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powerofpositivethinking

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by powerofpositivethinking

  1. powerofpositivethinking
    just posted this on your other thread: sometimes it helps me to hear others say, I can understand your frustration. I am not IgA deficient, but the only test that was positive for me was the DGP IgG, and it was a strong positive. I had the endoscopy done, and it was negative, but even the doctor said the damage could have been farther down. In the...
  2. powerofpositivethinking
    sometimes it helps me to hear others say, I can understand your frustration. I am not IgA deficient, but the only test that was positive for me was the DGP IgG, and it was a strong positive. I had the endoscopy done, and it was negative, but even the doctor said the damage could have been farther down. In the article Spectrum of gluten-related disorders...
  3. powerofpositivethinking
    glad you got it done and were persistent I hope she feels better!!
  4. powerofpositivethinking
    back to update again- so I'm feeling much better! I use the bathroom regularly. It's not always a well formed stool, but it's a regular movement, so I'll take it and my anxiety has lessened! I received my 3 month celiac, Vitamin D and Vitamin K results ordered by my GI: celiac panel had everything negative again except: Deamidated Gliadin...
  5. powerofpositivethinking
    great I don't have DH, but I've read so many times about how the doc biopsied the actual blister, so it was essentially a wasted appointment good luck!!
  6. powerofpositivethinking
    good luck this morning!! hopefully you get this before you go if you aren't aware already, "Dermatitis herpetiformis is only diagnosed and confirmed by a dermatologist obtaining a slight skin biopsy from uninvolved skin adjacent to blisters or erosions." the above is copied from the diagnosis category on this link: Open Original Shared Link if anyone...
  7. powerofpositivethinking
    my advice would be to write down questions you have before hand. Personally, I get flustered, so I write my questions down before hand that way I don't forget anything. Maximize your time with the doc I'd expect that they will schedule the biopsy for a future date during your appointment today. good luck, and let us know how it goes!
  8. powerofpositivethinking
    yep I had brain fog. I can't count how many times I said, "Physically I'm here, but I feel out of it mentally." It was like an out of body experience feeling. the fog has lifted going gluten-free!
  9. powerofpositivethinking
    hi jen, I started a thread about this https://www.celiac.com/forums/topic/101959-gluten-cutter-digestive-aid/ you know the saying if it seems too good to be true... I hope you feel better!!
  10. powerofpositivethinking
    responded on another topic about periods, and thought I'd come back and update this one. 3rd period was manageable, but my 4th period started almost a week early (yesterday) with painful cramps...grrr I also felt nauseous today, and I never feel that way.
  11. powerofpositivethinking
    so glad you're getting answers!!
  12. powerofpositivethinking
    it's only my 4th period gluten-free, so I am very hopeful things will improve. My boobs were never sore pre-gluten-free, so maybe that's my new signal that it's coming because they have hurt before each one since going gluten free. I'm two days into this one, and I have had painful cramps today. my period also came 8 days early...yuck a little back...
  13. powerofpositivethinking
    thanks for helping to clear up my confusion!
  14. powerofpositivethinking
    so looking more into casein, I wanted to be sure Culturelle's adult probiotics did not have any. Here's my exchange with them: Thank you for your recent inquiry regarding Culturelle. We are pleased to inform you that Culturelle is free from gluten, lactose, casein and soy. We wish you great success should you begin on Culturelle. If you have any...
  15. powerofpositivethinking
    welcome! I think it would be a good idea to get tested based on what you've written here. check out this link for common vit/min deficiencies linked with celiac: Open Original Shared Link Below is the list for a celiac blood panel. Your PCP/GP should be able to order these tests for you. Comprehensive Celiac Panel: DGP iga/igg ttg iga...
  16. powerofpositivethinking
    welcome are the genetic markers you're referring to HLA DQ tests or antibody tests (TTG, DGP, EMA)? If it is the genetic markers of HLA DQ you're referring to then the next step should be to get a complete celiac blood panel drawn. a complete panel consists of: Comprehensive Celiac Panel: DGP iga/igg ttg iga/igg EMA Total iga serum-this...
  17. powerofpositivethinking
    saw this on my facebook feed this morning: Open Original Shared Link
  18. powerofpositivethinking
    keep eating gluten until ALL testing is complete
  19. powerofpositivethinking
    glad nicole and gemini were able to give more specifics. good luck in whatever path you choose!
  20. powerofpositivethinking
    take a look at the top of pg. 7 of this report Open Original Shared Link constipation and bloating are both non-classic symptoms. the big C and bloating were both issues for me that were not resolving with diet changes, and that's what prompted me to finally get tested
  21. powerofpositivethinking
    was it the same lab doing the test both times?
  22. powerofpositivethinking
    for those who go to Whole Foods, now there is a corporate coupon policy instead of managers deciding from store to store it was posted on hip2save.com today, so print it out and if anyone at Whole Foods gives you a problem, kindly take this out and show them their company's policies. Open Original Shared Link Open Original Shared Link
  23. powerofpositivethinking
    here's a good list of symptoms: Open Original Shared Link
  24. powerofpositivethinking
    always a possibility...
  25. powerofpositivethinking
    there are some with celiac that are emaciated with diarrhea, and others that are overweight and constipated, and normal weight with diarrhea and keep the combinations coming request a complete celiac panel, which consists of the blood tests: Comprehensive Celiac Panel: DGP iga/igg ttg iga/igg EMA Total iga serum-this is a control test to make...
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