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Deaminated Marcus

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Everything posted by Deaminated Marcus

  1. Deaminated Marcus
    GottaSki, yes I will do. My PCP gives me copies but I'm not sure if it will include the pathologist's report. I'll have to find out where to get it if my PCP doesn't have it. powerofpositivethinking, I was told by the gastroenterologist to eat bread for another 4 to 6 weeks as I was off it for 3 days. I'm not sure about this as I was sore already...
  2. Deaminated Marcus
    To me, your DGP - IgA test is valid. As others have said before you don't have to be positive on all the tests on the panel. That is lack of knowledge on the doctor's part. Here is some information on the DGP - IgA sensitivity: 82-96% specificacy: 93-96% Open Original Shared Link Disease_long_FINAL.pdf Here is another article about DGP-IgA Open...
  3. Deaminated Marcus
    Thank you GottaSki and notme! for confirming about the next day cough and throat tickle. I'm not sure why it makes my lungs feel wet and itchy but I seem ok this evening. I dreaded seeing that gastroenterologist as he was very dismissive during the initial pre consult but my PCP had insisted that I see him because he does a seperate pre consult in the...
  4. Deaminated Marcus
    Thank you greenbeanie, I'm reassured now. Did the nurse say how long it would last. I still felt an itch to cough today. I wish the preop nurse would have told me that beforehand or that I had been told by the procedure nurse. I saw the a bit on the TV but not much as I was in and out of consciousness. Some said in the forum that the upper...
  5. Deaminated Marcus
    I was expecting the endoscopy to be scary and painful and the colosnoscopy to be a breeze, but it was the reverse. About the endoscopy, after it was done and they started the colonoscopy I had the urge to cough as if I had some droplet in my throat or lungs. Has anyone else had the urge to cough after an upper endoscopy, within minutes and into...
  6. Deaminated Marcus
    Hello I'm in Ontario, I went to an allergist to go the IgE skin scratch test for food allergies and environmental allergies. That one was covered by the provincial health insurance. I also did the IgG 220 food intolerance panel called Genarrayt through the Gamma Dynacare laboratory. I needed a blood test requisition from my PCP to do this test...
  7. Deaminated Marcus
    Best of luck with your diet improvements and keep us informed about your health progress.
  8. Deaminated Marcus
    Welcome janmar63, Go chat with the ladies in the Dermatitis Herpetiformis section. They are very knowledgeable. https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/ ................................................................................................................ Added: The quick on and off skin response...
  9. Deaminated Marcus
    As teen I had the same time pattern. I thought it was anxiety and a gastro-doctor told me it was Lactose intolerance. A high school classmate was diagnosed with Celiac. I wish that gastro doctor I saw as a teen had tested me for Celiac. But now that I'm looking back to understand Celiac, I wonder the same thing: why was it worse in the mornings? ...
  10. Deaminated Marcus
    LOL You can get your fiber from fruits and vegetables like broccoli. Dates and peanuts have lots of fiber. A past doctor recommended I eat Whole wheat bread to get more fiber and it was after that my health started to fall apart. Right now for my gluten challenge I'm eating white bread because the brown bread makes me ache even more. I...
  11. Deaminated Marcus
    taynichaf, with your Celiac testing experiences with doctors so far you know they know squat about how write up a Celiac blood test requisition. I looked up my local labs to compare their Celiac panels (3 labs) They were all expensive but one offered more. One lab offered 4 tests as part of their panel. I got the price and the TEST CODE...
  12. Deaminated Marcus
    I was diagnosed with a fatty liver in 2010. Then I went gluten free for 2 years The subsequent ultrasounds no longer detected fatty liver. I can't prove going gluten free cured my fatty liver but here are some articles that say it does. Open Original Shared Link
  13. Deaminated Marcus
    That's terrible Marie, I hope you can put that bad experience behind you soon. They should test the patient first to see if they are sedated enough.
  14. Deaminated Marcus
    Hi greenbeanie, That is so frustrating that the doctor doesn't know about the importance of theTotal IgA blood serum test and that she wouldn't listen to you. How dumb can they get. ? Are you in Canada? My Celiac panel was almost identical except it included the Total IgA. Can you go to a walk in clinic with your test results and ask another...
  15. Deaminated Marcus
    I hope that by chance you get to meet a new bona-fide gluten free pal
  16. Deaminated Marcus
    Oh... I think you have it. Music skills is another characteristic. I don't have them all either and I don't think all Aspergers have all the characteristics.
  17. Deaminated Marcus
    Hi powerofpositivethinking, The eye contact thing and your skill at researching in depth could be Aspergers syndrome. Look it up. Take care.
  18. Deaminated Marcus
    My understanding is that the Celiac blood test's specificacy listed are for detecting Celiac prior to an endoscopy. For vitamin D, do get tested for D1.25 as my D .25 was low normal but my D 1.25 was too high. I don't know if the meds are causing your single DGP-IgA positive results but do read the article posted. That test result pattern has an...
  19. Deaminated Marcus
    Hi Amy Here is a link to other causes of villi damage: Open Original Shared Link If you are still eating gluten or want to continue eating gluten for a few more weeks, you could do the DGP-IgG. I think you should test your son as well if he's eating gluten with the same DGP-IgG test.
  20. Deaminated Marcus
    When I went gluten free in October 2010 I had the opposite reaction. I went hyper and I barely slept and was talking really fast like someone on speed. Later I tried the high protein diet and I was starving on that one. So that was useless for me. Are you ok with eating cheeze? I found eating real cheeze made with real cream really cuts my appetite...
  21. Deaminated Marcus
    Well said nvsmom and taynichaf.
  22. Deaminated Marcus
    Welcome to the forum Tasha, page 12 of the World Gastroenterology Organisation Global Guidelines of April 2012, Open Original Shared Link says that DGP-IgA has a specificity of 93 to 96% so that sounds good enough for me to send you for an endoscopy. I don't know what more proof your doctor needs to send you for the endoscopy when there are...
  23. Deaminated Marcus
    Welcome to the forum Mimi, Here are is the Celiac blood test panel that I did: Total Iga tTG-IgA DGP-IgA DGP-IgG You have to be eating gluten weeks prior to the tests. Good luck with your consult.
  24. Deaminated Marcus
    Welcome to the forum OmgTaylor, You do have enough Total IgA blood serum. How long were you eating bread-gluten prior to the blood tests? Did the doctor do an upper endoscopy and biopsy? One more blood test would be the DGP-IgG. Sometimes it's positive when the other blood tests are negative.
  25. Deaminated Marcus
    Use 5 minute rice for breakfeast and add onions, garlic powder and chicken or mackeral to it. That's an easy breakfeast that will give you energy for the morning. Potatoes are a cheap source of carbs. I eat raisins, dates and sesame snaps as snacks.
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