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NoGlutenCooties

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Everything posted by NoGlutenCooties

  1. NoGlutenCooties
    If I understand you correctly, you've been gluten-free for a year and your doctor refuses to retest your antibody levels? Were they down when they tested you 9 months ago? If so, there's no reason to test them again because the tests for antibodies is useless if you're not consuming gluten. It is good to get all of the other testing done (thyroid, etc...
  2. NoGlutenCooties
    It does sound to me like there is a high likelihood that they had been contaminated with some source of gluten. However, that aside, that is also a lot of hard-to-digest fat to consume all at one time. Same with the nuts. Have you tried taking a digestive enzyme whenever you consume protein, fats, etc.?
  3. NoGlutenCooties
    One week of gluten after being gluten-free for 2 years is not long enough for your body to make enough antibodies for them to show up on the tests. Unfortunately, in my opinion, this test was useless. However, if you had symptoms so severe that you couldn't take eating gluten for more than a week I think you have your answer. You have Celiac - or non-Celiac...
  4. NoGlutenCooties
    I'm no expert on kids and I know Celiac in young children can be even trickier than it is in adults... but my first thought is that she isn't old enough to have villi damage yet so it may take awhile (even months or years) for her to have any outward symptoms. Being asymptomic even in adults is also not uncommon. I had no symptoms at all myself but my biopsy...
  5. NoGlutenCooties
    FWIW... I've found that as long as I take a digestive enzyme when I eat nuts and make sure I chew them very, very well they don't bother me and they don't sit in my stomach waiting to be digested. I also don't see undigested pieces of them in the toilet... I eat 1/2 cup of nuts every day (with a few M&Ms mixed in for fun )
  6. NoGlutenCooties
    I've always been cold... cold feet especially. I've only been gluten-free for about 3 1/2 months but I've noticed that I don't get bothered as much by the cold and it doesn't seem to take me as long to warm up once I come inside from being out in the cold. My night sweats have eased up too.
  7. NoGlutenCooties
    Just wanted to add that you may want to get a bone density test, as low bone density due to poor Vit D and Calcium absorption is very common in Celiacs - even if the blood levels show normal. As far as being more likely to get sick, that does sound reasonable as your immune system is constantly fighting something it cannot kill. However, for me I've...
  8. NoGlutenCooties
    Doctors can be really clueless and extremely frustrating. From what you describe it sure as heck sounds like you either have Celiac or non-Celiac-gluten-intollerance. Either way, if it were me I would go 100% gluten-free (not just wheat free as that one doc suggested) and see if the symptoms go away. If they do, there's your answer - and I would never...
  9. NoGlutenCooties
    Are you sure that you're eating enough in terms of calories, nutrient-rich foods, and good fats?
  10. NoGlutenCooties
    I work out a lot and so end up taking 2 showers a day quite often - which was drying out my hair and sometimes making my scalp itchy. I found that baby shampoo worked well - sometimes I only wash with "adult" shampoo every couple of days. Although, even with the baby shampoo I still use conditioner.
  11. NoGlutenCooties
    Just wanted to mention that some Celiacs cannot tolerate oats - it gives them the same reaction as if they ate gluten. My uncle and my mother both fall into this category. I haven't touched them myself since going gluten-free. So if you're also intolerant of oats you may be experiencing more of a full-serving-of-gluten reaction rather than a minor cross...
  12. NoGlutenCooties
    Just realized that I had mis-typed and indicated that maltase can be made from wheat - it can actually be made from barley (not wheat) - still off limits. I corrected it in my original post.
  13. NoGlutenCooties
    I agree 100% with cyclingLady. There is also a nasty stomach bug going around so there's a chance it had nothing to do with what you ate.
  14. NoGlutenCooties
    IMO this is a very poorly written article by a writer who is no doubt clueless about what it means to be gluten-free other than it sounds "hip". This is the part that irritated me the most: "they won’t even have flour in the building or allow staffers to bring in outside food with wheat products" What do you mean "even" flour? Flour is like one o...
  15. NoGlutenCooties
    Hi Nick - I was one of the asymptomatic Celiac folks - I didn't have any symptoms, intestinal or otherwise. Yet my endoscopy showed moderate to severe villi damage. I did however have osteopenia at 40. I have been glutened once since going gluten-free and about 3 hours after ingesting a tiny taste of what turned out to be tabuli with bulgar wheat in...
  16. NoGlutenCooties
    Hi Aglaze and Welcome to the Forum! Many people report having worse and/or new symptoms when they first go gluten-free. Some call it detox, some call it withdrawal... no one is 100% sure what it is. But it's common and from what I've read (I didn't experience this myself) it typically goes away after the first couple of weeks. But one of the most frustrating...
  17. NoGlutenCooties
    Welcome to the Forum! Just wanted to add that it doesn't hurt to go armed with some basic information about Celiac and the symptoms. Many doctors are not particularly knowledgeable about Celiac and are hesitant to believe that a food could cause so many problems. In my experience, if there isn't a prescription for it many doctors simply don't care to...
  18. NoGlutenCooties
    Hi Lostinpa and Welcome to the Forum! I have next-to-zero experience with MS so hopefully someone more knowledgeable about that will respond... but it would be helpful if you could tell us about your symptoms. It is possible to have non-Celiac gluten intolerance, in which case you get all of the symptoms of Celiac but you don't get the villi damage that...
  19. NoGlutenCooties
    Lethargy, fatigue, depression, and general malaise can all be associated with Celiac. Of course, every possible symptom of Celiac - of which there are literally hundreds - have other potential causes as well, which is part of what makes this disease so frustrating. You may want to consider a multi-vitamin and a Vitamin B Complex. Often vitamin deficiencies...
  20. NoGlutenCooties
    FWIW.. I didn't have any obvious symptoms at all when I was diagnosed. I requested the blood test because Celiac is in my family and I was getting routine blood work done anyhow so I figured I'd ask to have that one thrown in too - fully expecting it to be negative. My endoscopy three weeks later showed moderate to severe villi damage. So you're right...
  21. NoGlutenCooties
    Sorry... I meant yes, you can have a negative antibody test and a positive biopsy.
  22. NoGlutenCooties
    As far as when to retest, my doctor wants to redo my blood work at 6 months. I remember reading that the antibodies have a half-life of approx. 3 to 4 months. Which means after 3 to 4 months you have approx. half the number of antibodies you did when you started, then half of that after 3 to 4 months, etc. Although I'm sure that's just an average, as everyone...
  23. NoGlutenCooties
    Being able to tolerate gluten and then having Celiac show up at some point, seemingly out of the blue is not uncommon. Many people do not get Celiac until much later in life - others get it when they're very young. Sometimes it can be triggered by an illness, pregnancy, trauma, etc. Up until my diagnosis I could eat gluten with no symptoms at all and only...
  24. NoGlutenCooties
    In a word... yes. We had a discussion about this not too long ago: https://www.celiac.com/forums/topic/105385-how-accurate-are-the-tests/ That thread has some good links that may help. Welcome to the Forum!
  25. NoGlutenCooties
    Hi Frozen and Welcome to the Forum! Congrats on being a dedicated gluten-free healthy person! It is great to have someone in your life who fully supports you - can be sooooo important! (Hang onto that one! ) Just wanted to share with you that while I had no obvious symptoms prior to my diagnosis, once I was gluten-free for just 3 months I had a...
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