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NoGlutenCooties

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Everything posted by NoGlutenCooties

  1. NoGlutenCooties
    I was used to cooking for myself and eating healthy with minimal processed food so the day-to-day wasn't actually a big adjustment for me. Not being able to eat at most restaurants and having to take my own food every time I go to a friend's house for dinner has been a little more difficult. Luckily I am not the first in my family to get diagnosed so my...
  2. NoGlutenCooties
    Thank you for this! I'm struggling with well-meaning friends and family members that insist they can fix gluten-free meals that are safe even though they have been made in a gluten-containing kitchen. I really want to tell them, if someone placed a plate of food in front of you and told you there was a 50% chance of you getting food poisoning if you ate...
  3. NoGlutenCooties
    One other thing I forgot to mention... be sure that you are 100% gluten-free. No cross-contamination. No cheating. With Celiac it is all or nothing.
  4. NoGlutenCooties
    Welcome to the forum! I too was diagnosed with osteopenia and I've only been gluten-free for 3 months so what I'm about to tell you is from doctors, folks on this forum, and my own research - not proven by personal experience. I'm 42 and have been told that once I get all of the gluten out of my system my body will definitely be able to rebuild my bones...
  5. NoGlutenCooties
    Welcome to the forum and Happy New Year! First, I have found doctors to generally be pretty fairly clueless, especially with conditions and diseases for which there is no prescription medicine available. You are absolutely right to be your own advocate and insist on being tested. Completely realistic given your symptoms. The confounding thing about...
  6. NoGlutenCooties
    I have the same dread/fear! If they don't kill me with gluten they'll kill me with the high-sugar food and "Ensure" type "adult nutrition" drinks. Ever look at the ingredient list in that stuff? Nasty! And the crap they push through a stomach feeding tube is worse. It really should be outlawed.
  7. NoGlutenCooties
    Aspartame is evil stuff. It gives me an almost immediate headache.
  8. NoGlutenCooties
    Welcome to the forum Sugar! I think you're smart to get tested again and pursue an affirmative diagnosis. I had hypoglycemic issues for years throughout my teens and early 20s - then it got noticeably better as my diet improved. As I was not diagnosed with Celiac until I was 42 and I was asymptomatic, I don't know if the two issues were linked. Now that...
  9. NoGlutenCooties
    The medical profession does recognize that autoimmune disorders may be caused by the body confusing normal cells in the body with the antigen that first triggered the antibody reaction in the first place: "The cause of autoimmune diseases is unknown, but it appears that there is an inherited predisposition in many cases. In a few types of autoimmune disease...
  10. NoGlutenCooties
    Welcome to the forum! Are you gluten sensitive or are you Celiac? If it is Celiac, then you have villi damage and being that it has only been 3 weeks, your body is still healing and cleaning out. Probiotics and digestive enzymes can be very helpful. Also, whether you are gluten sensitive or Celiac, take a look at the gluten-free alternatives that you...
  11. NoGlutenCooties
    If you react to BBQ sauce and not bread and also react to pizza - especially the mouth sore, it sounds like you may have an allergy to tomatoes.
  12. NoGlutenCooties
    I agree that for cross-reactivity to occur that the two antigens - or in the case of Celiac, proteins - must be sufficiently similar to confuse the immune system. It would be much more likely for a reaction to occur with oats, than say coffee or some other food that is even more dissimilar.
  13. NoGlutenCooties
    I think the anxiety and fear is fairly prevalent. I have to be honest though - I was actually relieved when I first got the diagnosis - and I was asymptomatic so wasn't even looking forward to feeling better. I was relieved at being diagnosed BEFORE I developed more serious conditions that come with much more invasive and extensive treatments and consequences...
  14. NoGlutenCooties
    I agree with Bartfull that you should consider being tested for Celiac before going gluten-free. Celiac cannot be diagnosed via a colonoscopy. It entails a bloodtest, usually followed by an endoscopy and biopsy. Also, I'm not sure about the rotisserie chicken, but Uncle Ben's rice is gluten-free (unless it was a flavored variety - I'm not as familiar with...
  15. NoGlutenCooties
    One day gluten-free won't matter at all for the bloodtest. However, if the bloodtest comes back positive they will most likely want to confirm with an endoscopy. Depending on how long it takes to get an appointment with a gastrointestinal doctor and then get the appointment for the endoscopy that length of time can impact the endoscopy and result in a false...
  16. NoGlutenCooties
    There have been some discussions regarding the possibility of cross-reactivity – the theory that the body can mistake certain proteins for the gluten protein and react as if it has encountered gluten. I know some are fairly adamant that this theory has not been medically proven and I am not suggesting that it has been. I’m just opening this up for discussion bec...
  17. NoGlutenCooties
    It seems that quite a few folks cannot tolerate corn very well either. It is also really hard to digest. I know I don't do well with soy - not an allergic reaction, it just doesn't sit well with me at all. One other thing to consider... how much sugar was in the berry bar? Any chemical additives, flavorings, or sugar-substitutes? You may be particularly...
  18. NoGlutenCooties
    In my opinion, while it would have been best to get the Celiac test before going gluten-free, if you have the severe reactions you describe I wouldn't do the gluten challenge just to get confirmation. You had a laundry list of symptoms that went away on a gluten-free diet. You reintroduced gluten and your symptoms came back with a vengence. If you go gluten...
  19. NoGlutenCooties
    After my endoscopy I found Snyder's gluten-free pretzels to fit this bill. And I actually like them better than the gluten variety.
  20. NoGlutenCooties
    I actually have a medical ID bracelet - but we're still relying on someone to read it, to know what Celiac and/or gluten is, and to give a rat's butt. Call me cynical... but I don't trust anyone in a lab coat to hit the trifecta on that one...
  21. NoGlutenCooties
    Nick - The first article, https://www.celiac.com/articles/328/1/Does-Distillation-Remove-All-Gluten/Page1.html was published in 1996 and cited a report from 1992. And it states: “A Dutch gin was negative, which might be an indication that gluten in these type of liquor is not a carry over to the distillate! My guess is that this gluten is derived f...
  22. NoGlutenCooties
    One more reason why I hate doctors. What's really scarey is what happens when one of us lands in the hospital in a condition that prevents us from being our own advocate? In my case, I do not have any children or a spouse that I could rely on to advocate on my behalf... so basically I'm screwed.
  23. NoGlutenCooties
    I agree with the others that you should first be tested for Celiac, but that said, to answer your original question - yes, if you do not have Celiac I believe there is a benefit to reducing the amount of gluten intake even if you don't go completely gluten-free. Think of it as being similar to sugar in this regard. Would it be best to avoid all sugar consumption...
  24. NoGlutenCooties
    I experienced this more before going gluten-free than I have since my diagnosis. For quite awhile, stir-fry became my nightly meal. One pan - and it's done in 20 min. And I can throw all sorts of veggies in there that I wouldn't ordinarily like, but I can hide 'em in a little soy sauce and they don't bother me. I get frozen veggies - such as the broccoli...
  25. NoGlutenCooties
    I believe what you're referring to is sour mash whiskey. A bit of spent mash is added to the new batch prior to distillation - is keeps the bacteria levels in check and keeps the ph at an acceptable level so that the yeast can grow. However, it would never be added to the whiskey after the distillation process because it would completely ruin the flavor...
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