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Claire

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Latest Celiac Disease News & Research:

Everything posted by Claire

  1. Claire
    I imagine that ten years from now the clinical pictures of celiac and other disorders only now being seriously researched will look decidedly different. In the meantime we have only the knowledge that is available. Some genes for celiac have been identified and we certainly can find out if we have any of those. That is definitive - the best we can do right...
  2. Claire
    Thomas: I don't know whether you were responding here to George or to me. Regardless, let this be said: this is a forum and people come here with information and personal opinions as well. Of course you meant to be helpful - so do I - but your post here suggests that you don't much welcome anyone not agreeing with you. I certainly do agree with some...
  3. Claire
    George - you sure got that one right.!!!!! Claire
  4. Claire
    Blood testing is not an option for everyone. Though I had the Panel , it was pointless after being gluten restricted for so long. What may be discovered in the future doesn't rule out using what we have at this time. For now I will accept that I do not have Celiac. Gluten sensitivity maybe - but I have to go the genetic routeto test for that also. As...
  5. Claire
    Right - not fool proof - put closer to fool proof than the blood tests seem to be. Maybe the tests are okay but are being handled by technicians unfamiliar with them. Many doctors have to look up what they need to order! I had the Panel done on orders from a neurologist who suspected Celiac. I had been on a diet free of grains for many years. Of course...
  6. Claire
    Having faced the Delayed Food Alllergy problems long ago and gone the testing route - there is a word of caution. These tests turn up a large number of false positives - making the results difficult to interpret, Things showup that you never ate in your life! If anyone does choose the blood tests you need to look at what common reactives show up. Eliminate...
  7. Claire
    I would say that if you are 95% gluten free skip the bloodtests. You may well get a false negative. I know what you mean. We are all rather opinionated about tests. I cast my vote for genetic testing first. If you test negative that will allow you to remove Celiac and gluten sensitivity from consideration. It will not confirm a positive. But if you...
  8. Claire
    I have posted this before but here goes again. This is a wonderful snack food. You can bag it up and take it anywhere. Also I mix with several kind of gluten-free several - sometimes mix in a little applesauce. Delightful. Does wonders for hunger pangs. It is all nuts, seeds, dried cranberries, blueberries, apricots, dates and whatever else good I happen...
  9. Claire
    This is very informative THE GUT FLORA, HEALTH AND PSYCHOLOGY Open Original Shared Link
  10. Claire
    They ship UPS so I would think they ship to Canada. Try an order. It will not go through check out if they don't ship there Give information to your local health store. Most will bring in a new item that is recommended. Our newest store now as four new products that I asked them to bring in. All are selling well so likely to be kept. Claire/
  11. Claire
    I sure hope someone answers this. of course I never had any luck with the regular ones. We have a local bakery that makes the best but I never could come close. If you have a good recipe non-gluten-free I would like to have it. I still cook for others. Claire
  12. Claire

    ARCHIVED Chipotle

    Claire replied to grantschoep's topic in Gluten-Free Restaurants

    egoslayer1 - The digestion of food is very individual - as reactions to foods are. 'Average' may be 2-6 hours but people with very slow metabolism may take many many hours. My daughter had a metabolism test that revealed a six hour lapse before digestion even began! Food reactions that come hours or even days after ingestion may be due Delayed Food...
  13. Claire

    ARCHIVED Mental Health

    Claire replied to BamBam's topic in Related Issues & Disorders

    I am just guessing here but this sounds like more than celiac to me. People with diseases tend to blame everything on the one culprit and in so doing miss other possible causes. Maybe you need to go back to the drawing board. Claire
  14. Claire
    Hi Cindy - I have posted before for a shortbread recipe but no replies. If you have one can I also get a copy? LJH1957 - I would like to talk with you - specifically about your husband's 'gluten ataxia'. We have a few people on this forum with ataxia - I being one. I am still waiting genetic test results (NIH). They are looking for a genetic ataxia...
  15. Claire

    ARCHIVED Grieving

    Claire replied to Suzn14806's topic in Coping with Celiac Disease

    I don't imagine my experience will help those who grieve the loss of food so deeply but for what it's worth here goes. For many years I was (in error) on a restricted gluten diet. I sometimes ate small amounts of non-gluten-free stuff - cookies, scones, a piece of pie - usually things that didn't have yeast. Because it was a sometimes thing I found that...
  16. Claire

    ARCHIVED Grieving

    Claire replied to Suzn14806's topic in Coping with Celiac Disease

    Well, I am still human and I have faced all this for the past 15 years. I have a reactive food list that I imagine is at least as long as yours'. I have survived very well thank you and doctors are amazed that I do not take any medicines. Obviously my restrictions not only have not killed me - I am no doubt healthier than I would have been without them. Do...
  17. Claire
    Kinnickinnick has a multigtain gluten-free bread but I didn't look at it very closely because it has yeast - a no no for me. Multigrain should have fiber. I believe you can place a phone order with them - also order a catalog. Claire
  18. Claire
    I guess what one 'needs' to be taken seriously by family depends on the family. I know that I have at least a couple of children who will not accept anything short of a positive diagnosis of a genetic disorder - and maybe not then! I wasn't suggesting that you needed to 'prove' anything to your friends. I do have big concerns about doctors treating patients...
  19. Claire
    There are some strong opinions being voiced here - which is what one expects on a forum. This post is primarily in response to traveljunkie's post to me. Ursala also may find something of interest here. Those who are familiar with my posts know that I do not have any great love for doctors but as a health care professional (not active) I do know that...
  20. Claire
    Someone here on the forum referred to this story but did not publish the URL. I couldn't find that message but here is the article. Claire Belatedly, an Illness Of the Intestines Gets Notice in U.S. Open Original Shared Link
  21. Claire
    I believe you or anyone else, cheat at your own peril. No, you will not die on the spot. Maybe you won't even feel any discomfort - but somewhere inside your body gluten is doing a number on you - your intestines. your joints, your brain. Can it possibly be worth it? Claire
  22. Claire

    ARCHIVED Grieving

    Claire replied to Suzn14806's topic in Coping with Celiac Disease

    Check this forum for the Rice Pizza recipe that I have posted. It is very, very good. Claire
  23. Claire
    I do not refrigerate mine though there is no reaason not to. I have a large wide mouth antique jar that sits on the open shelf of a hutch in the kitchen. It last me about a month. There is nothing in the mix that is likely to spoil in that time. All the contents are unrefrigerated when I buy them. As gifts, I pack jars or tins - these are so popular...
  24. Claire
    BOOMI BARS Open Original Shared Link There are many different flavors - all I have seen are gluten free. Some Health Food Stores carry them. They cost about $2.00 though I got some at $1.50 each. They are cheaper online by the carton but shipping negates the price advantage. Claire
  25. Claire
    My favorites: Arrowhead Mills - Organic Maple Buckwheat Flakes Erewhon Crispy Brown Rice - with berries I have a 'My Trail Mix' that I often add to these cereals, It is all nuts, seeds, dried cranberries, blueberries, apricots, dates and whatever else good I happen to have. Family members give me hints so they will get a jar full for Christmas...
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