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Nancym

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Latest Celiac Disease News & Research:

Everything posted by Nancym

  1. Nancym
    Give up dairy products until you're healed, then try to add them back in. If you have villi atrophy then you're probably lactose intolerant (at the least).
  2. Nancym
    If they're really poor a tax deduction isn't going to be any help at all.
  3. Nancym
    You might also want to have the biopsy evaluated by another doctor as well. Some just aren't uptodate on the lastest diagnostics and might be hesitant to give a diagnosis with changes that others would call. Usually this fear is because they think a gluten-free diet is harder than it really is.
  4. Nancym
    I have problems with lots of things, not just gluten. But I think corn is an issue for me too. Anyway, I think the key is to listen to your body and get a handle on everything it reacts to, not just the gluten. The healing is a process that can take a long, long time. Perhaps after you're well healed from the gluten damage you can handle other things...
  5. Nancym
    It takes awhile but you can adjust to a low carb diet, takes about 2 weeks for most people to make the transition. The body has to switch from metabolizing glucose to using ketones for fuel and it requires switching to making different enzymes. I would advise you look into a Paleo diet, it includes fruit, nuts, veggies and meats and eggs, I feel very good...
  6. Nancym
    I used to have lots of muscle spasms in my neck and shoulders and they went away when I went gluten-free and CF. Lately I had a week where I went back on dairy and the cramping came back, so for me it was caused by dairy. For cramps you can try supplementing potassium, magnesium and calcium (sodium if you're really low but most folks aren't).
  7. Nancym
    Define "fine". You can have neurological symptoms with B12 in range but lowish. YOu can't really OD on B12, get some sublingual supplements and see if that helps. Also, I'm reading the ALA helps with diabetic neuropathy perhaps it'd help with gluten issues too.
  8. Nancym
    They've already shown that gluten increases gut permeability in everyone. There may be be other things that do it also (bacteria, foods, viruses), but I think that's a good start to finding out what common things causes the gut to leak in the first place. I'd be willing to bet research that implicates Western culture's favorite foods doesn't get much attention...
  9. Nancym
    I bet before long the connection between celiac disease, and every other autoimmune disease, will be better understood. My rhuematologist believes that it is caused by "leaky gut", and I think the leaky gut is caused by gluten.
  10. Nancym
    30% of people with celiac disease, but without total villious atrophy will have a false negative blood test. It is possible to also have a false negative endoscopy and still react to gluten (some people have no intestinal symptoms but brain symptoms). Unfortunately for many of us, there isn't a definitive answer that is readily accepted by the average doctor...
  11. Nancym
    Some people don't have HLA B27 and still have AS as shown in xrays. Some doctors only diagnose on the basis of the gene test and fusing, others are more liberal about it. That morning stiffness thing and pain in the sciatic area are two hallmarks of the disease. Men usually have the disease worse than women getting more fusing. Women sometimes fuse but...
  12. Nancym
    I have AS and I'm also gluten sensitive. My AS is pretty mild and has gotten much better since getting off of grains and dairy. You might want to check out Open Original Shared Link a lot of folks there have had luck with a no-starch diet, which is essentially what I follow too. I take sulfasalazine for my AS and it works pretty well in combination...
  13. Nancym
    You may have another disease too, but if they found blunted villi then you've got celiac. It's only been a short while for you and everyone makes oppsies at first. I know I felt better right away in some areas but it took longer (months, even a year) for other improvements. Your body probably has a lot of healing to do.
  14. Nancym
    I remember when I was a kid, my Mom used to tell me to focus on something and not look at the needle. It worked! I stopped fearing blood draws after that. It was probably just as important that my Mom treated it as a minor thing rather than getting stressed about my reaction. She was very stoic and it rubbed off on me.
  15. Nancym
    You might enjoy this article: Open Original Shared Link
  16. Nancym
    It depends on what you're reacting to in milk. If it's lactose, then kefir should be ok. If it is the casein, you might not.
  17. Nancym
    Whoa! Find a new doctor, yours is untrained or misinformed. It's fairly frequent to have negative blood, postitive endoscopy, especially (30%) in people without total villious atrophy.
  18. Nancym
    I've done Intermittent Fasting, which has similar effects to CR, but always kept it gluten free. I know of someone doing CR and participating in a study for it.
  19. Nancym
    The doctor is an idiot. The blood tests are only accurate if you have full villious atrophy, otherwise they miss 30% of the celiacs. He can look that up on PubMed. The disease is very hereditary, gosh saying otherwise means he doesn't keep uptodate and also forgot his schooling.
  20. Nancym
    I think they have their gluten info on the web site. I think some of them have gluten, but most don't.
  21. Nancym
    Are you thinking you have pernicious anemia because your MCV is high? I just learned (due to my own high MCV) that it can also be caused by hypothyroid. My B12 and folate levels were dandy but my MCV was big. I just got my doctor to increase my thyroid dose so I am hoping that the MCV will fall.
  22. Nancym
    Wow, your D3 levels are awful. I don't know if it'll help if you're not digesting well but you could try taking vitamin D3 capsules (oil-based only) make sure you get cholecaliferol not ergocaliferol. Other than that get out in the sunshine with no sunscreen and bare arms and legs and soak up a few rays. You can also get sublinqual B12 tablets, they...
  23. Nancym
    It might be the digestive enzymes. I know someone else posted that their digestive enzymes were grown on wheat, yet the manufacturer didn't include that info on the label.
  24. Nancym
    Blood tests for celiac disease are often negative if you don't have full villious atrophy, you can be in the early stages and thus have a positive biopsy and a negative blood test.
  25. Nancym
    Yes, of course it is. Humans would have gone extinct long ago if it wasn't. Agriculture has only been around a few thousand years, not really long enough for humans to have fully adapted to grains. Anyway, look up "paleo diet" and you'll find a lot of people eat that way.
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