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Indea88

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Indea88

  1. Indea88
    My child was DX at 18 mos. His father was told he had IBS, was never tested for Celiac, but it doesn't take a rocket scientist to figure out that he does...His mother, the MIL talks about the fact that "oh he always had yellow runny poop" Wouldn't you get this checked out? I don't get it... My son never had a formed stool, never gained weight, dark circles...
  2. Indea88
    My 4 year old son has been gluten free for 2 and a half years..Positive DQ2, negative antibodies.He had never had a formed stool from the day he was born, always diarrhea.He has had dramatic improvements since being gluten-free. My question is now we have Immunolabs antibody testing/Autism panel drawn and the testing comes back negative for wheat and...
  3. Indea88
    Oh My! I'm sorry to say I know far too well about this denial and frustration for the family. My husband REFUSES to be gluten free, refuses the bloodwork, the testing. He has now developed thyroid disease, suffers from 10-15xs a day trips to the bathroom, mood swings, depression, you name it...He has had diarrhea his entire life, now he is developing other...
  4. Indea88
    My Toddler has Celiac, and his father has Celiac, was diagnosed with IBS. My husband refuses testing, the gluten-free diet. He thinks he can eat some gluten and stay away from other foods. He blames the spagetti sauce when its really the pasta, he has every excuse in the world to deny it. No one can convince him, we dont try anymore. Point being, sadly I...
  5. Indea88
    My husband has Celiac and my son I have with him has not been officially diagnosed but is on the spectrum. My son also has Celiac. Do I believe there is a connection, there is no doubt in my mind. I beleieve it is a complex immune/autoimmune/ gut imbalance disorder. I have two sons from two different marriages one without Celiac or Autism and one with. My...
  6. Indea88
    I was tortured for years and infertile because of severe endo. I have been through the gamet of testing and treatments ranging from ultrasounds, Lupron, Laser laporoscopies etc. I had suferred with this for over 20 years until in 1999 I saw an MD who specialized in alternative medicine. He used Indoplex otherwise known as Indole 3 Carbinol in a capsule form...
  7. Indea88
    There is no doubt in my mind that my sons previous undiagnosed Celiac was being labled as Autism, Sensory integration dtsfunction. The behaviors all reappear when hes had inadvertant gluten.I believe in some children the Autism is diagnosed and it is undiagnosed Celiac.
  8. Indea88
    I have a new toddler since the diagnosis of Celiac and being gluten-free. I was being told he was autistic, spinning, screaming, biting, limited eye contact. My sons behavior now is nothng short of remarkable. There is a gut-brain connection.
  9. Indea88
    Your dilemma sounds so very similar. My husband has Celiac wont follow the diet. My toddler who I breastfed never had a formed stool had indigestion, reflux, poor sleep, speech delays, behavior issues etc.. I had him genetically tested he tested positive for DQ2. I placed him on a gluten-free diet and within 4 days he had the first formed stool of his life...
  10. Indea88
    My church nursery is where my toddler gets gluten all the time. He was stealing the snacks from the other children and it wasnt being monitored. Hes 2!! I now have to have him in the baby room because he is not able to grab snacks from the other toddlers. I have offered to be in the nursery. It is then that I will educate the staff about the importance...
  11. Indea88
    It was 4 days for my toddler. The dark circles started to abate, he started to gain weight and fill out within 2 months. He doesnt look pale anymore!!! I was severely anemic after his birth so everyone kept saying "you think hes pale and anemic because you are!"Thank God for a mothers intuition..The improvement was quick and dramatic.
  12. Indea88
    That was enough for me. A positive genetic test, the DQ2. When I heard this about my 2 year old who hadnt had a formed stool since birth, I started the gluten free diet that day. My toddler is a different child. It sounds like your daughter had positive genetic testing.I know it is harder at this age. My other son who isnt positve is 11 and I know it would...
  13. Indea88
    I am going gluten-free after my testing is done next week. My husband wont go gluten-free? He has Celiac. I dont bother with his unwillingness and stupidity. I have just been focused on healing my 2 year old, who has recently been diagnosed. Having a gluten-free house is the best way at least for me it would be....
  14. Indea88
    My toddler had never had a formed stool. Everyone in the family was saying oh we had to put him in the tub/shower" he had diarrhea up his back spilling over the diaper." I said no way is this ok somethings wrong... I breatfed for the first year so I thought it had to do with breatfeeding but when it continue into the second year I knew something was going...
  15. Indea88
    Our Ped GI said Flinestones? There has to be a better multi for kids that is gluten-free. Ive been on the hunt as well. Havent found one yet....
  16. Indea88
    My son is 2 yr 2 months as well and at 26 months he tested negative for the Celiac Panel but had positive genetic testing. The pediatric GI Dr. said the only way to know is to repeat the panel after 2 months on gluten. No way, this is the first formed stools he has ever had. I dont need anymore testing. the positive dietary response is enough for us. I cant...
  17. Indea88
    My husband ,I can guarantee has Celiac and hes one of the ones who just wont deal with it? I dont get it.. Anyway I breastfed my son who is now two and has the Celiac gene and responded to a gluten-free diet when I finally figured out that his constant diarrhea wasnt normal. He was always colicky, wouldnt sleep and looked pale with dark circles under his...
  18. Indea88
    My toddler tested positive for DQ2 ,negative for DQ8 and the Celiac Panel was negative. He responded right away to the gluten-free diet. I dont want him biopsied. Is this considered Celiac? Im treating it as such. Thanks for any input..
  19. Indea88
    I totally agree with waiting until they are ready. My oldest son was 3 and a half. I really believe that if its pushed it will backfire. I listen to my cousin ( she has to control everything) with her first child say "Were regulating a contolled potty training routine" Oh boy!! I just bite my tongue. I do know that with my toddler who has Celiac it will present...
  20. Indea88
    My toddler 26 months has been recently diagnosed as well. His father has Celiac and wont follow the diet I know the frustration. The best gluten-free bread Ive found is from Food for Life Brown Rice bread, its pretty dense and doesnt crumble. I use a sandwich maker to heat it and it works well with chicken,turkey sandwiches. My son wont eat any kind of rice...
  21. Indea88
    I can empathize, I too have a two year old, sickly, pale had dark circles under his eyes, never slept, irritable, never had a formed stool since he was born. Not only did all those symptoms disappear after the gluten-free diet his behavior and so called autistic traits are gone. Had him tested after seeing a ped GI specialist who has Celiac. The celiac panel...
  22. Indea88
    I might be wrong only going by what the pediatric GI specialist said ( he also has Celiac) "Celiacs are lactose intolerant" I was hoping this wasnt lifelong I want to be able to reintroduce diary at least cheese and yogurt...
  23. Indea88
    My 2 year old has just been diagnosed but his been gluten-free for about three months. His length hasnt been affected at least I dont think so hes 40 in. in the 75% it is his weight that has been affected not gaining and losing as well. I have had quite a few comments about him gaining weight. from people who hadnt known hes gluten-free
  24. Indea88
    Our pediatric GI Dr. has Celiac himself and he told us that if you have Celiac ,your lactose intolerant? So they go hand in hand...I know others use milk products, but we dont based on his advise.I just use Pacific rice milk,its gluten free
  25. Indea88
    My Husband takes the metal for Celiac denial.... Our 2 year old just came back positive and my husband has spent a lifetime suffering, he now knows why he is so sick..but do you think he would go gluten-free, NO!At least my son has a chance at a normal life devoid of the problems my husband has had. To me its so simple, I cant understand the resistance to...
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