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Claire

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Everything posted by Claire

  1. Claire
    SMALL AMOUNT OF GLUTEN! Oops. Here I am again to groan over any indication that a small amount of gluten may slow down progress but only do "a small amount of damage". The example a neurologist gave me will be offered here yet again. A grain of gluten put into a petri dish with a drop of blood from a celiac patient will initiate an almost immediate reaction...
  2. Claire
    I have Type II, Delayed Food Reactions - gluten among many. I have reactions anywhere from a couple of hours to several days. As the symptoms are not indentical for each reactive food I can tell (usually) what set it off - therefore know how long a time from exposure. Claire
  3. Claire
    Hi George, This article is better than average. Even the good articles usually fail to address the devastating neurological damage that can result from celiac and genetic gluten sensitivity. Thanks for the post. Claire
  4. Claire
    Sorry. I had not seen the previous post on this subject. NIH is only one of many to suffer from the massive budget cuts pending. College students, senior citizens and many research facilities will all suffer - sooner rather than later. Claire
  5. Claire
    In case you missed this: FDA Approves Clinical Trial of BioBalance Corporation's Probactrix for Possible Celiac Disease Treatment https://www.celiac.com/st_prod.html?p_prodid=1273
  6. Claire
    In case you missed this: National Institute of Health Cuts May Decrease Celiac Disease Funding https://www.celiac.com/st_prod.html?p_prodid=1272
  7. Claire
    Pardon me for adding more confusion to a confusing subject but - doesn't casein also cause intestinal damage? One reason I have felt the so called ' gold standard' should not be. I have had the intestinal damage - though it may be healed somewhat now. I haven't been tested for a long while. I do not have celiac - according to genetic testing You...
  8. Claire

    ARCHIVED Bah Humbug!

    Claire replied to cgilsing's topic in Coping with Celiac Disease

    I think Nini has it right. Planning goes a long way. Take gluten-free dishes that are tasty enough for everyone and you will be sure to have something to eat. I went to a family Christmas Eve dinner. There was little there that I could eat but certainly enough that I didn't starve! I went to visit with family - not to eat. At home my daughter cooked...
  9. Claire
    I never heard of having this condition 'from birth'. Gluten and casein are the principal instigators of the gut damage but an infant isn't getting gluten but is getting casein. There had to be a culprit - as far as I know it doesn't just happen. I have been reading and researching on this for a long time and have read anything that didn't imply that 'something...
  10. Claire
    Hope this is useful. Claire Go Gluten Free! Tips for Getting More Nutrition into the Gluten-Free Diet Open Original Shared Link
  11. Claire
    Have fun with this/ Claire THICKENING AND ENRICHING AGENTS Open Original Shared Link l
  12. Claire

    ARCHIVED Mental Health

    Claire replied to BamBam's topic in Related Issues & Disorders

    Hi Jeff, Gluten has a pronounced effect on the brain - as you already know. If you are not aware of the opioid quality of gluten then you might want to read the article below. ZOMBIE FOOD Open Original Shared Link A search on gluten and opioid (together) will turn up some interesting material - some will be quite technical. Look up opioid separately...
  13. Claire
    See how different we all are! I cannot handle things mad with soy flour. I can handle soy margarine in small amounts. I can drink soy milk. We are each weird in our own way. Claire
  14. Claire
    Hi neighbor! I remember seeing something about Carlisle in one of your posts. Also that you have moved. I am not familiar with Bloomfield. Where is that? I have lived in PA since 1995. Lived in Greencastle for the first five years and then moved here. I came here from New England (MA) but originally came to the US from Canada (Nova Scotia). Claire
  15. Claire
    Your doctors certainly gave you some very faulty information. I have LGS - have had it for many years.I am not nor have never been hospitalized for this and I am quite able to move. There is plenty of information on this subject available - on sites that are not selling anything. Doctors know little to nothing about this. My GP admitted that it was...
  16. Claire
    It is an unfortunate truth that often we have to get worse before we can get better. I have a friend whose husband fights going to a doctor because they always tell him "come back when it's worse", I had to pass out and hit my head on the bathtub before I really began to get attention. The chances are the passing out incident was related to a 'bug' that...
  17. Claire
    I don't trust myself to eat bean flours. I have a great sounding recipe that calls for 2 cups of bean flour. What would you suggest for substitute? I have heard about using buckwheat but would you use that alone or would the taste be too strong? The recipe is for a Mincemeat quick bread. Ideas please. Thanks. Claire
  18. Claire
    You may find something of interest at these sites. Claire FRUCTOSE INTOLERANCE & FRUCTOSE MALABSORPTION Open Original Shared Link FRUCTOSE INTOLERANCE IS ON THE RISE Open Original Shared Link
  19. Claire
    Having had this problem for a long time I have quite a lot of accumulated information - no books though. It is discussed in books that I have but not the main subject. As Rachel said - busy time! Her description was good. Here are a few things for you to read. Remind me if you want more. Claire THE RESOURCE FOR INFORMATION AND PRODUCTS FOR LEAKY...
  20. Claire
    An add on to Tiffany's remark: "If you follow the gluten-free diet, strictly, you're pretty much on par, health risk wise, with everyone who doesn't have celiac disease." I would say that if you follow a gluten free diet faithfully you will probably be healthier than you have ever been and certainly healthier than most of your family, friends and co-workers...
  21. Claire
    I take this to be Mercersburg, PA. I live in Chambersburg. Hope you get an answer. There is a meeting in Gettysburg but it is only twice a year - next one in May. Claire
  22. Claire
    I posted the following just recentl. The one below came recently from a board member but I don't remember who it was. CREAMED SOUP SUBSTITUTES Open Original Shared Link CREAM SOUP RECIPE STARTER 1 cup non-instant dry milk or nondairy substitute 1 cup white rice flour (i sub some of it for sweet rice) 2 tsp dried minced onion 1/2 tsp pepper...
  23. Claire
    Well this thread sure generated response. Goes to show you, most of us have some of these difficult people in our lives. What great replies! If I could think of something to say I would. I think the bases got covered very well. Claire
  24. Claire
    If Celiac is genetically determined then that gene came with you at birth. It is often discussed that the actual development of the disease requires a 'trigger' - illness, pregnancy, trauma. I have read of several people who first manifested the disease after having mono. Claire
  25. Claire
    MarshaM - Hi and welcome. I hope all these 'discussions' haven't hopelessly confused you. Certainly you need to do what seems best to you. Genetic tests, blood tests and stool sample tests are all available and this forum has a search feature that you can use to look backwards at what has been said on a given subject. Do keep us posted. Claire
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