consuming gluten. Here is a list of blood tests to request from your GP or GI: Comprehensive Celiac Panel: DGP iga/igg ttg iga/igg EMA Total iga serum-this is a control test to make sure you make enough...
  7. powerofpositivethinking
    thanks, Adalaide. that does make sense. I'll give the certified gluten free oats a try in the future by themselves, but I'm in no rush to test that possibility right now. my intestine area is still a little sore and bloated. Everything else seems to be getting back to normal which is good because tomorrow is the first day of a new school year. I've already...
  8. powerofpositivethinking
    hmmm i'm not sure I do oats ok or not. I ate oatmeal at breakfast all the time before going gluten free, but after reading that oats, even certified gluten free oats weren't good to have at the beginning of the diet, I just stopped eating them. Adalaide, am I understanding correctly that even if they are certified gluten-free oats, and even if the...
  9. powerofpositivethinking
    thanks everyone! I prepared everything at my parents house that I ate with one exception, cut up watermelon. It's possible that it could have been that if the cutting board, it is a glass one, wasn't properly cleaned or if the countertop wasn't cleaned thoroughly, I got a hit from that, but honestly I think it might have been the cookies. When I had...
  10. powerofpositivethinking
    I just posted about getting glutened this week in the coping forum, so those effects are wearing off, but right after I made that post I checked my e-mail and my latest Vitamin D results were available. I've been taking my 50000 ius of Vitamin D once a week for a little over a month, and my result climbed from 28.3 to 40.7 wooooohoooo!! I'll take it ...
  11. powerofpositivethinking
    I've been gluten free since March, and got glutened by Rice Dream a bit ago which gave me headaches, made me really tired, nauseous and bloated. My main symptoms before going gluten free were bloating and constipation. Fast forward to this week, and I'm positive I got glutened again but really can't figure out what from. Either it was from cross contamination...
  12. powerofpositivethinking
    Mum in Norway, I can totally relate to how you're feeling, but I would say continue to eat gluten and get that biopsy done!! Make sure they take at least 6 samples from the duodenum and jejunum. I know you had said that if you get it confirmed via biopsy, you get financial assistance in Norway. You've come this far, and September isn't too far off. You...
  13. powerofpositivethinking
    every so often I like to see if there are any new studies added related to DGP, and here's an interesting abstract I found: Open Original Shared Link it says that 55 patients with known celiac disease, though it doesn't say biopsy proven, were tested for compliance to GFD. It would have been great if it was said whether these patients previously...
  14. powerofpositivethinking
    I wanted to let everyone know that if you are looking for somewhere to eat safely gluten-free, please visit Betsy's Bakery in Camp Hill, PA. Not only do they have plenty of delicious baked goods, but they also serve sandwiches in what seems to be a Panera style environment complete with free WiFi. The prices were comparable to Panera too! Not only...
  15. powerofpositivethinking
    bellalunarena, I grew up in the Boiling Springs/Carlisle area. haha the stick of butter line is totally right After all my huffing and puffing earlier in this thread, the rest of my visit was better. I did eat lunch out with my Mom, but it was in a dedicated gluten-free facility about 25 minutes from their house. It is called Betsy's Bakery in...
  16. powerofpositivethinking
    Hope you get some answers!
  17. powerofpositivethinking
    here's a thread that I started on Rice Dream. It did not work for me... https://www.celiac.com/forums/topic/102693-didnt-see-that-one-coming-rice-dream/
  18. powerofpositivethinking
    welcome! Vitamin D deficiency is commonly linked with celiac, and the fact that you said you've been taking large doses but that hasn't resolved the problem is even more suspicious of malabsroption problems. Here is a link with common celiac associated deficieicies: Open Original Shared Link If you want to get tested, you MUST be consuming gluten...
  19. powerofpositivethinking
    welcome! I've read on this forum that IBS really stands for I Be Stumped I would definitely try to get tested based on what you've shared above. It's possible you and your father could have it since both of you already have an autoimmune disease with Hashimotos, and AI diseases like a buddy. You can go to your GP or a GI and request a complete...
  20. powerofpositivethinking
    so glad that you got an answer!! happy healing time
  21. powerofpositivethinking
    welcome! make sure they take at least 6 samples from the small intestine itself. good luck! EDIT: You said you were somewhat gluten free? Have you at least been eating a few slices of bread a day?
  22. powerofpositivethinking
    anybody else go or is going to the Jay-Z and JT tour this summer? Where did you see them, and what did you think? I went with a friend last night in Hershey, PA, and it was pretty fantastic!! JT is more well rounded with being able to play a variety of instruments and sing, while Jay-Z sticks to rapping, but he does it sooo well! As an elementary...
  23. powerofpositivethinking
    I'm glad you're questioning your doctors. I'm also taking 50000 ius once a week right now and will get it retested soon. I had a level of 25 in February this year and supplemented with 3000 ius a day and had it retested last time in June and it went to a 28. The Vitamin D Council recommends a level of 50. Open Original Shared Link I should've asked...
  24. powerofpositivethinking
    thank you, Lisa Lots of questions ahead...If you do order something off the menu, what kind of questions do you ask? Should I say I'm allergic to gluten and can't have it for medical reasons vs. saying I'm intolerant of it? Do you ask to see if they have a gluten-free menu first, and if they don't have one then ask to speak to the manager about which...
  25. powerofpositivethinking
    thought I'd come back and update since I posted something about it in another thread... I've been on the Custom Probiotics less than a month. I've been taking one in the morning on an empty stomach, and there were a few days I took it right before bed as well. I stopped taking Citrucel and my body kept itself eliminating on a regular basis I think...
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