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Claire

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Everything posted by Claire

  1. Claire
    Certianly listening to your body is wise counsel. BUT - if you have children or family members who have health issues they won't listen to your opinion or experience. Only tests and numbers convince those who do not want to be convinced. As for young children - if you have any - it is so important to know whether there is a genetic factor at work here that...
  2. Claire
    I have to bite my tongue here. I could really make somebody really mad! Gluten does nasty nasty damage to the body. Certainly you can test by eating it continually until real damage can be 'proven'. By then you have a problem or maybe many problems - instead of what you have now. If you push your luck you will most certianly develop other autoimmune...
  3. Claire
    I noticed that I spelled it wrong! I guess everyone here would know what I meant. Spelling is one thing - pronunication is another. I haven't heard two people say it the same way. I imagine it is an Indian word, We have one local store selling some of their products and our newest store 'The Natural Marketplace' is going to be adding it soon. As...
  4. Claire

    ARCHIVED Grieving

    Claire replied to Suzn14806's topic in Coping with Celiac Disease

    gluten-free and no yeast is really hard when it comes to bread. Tonight my daughter brought me Kinnikinnick's Yeast Free, gluten-free bread. I was pleasantly surprised. Good texture - actually tastes like bread. This is a good thing, as Martha would say. Claire
  5. Claire
    My daughter brought me a Knickinick bread tonight - gluten free, yeast free. I have never tasted a yeast free bread that was worth the price of the wrapper. This one is quite good - actually tastes like bread. It is not too heavy either as so many of the gluten-free products are. I ate it with just a little margerine (soy). I will try toast in the morning...
  6. Claire
    Hope this is of interest to someone out there. Claire Gene Sequencing Reveals Gut Bug Bonanza Open Original Shared Link
  7. Claire
    Instant Expert: Genetics Open Original Shared Link[
  8. Claire
    This does not sound like DH. Yes, it is terrible. Been there, had that. Sometimes during the day but almost always at night as others here are saying, I am quite certain that, at least for me, this is food related. I just don't know what food. I am Gluten-free Casein-free but am 'bothered' in one way or another by many other foods. There is relief...
  9. Claire
    Just a reminder that the Celiac gene test can only eliminate Celiac as a possibility. No Celiac genes - no possibility of Celiac. If you have the gene (s) then it is possible for you to have Celiac. If you have the symptomology also - then you can be quite sure that you do. . The gene test proves a negative and suggests the possibility of a postive. Claire
  10. Claire
    Though this is not at 'authoratative' reply I do have medical background to backup my opinion. Yes, you could have both MS and Celiac. NIH neurologists suggested to me the possibility that I had more than one thing going on. gluten-free will put an end to celiac symptoms - but not overnight. Some may go quickly and others persist. There can always be...
  11. Claire
    I am a Tinkyada fan also. Anyone else find that it needs a bit more cooking than regular pasta? But, like regular pasta, cooking time depends on how much you are cooking at once. I like it tender but not too soft. I notice also that for some reason it doesn't hold heat as long as regular - cools down very quickly. Anyone notice that? Claire
  12. Claire
    In addition to the plain one I just found the same one but with fruits added. A change is as good as a rest! I haven't tried it yet.
  13. Claire
    Regarding the above paragraph: one reason for early diagnosis is that the earlier you catch the disease the sooner the individual can begin to work toward their own health - if so inclinded. You are already doing that but many are not and, of course, many when diagnosed will give in to the meds and the more or less futile attitude toward this disease. Right...
  14. Claire
    I wasn't sure what forum to put this in - so this one gets it. Hope this is helpful to some out there. Claire QUESTIONS AND ANSWERS ON HLA TYPING AND CELIAC DISEASE Open Original Shared Link
  15. Claire
    Likewise, this is a little heavy if you don't have any medical background but I think most who read it carefully will get the idea. Discount that it is talking in reference to MS. The basics here are true for all autoimmune diseases. Mimicry is an import concept to get a hold of. Claire FOOD TOXINS, MOLECULAR MIMICRY, LEAKY GUT AND THE MS CONNECTION...
  16. Claire
    Rice Guy, you have me confused. You state that an allergy test for a wheat allergy is the most reliable. I have had that test and it was negative. I do not Celiac. So that would mean that when I get the test for genetically determinded gluten sensitivity it should be positive. I'll let you know. Certainly gluten sensitivity and celiac are not the...
  17. Claire
    While you may have good reason to suspect MS be sure not to jump to conclusions. MS is frequently even misdiagnosed by doctors - i.e. something is called MS that really is not. Genetically determined gluten sensitiveity predisposes you to neurological disorders that indeed look a good deal like MS. At least they didn't tell me I have MS. I am one of...
  18. Claire
    Too much here to remember what to respond to. I do not have Celiac. I had allergy testing at one time and was absolutely free of any 'allergy' to anything. I am sensitive to almost everything! Allergy tests do not pick up anything but true allergies - not sensitivites/intolerances or celiac. I have my own way of thinking about celiac and gluten...
  19. Claire
    Hello again. I didn't forget you - just had a holiday and then a guest for 10 days so I got behind. I have a regular online job everyday too so I run out of spare time. Again I question whether we are far off topic. Should I start a new topic? Use PMs? As I have said, you are way ahead of me with some of the thinking, reading you have done so I am...
  20. Claire
    As jerseyangel says 'scary'. It doesn't have to be celiac. Any one autoimmune disease seems to encourage yet another. 'Mimicry' is the name of the game it seems. Claire
  21. Claire
    Hi again. My personal experience - sensitivities did not go away. I was gluten restricted for a long time - only gluten-free since August. I gave up many foods - for years - but when I tried to reintoduce had no luck or should I say bad luck. I am surprised by the time period that is being quoted for intestinal healing. Not at all what I was told. ...
  22. Claire
    I too am waiting for that Shortbread recipe. Help - christmas is coming. Claire
  23. Claire
    I feel I must add an opinion to those of mightymore regarding dietician vs. 'nutritionist'. Dieticians have basic nutritional education. Few if any of them are well versed in illnesses and disease. They are notoriously 'professionally politically correct'. There are certain things they do well. Dealing with the complicated issues surrounding autoimmune...
  24. Claire
    Soylent Green is all but a household word here. My daughter has never forgotten that film and everytime she sees or hears something like this topic story - she just rolls her eyes and says "soylent green!" Claire
  25. Claire
    My two cents worth. I have been this route - seen them all. An allergist may or may not be open to testing with an elimination diet. A nutritionist, if a good one, can do that. Blood tests for Delayed Food Reactions are expensive and produce a lot of false positives. They do find the culprits but they are lost among so many things that are not...
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