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Claire

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Everything posted by Claire

  1. Claire
    My endoscopy and colonoscopy is on that same dat.e I will think of you - you think of me! I will be so glad to get this over with. Anticipation far worse than the event - as everyone tells me. I just don't like to drink a lot of liquid and the 27th will be a very 'liwuid' day.
  2. Claire
    Hi Patti - please tell me about Vance's Dari free? Is this a milk substitute? If so, what is in it? Where do you find it. I tried at Whole Foods think surely they would have it but they didn't. Thanks. Claire
  3. Claire
    You ignore the gluten free diet at your own risk. Risk of what? Well: Risk of developing other autoimmune diseases such as Lupus, Rhematoid Arthritis, Addison's Disease, Osteoproisis and others. Risk of neurological disorders -such as periperal neuropathy, cerebellar ataxia (gait and balance dissorder that also can effect eyesight, speech and swallowng...
  4. Claire
    I posted these two URLs in different threads but think they might be of interest to the person who started this topic. Open Original Shared Link Open Original Shared Link The second URL posted above is not currently working. Sorry about that. Claire
  5. Claire
    This is just an excerpt from the article. Url below. Claire Excerpt from article: If wheat or dairy products have ended up in the French fries after you said they were not, then McDonald's is in a whole heap of trouble. Many of those who suffer from this awful celiac disease are children who have parents freaking out about what they allow their...
  6. Claire
    The following is just an excerpt from the longer article. Claire JUPITER COULE SUE MCDONALD'S, CLAIMING FRIES MADE DAUGHTER ILL Associated Press WEST PALM BEACH, Fla. - The parents of a 5-year-old girl sued McDonald's Corp., claiming its french fries contained a wheat protein that caused their daughter to become seriously ill. Mark and Theresa...
  7. Claire
    Don't give up the gluten-free diet! Some of the results of neglected or untreated celiac are very, very serious p far worse than anything you have right now. Do investigate other causes of your discomfort. Food intolerance really flare up after going gluten-free - so consider that you have more than one thing going on and probably did even before going...
  8. Claire
    Hi Thomas. Most non-technical articles on celiac are not 'thorough' - even wrong on some of the specifics and long on omission but some, like this one, contain a gem that makes up for any shortcomings. The posted paragraph is information badly needed by many on this forum who are discouraged because they set high expectations for 'recovery' that are not...
  9. Claire
    So glad this was a good post for you. Hope it is for others too. So many people here seem to be struggling with this issue. So many with such high hopes and then getting discouraged when it doesn't quite work out that way. That discouragement causes a lot of very negatives feelings - not good for recovery. This piece shouldn't discourage people from...
  10. Claire
    Earlier today I posted a clip from an article. It seems to be lost in space. I reposted in tonight and it is 'Time to Heal'. Those in the healing stages may find it interesting. Claire You've come a long way, Baby!!!!! Claire
  11. Claire
    I posted this once but it never showed up so here goes again. If you see this twice please excuse. Claire RECOVERY OF HEALTH OF THE INTESTINE TAKES TIME AFTER STARTING GLUTEN-FREE DIET In this study, 158 people with celiac disease had their small intestines examined after starting a gluten-free diet. After 2 years, 65% of the people had healed intestines...
  12. Claire
    Gluten intolerance is also genetic. I wrote in another thread that my new GI specialist believes that gluten intolerance and celiac are just different manifistations of the same inherited disorder. Someday, hopefully, it will be defined that way. This subject is mentioned in Dangerous Grains. Claire Thank you, cheer leader! I really would like...
  13. Claire
    I will drop in here and add comments to follow Lynne's. A new GI recently told me what I have been thinking (out loud a lot) that gluten intolerance and celiac are two sides of the same coin. You can have intestinal damage with gluten intolerance and there are diagnosed celiacs who have none. The doctor felt that one day these two genetic disorders will...
  14. Claire
    Hi there. The Naturopaths are usually pretty good. This guy is not operating with a full deck. You can test the caffiene yourself. It certainly is not the cause of Celiac. You should point out to him that he is giving out false information. Celiacs do not need that. Claire Hi there. The Naturopaths are usually pretty good. This guy is not operating...
  15. Claire
    Anyone tried sage tea? It is great for soothing the tummy. As a gargle, it works great for sore throat. Though you aren't likely to need it for this purpose, the Indians used sage leaves to clean their teeth. I also use my grandmother's tummy soother - ginger tea - made with freshly shredded ginger steeped in hot water. i steep 4 -6 mins. That...
  16. Claire
    Agreed. They are great. They also sell individually wrapped larger ones and there is a chocolate verion of these. Great to take along for a snack when you think you won't find gluten-free anything. Claire
  17. Claire
    Hi Monica (others too) Normal is relative and subjective. I do know what you are talking about though. People with any kind of a disorder are 'different' than other people without 'that' disorder. But each tends to have 'something' that differentiates from others. So who is normal? If you mean 'feeling good' or 'feeling right' then there is no doubt...
  18. Claire
    Rachel is absolutely right. A have a new GI specialist - wrote about him in another thread. He was emphatic about this - saying that I do not have Celiac associated with the two primary identified genes - which does not mean that I do not have celiac. There are other genes not yet sufficiently studied so not yet available for testing. This is like...
  19. Claire
    This doesn't sound like DH - which doesn't mean that it is not. A biopsy is definitely the way to go. Ask specifically that they look for DH. If the doctor gets cocky and says there is no need to test for that you might have to lie a little - say one of your parents had celiac. I have a friend whose doctor wouldn't even consider DH - until she fudged...
  20. Claire
    Hi Betty - listen to Jen - she is absolutely right. Skin pricks and patches won't help you at all. That's a rabbit trail. Claire
  21. Claire
    I put this on your other post as well. Claire Dermatitis Herpetiformis Dermatitis herpetiformis (DH) is not a skin allergy. Rather, DH is a chronic, extremely itchy rash consisting of papules and vesicles. Although it is often confused with skin allergies, it is actually associated with Celiac Disease (celiac disease), a sensitivity of the intestine...
  22. Claire
    I continue on the same subject - Claire: Dermatitis Herpetiformis Dermatitis herpetiformis (DH) is not a skin allergy. Rather, DH is a chronic, extremely itchy rash consisting of papules and vesicles. Although it is often confused with skin allergies, it is actually associated with Celiac Disease (celiac disease), a sensitivity of the intestine...
  23. Claire
    I am not familiar with the source you posted but am familiar with DH (I do not have it) It is no more an allergy than celiac is an allergy - though it also is often spoken of as such. You can't accept everything you read on the internet. You need to cross reference a subject until you find out what perhaps 10 sources tell you - rather than one. I...
  24. Claire

    ARCHIVED Would You Believe?

    Claire replied to Claire's topic in Doctors

    Wish I could! It was a good start. Hope it stays this positive. Claire
  25. Claire

    ARCHIVED Would You Believe?

    Claire replied to Claire's topic in Doctors

    Like I said, "so far so good". I don't want to get overjoyed just yet but at least he is doing and saying the right things at this point. That is on the plus side to be sure. Claire
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