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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    You TSH is just of the "normal" range that many doctors feel comfortable about but it's in the newer "normal" that many endocrinologists are embracing. Mary Shomon in About.com has good information: Open Original Shared Link I have Hashi's (dx in 1997) and over the years my dosage of Armour Thyroid has slowly increased -- until the last years of perimenopause...
  2. cyclinglady
    I don't know if there would be a problem in obtaining health insurance specifically with Celiac Disease, but years ago I had problems getting an individual insurance policy because of Hashimoto's Thyroiditis (which is another autoimmune disorder). Fortunately, the laws were changed and I was able to get insurance (HIPPA regulations) but had to pay a higher...
  3. cyclinglady
    I'm not sure I got this straight, but your doctor tested your genes for Celiac, but did not run a full Celiac Blood panel -- especially with anemia (what kind) and liver issues?
  4. cyclinglady
    No it's the opposite. You must have the genes (about 40% of the population has one or both genes) but you won't necessarily get celiac disease (only 1% will get it). Here's a good link on About.com: Open Original Shared Link But, you know, I have seen conflicting responses in this forum. Let's hope someone can clarify!
  5. cyclinglady
    I have become the "Queen of Breaks". My anemia was so bad (low hemoglobin) that I had a hard time catching my breath while talking. The anemia has finally been resolved (am absorbing iron) and my thyroid has finally calmed down (was hyper and hypo) so the fatigue is improving. I thought I was finally getting better when I fractured a vertebrae doing nothing...
  6. cyclinglady
    I'm sorry too that your family is not as supportive as you like. It's a huge lifestyle change for everyone in your family. For me, the hardest part has been going to restaurants. It's a complete hassle. But I have found a few local restaurants and that makes everyone happy (extended family). I was diagnosed in March too. Went in for a routine colonoscopy...
  7. cyclinglady
    The proof is in the diet and how you feel. I diagnosed with celiac disease, but my husband has been gluten-free for 12 years at the recommendation of his GP and my allergist. He cheats and ugly symptoms rear (sinus congestion contributing to severe snoring, body aches, etc.) Took him a year to adjust and now he never cheats (unless he gets accidentally...
  8. cyclinglady
    Best wishes to you! Have not cruised yet since my dx, but I'm glad to hear that Celebrity was so accommodating!
  9. cyclinglady
    Great advice given. Just wanted to let you know that it truly does take time to heal. It's only been five months or so of being gluten-free for me and slowly I'm feeling better. My husband has been gluten-free for 12 years, so the conversion for me has been relatively easy. Our daughter has not yet been tested, but she's living in a gluten-free...
  10. cyclinglady
    Could be celiac disease, or an intolerance to gluten (my initial symptoms were only thyroiditis and anemia and not the classic celiac disease symptoms). However, you said you had allergies when you were little. Bet those allergies (which may have never really went away.....) have come back. I used to think that my allergies went away during the winter...
  11. cyclinglady
    My blood test results came in as "mildly positive". I continued to eat gluten (a lot -- almost a loaf of bread a day since I knew in my heart that I had celiac disease and I binged on all my old favorite gluten foods) until my biopsy (endoscopy) seven weeks later. My biopsy results showed Marsh Stage 3B. My prior symptoms before testing only included...
  12. cyclinglady
    Did you see today's blog by The Patient Celiac ( aka Jebby,a Pediatric MD)? It's all about celiac and food intolerances -- including a discussion on histamine. The foods that you've been eating: bananas, avocados, banana chips, mayo (contains vinegar) may be bothering you. It's worth reading and it may help you! You might not have to give this up entirely...
  13. cyclinglady
    Oh, Red Star in the three little packets is gluten-free and corn free per their website -- just pure yeast. The bulk Red Star is also gluten-free but has a coating that may or may not be derived from corn.
  14. cyclinglady
    Don't waste ingredients! Always proof it. Even if the date on the yeast package is good, packaging can be compromised.
  15. cyclinglady
    I always proof my yeast and that's because 1) I buy it in bulk and keep it after it "expires" and 2) I don't want to waste ingredients if the yeast is bad. To proof, just add the yeast to part of the water/milk that the recipe calls for. For example, if the recipe calls for 1 cup of warm water, I add the yeast to just 1/4 cup of warm water (glass) and a...
  16. cyclinglady
    Karen's advice, as usual, is excellent. At parties and family gatherings (which I usually try to host), I bring my own food (and eat prior to going too). I bring enough to share and then I'M the first to go through the line before someone can cross contaminate the dishes I brought (I help with the set-up and wash off metal serving spoons too). Email...
  17. cyclinglady
    I'm at a loss. I hope someone else can help you. I've been gluten-free for over three months. I only had abdominal symptoms that developed between my blood test and biopsy (yes, I ate a loaf of good bread a day, I kid you not!). Those symptoms dissipated after six weeks. Now, it's hard to tell if I get glutened which is dangerous since my initial...
  18. cyclinglady
    These aren't any symptoms that I have had.. I hope someone will be able to help you. Do you have any other allergies or intolerances? Are you taking any meds (possible side effects)? Might not be related to celiac disease at all. I'm no doctor, but have you been checked for Multiple Sclerosis? My MIL had MS and she had vision and leg problems.
  19. cyclinglady
    My doctor always recommends taking probiotics after completing a course of broad-specturm antibiotics. I took them for the first couple of months after my celiac disease diagnosis. I bought some at Costco that don't have any milk. I use Bio-K after each visit to the hospital for surgery, etc. (this brand recommended by my doctor). Bio-K is expensive...
  20. cyclinglady
    Will you have a microwave? If so, you can buy a rotisserie chicken at Safeway (check the label to see if it's still gluten-free). Grab a bag of self steaming micro veggies, salad, and potatoes. I did this in Williams, but at the time we were in an RV. There are a few restaurants in Williams, but not sure how many are gluten-free. You can always order...
  21. cyclinglady
    Add some gluten-free oats, a little vanilla, and press it into a pan and bake. Cut into "cereal bar" sizes, wrap and freeze. Sounds good too as pancakes. Kinda like fried plantains, but sweeter. Thanks.
  22. cyclinglady
    All that juice will cause fermentation and enough of it will cause your stools to smell sweeter. Back off on the sugar (even natural) if it's bothering you. Everything in moderation! I'd stick to eating prunes (dried plums) instead of the juice. It will have more fiber and that will help with constipation. Also, try psyllium fiber. Buy a brand that...
  23. cyclinglady
    Will you have access to a grocery store? Check online for a small grocery within walking distance. Or will the hotel have a breakfast buffet? If so, you can snag fresh fruit (bananas, apples). Bring your own cereal, boxed milk (shelf stable) and make use of your ice bucket in your room. It can act as a mini cooler to chill down juice or milk. Small...
  24. cyclinglady
    While it may not totally perfect, the foods you've identified so far are a good starting point. Keep a food journal and you may uncover other ones. I don't think you have to test every single food. Eliminate those you've listed and see how you feel.
  25. cyclinglady
    Congratulations!
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