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Deaminated Marcus

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Everything posted by Deaminated Marcus

  1. Deaminated Marcus
    Try going dairy free. And do see a doctor. You have to keep eating gluten if you want to do a Celiac panel. Total IgA Transglutaminase IgA tTG-IgA Deaminated Gliadin IgA DGP-IgA Deaminated Gliadin IgG DGP-IgG
  2. Deaminated Marcus
    I think you were saying that she didn't give you a blood test form, right? So you still have a chance at getting a Celiac panel done.
  3. Deaminated Marcus
    Thank you for the links. I read the first batch. I read how deep they have to cut so that means it has to be a dermatologist. It's not easy to see one where I live.
  4. Deaminated Marcus
    Next time they tell you not to tell anyone about your Celiacs, retort: Don't tell anyone about your (insert name of their illness). My aunt too is all upset I wasn't eating bread when I was gluten free. A friend stopped inviting me to her dinner parties as if my celiacs is contagious. Hopefully with all this gluten free awareness, newer generations...
  5. Deaminated Marcus
    Barley has gluten in it. If you plan to get the blood test you have to get back on Gluten.
  6. Deaminated Marcus
    About your sinus problem... when I was off the cheeze (dairy) I could breathe at night.
  7. Deaminated Marcus
    Caffeine is a diuretic so just try water. If you don't have D and you stopped caffeine and you're still peeing a lot, go see a doctor for a diabetes test. Peeing a lot could also be a small kidney stone passing. Watermelon and echanacia tea made me pee a lot. Good luck.
  8. Deaminated Marcus
    Phone the lab yourself and give them all the pertinent information like the insurance number, date of the test, doctor's name. If they won't send the results to you, get them to send it to the doctors office. They use computers, it's got to be there. I read that the tTG test can be false positive but the DGP-IgG is almost nill for false positives.
  9. Deaminated Marcus
    I agree, find the cause, not the pill!
  10. Deaminated Marcus
    Thank you squirmingitch and GFinDC, I'm sorry to hear of all the suffering from the full blow HD rash. I'm itching this morning but I can't see well back there even with a mirror. Can my PCP take a sample next to the tiny spot or is it only a dermatologist that can do it? Does he put the sample in a sterile pee container or does it have to...
  11. Deaminated Marcus
    Hi taynichaf, Here too the doctor choses the test but we get to decide which blood test lab we want to go to. Do you get to choose the lab for your test? Or does the insurance company say to go to lab XYZ. If you don't get to choose the lab for your test but know the test will be done by lab XYZ find out on their web site or phone to find out...
  12. Deaminated Marcus
    Good point and... for sarcoidosis ...
  13. Deaminated Marcus
    Addendum: I remember my doctor telling me that the blood test lab I used is also in the US so that panel I did should be available to you. (I'm in Canada)
  14. Deaminated Marcus
    Hi taynichaf, It's me again. In your city is it the doctor office that draws the blood and sends it to the lab? Where I am, the doctor gives us a paper requisition and we can go to any lab we want to. How does it work for you? Excuse my English but that doctor is a moron. There are several causes for damaged villi. The point of doing the Celiac...
  15. Deaminated Marcus
    "Bioactive vitamin D or calcitriol is a steroid hormone" source: Open Original Shared Link
  16. Deaminated Marcus
    Dairy products like ice cream and cottage cheese and yogurt have alot of other ingredients mixed in them. There could be gluten in that list or she's reacting to some other ingredient. Once when I switched yogurt brands to one that had a lot more ingredients, my pain returned. She could have Lactose intolerance or a Casein intolerance or whey protein...
  17. Deaminated Marcus
    Hello powerofpositivethinking, In a Celiac book by a Dr Burns that I got from the library... in the children's section so I don't know if applies to you... he says that positive blood tests but with no villi damage is classified as Latent or potential celiac. I'm still on my gluten challenge and feeling worse and worse but my celiac panel came back...
  18. Deaminated Marcus
    I'm seeing a gastroenterologist soon. I've been preparing notes too but last night I dreamed I was having a consult with a gastroenterologist and I brought the wrong notes.
  19. Deaminated Marcus
    Thank you for the detailed answer squirmingitch. I'm still eating the bread daily, about 6 slices and I'm feeling the fibro pain. I did the Celiac panel and it came back negative, (I was gluten free for 2 years). But when I read Celiac books in Dec 2010, I saw my childhood and teens medical problems in the chapters. The rash is so intermittent...
  20. Deaminated Marcus
    When I went gluten free in October 2010, I had so much energy I could exercise and Iost weight. Not only that, I could do heavy dumbell curls without the reoccuring forearm tendon injuries of the past . In my gluten challenge, I'm just dragging myself and in so much pain, yet I tested negative for the Celiac panel so I don't know anymore.
  21. Deaminated Marcus
    Hello Jamie, I felt better after going gluten free but in the following year my fibromyalgia pain returned. I discovered it was the red kidney beans and later other foods. Later, I did that expensive food intolerance test and I'm glad I did it because it pointed out other problem foods like peas which I never would have suspected. But if you don't...
  22. Deaminated Marcus
    This is the Celiac panel that my local lab offered: Total IgA (a control test to make sure you have enough immunoglobulin IgA) Transglutaminase IgA (tTG-IgA) Deaminated Gliadin IgA (DGP-IgA) Deaminated Gliadin IgG (DGP- IgG) This test should cover all the bases to detect Celiac's intestinal damage...
  23. Deaminated Marcus
    Thank you for replying squirmingitch. Can the biopsy be taken only during the rash or can it also be taken when it clears?
  24. Deaminated Marcus
    When I went gluten free a friend stopped inviting me over for dinner parties. Me not eating bread was too weird for her. Yet I could have eaten the potatoes.
  25. Deaminated Marcus
    I'm on a gluten challenge till I get seen by a gastroenterologist. Sometimes my buttocks gets very very itchy and pimply in the evening. Then it's normal again the next day. Is this how Dermatitis Herpetiformis behaves in the beginning stage? Or is it full on - all the time?
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