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cristiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cristiana

  1. cristiana
    I hope someone will correct me if I'm wrong but it looks to me as if you are still waiting for the tTG result. Hopefully this was ordered by your doctor. Do please check this was done. Coeliac UK recommend the NHS to order both. I am not scientific so I find it very difficult to assimilate anything which involves acronyms, figures and the like...
  2. cristiana
    Hi Angela I totally understand your frustration. Do you think the receptionist gave you what the normal range was for their labs? Every lab should provide normal parameters alongside test results - if so, it sounds rather as if 0.65-4.21 is that lab's normal range. I have googled one of my favourite NHS websites (https://www.southtees.nhs...
  3. cristiana
    Hi Brookland It might be. Celiacs malabsorption can lead to stool containing a lot of fat, a condition called steatorrhea, which might cause this sort of problem. Or it might be that your stools are loose, so perhaps there is a bit of an issue with stool leaking between BM? If you haven't already, I would recommend you see a doctor and request...
  4. cristiana
    Thanks so much, Nightranger - it all sounds delicious! I hope too that our British (sort of) equivalent, the Penguin, will one day be gluten-free!
  5. cristiana
    Hi Veralenn Yes, I'm in the UK and I was diagnosed in Britain nine years ago. The National Institute for Health Care and Excellence has published these recommendations for coeliac testing: https://www.nice.org.uk/guidance/ng20/chapter/Recommendations#recognition-of-coeliac-disease Some GPs may not be up to speed with these recommendations...
  6. cristiana
    Hi Shem Forgive me but my personal circumstances at the moment mean I haven't got a lot of time to read this thread properly, so this may have been or not been covered already... I did note @Russ314's very interesting point about the half life of coeliac antibodies. That's good news, because I feel that it would be worth getting the full coeliac...
  7. cristiana
    Hiya Shem and welcome to the forum! I would definitely want to look into this further if were in your shoes. A few years ago I found an astounding statistic that around a quarter (it may have even been a third) of IBS sufferers in my country were thought to be undiagnosed coeliacs. (Sorry - this is a bit vague, but I can't lay my hands on the paper...
  8. cristiana
    Hi Angela I'm not sure where you are from but I'm British and by the levels used by NHS labs your ferritin is low. This is from the South Tees NHS website. https://www.southtees.nhs.uk/services/pathology/tests/ferritin/ FERRITIN guide to interpretation: Low: Less than 15 ug/L Borderline: 16 – 40 ug/L Normal: 41 – 400 ug/L High: Gr...
  9. cristiana
    Sorry, Frieze, typo... Just checking everyone is paying attention! Trents... in answer to your question, I have no idea!🤔 Do you think I should just change my celiac.com profile/signature to "Citizen of the World" before I start an international incident here? ....
  10. cristiana
    Currently, yes, but a lot of Scottish people would like it to become independent. Currently the United Kingdom of Great Britain and Northern Ireland comprises: Scotland, Wales, Northern Ireland and England. Plus a few islands, such as the Isle of Wight, the Isle of Man, Jersey, Guersey and the Scilly Isles.
  11. cristiana
    I say British because I hold a British passport. But yes, I do also say I'm English, as a citizen of the United Kingdom of Great Britain and Northern Ireland. I'm not sure why I put British rather than English on this website - I answer to both. https://en.wikipedia.org/wiki/United_Kingdom
  12. cristiana
    How funny! I've just googled it, thank you. And yes... Ozzie/Oz is most definitely not an official term. But here in the UK many often refer to Australia as Oz. In turn, the Ozzies sometimes call us Poms, which stands for Prisoners of Mother England!
  13. cristiana
    If you are from Australia you are an Aussie, which the British and Australians pronounce as Ozzie - hence abbreviation to Oz. I must admit I thought you were an Ozzie for years, trents, with your Location being WA Centralia - I thought that meant Western Australia!!😄
  14. cristiana
    Hi Eileen A UK coeliac here. Just out of interest, when you eventually find yourself in the gluten-free aisle at the supermarket I'd like to know if they are now selling Gluten Free Tim Tams in Oz? I lived in Sydney for a few months back in the 1980s and loved them! C.
  15. cristiana
    Hi Kate This is what I'm supposed to take daily. https://www.medicines.org.uk/emc/product/2813/smpc#gref Fultium D3 800, although you can get larger doses in the UK over the counter in the UK. It has helped to bring my levels up to normal in a few years, I think possibly it took so long as I do tend to forget to take them!
  16. cristiana
    I am afraid I'm no nutritionist but this lists what oats contains: https://www.webmd.com/diet/health-benefits-oatmeal#2 As your symptoms seem to improve when you eat oats, I think in your shoes I might see if I can get my blood tested to see if there are any deficiencies on this list, and then seek to address them through diet and supplementation...
  17. cristiana
    Oats contain magnesium - have you considered supplementing this? Also, I wonder what your D vitamin levels are? I am prescribed very high Vit D by my gastroenterologist because the small amounts in OTC supplements frankly wouldn't go very far to helping me. I reckon it has definitely helped me combat fatigue, aches and pains.
  18. cristiana
    Hi Aussinae I remember there were lots of unresolved issues for me at diagnosis - a recurring liver function test result which always worried my GP; tingling, buzzing and twitching; thinning hair; dizziness; bloating... there always seemed to be something going on. A fellow coeliac on this forum @icelandgirl was in the same boat, we joked we ought...
  19. cristiana
    Hi Aussienae Congratulations! It is possible that you just need more time for things to settle. If you haven't already, start keeping that food diary, and include supplements, probiotics - everything you eat and drink - and record activity too. You may see a pattern emerging. Try and vary your days a bit to see if anything helps or makes...
  20. cristiana
    You are welcome. Your GP is really 'on the ball' - I asked if my parents could be tested, and my request was refused because they didn't have anaemia or GI symptoms. Take care and enjoy the Jubilee Holiday!🍰 C
  21. cristiana
    Hello Swiftie and welcome to the forum! I can remember feeling exactly the same as you before my results came about. I remember thinking, if this isn't coeliac, what is it?! I didn't have proper GI symptoms until after some time after my diagnosis journey began. My journey started with anaemia, clinical anxiety and weird blood test results (liver...
  22. cristiana
    Today, up and down the British Isles, cooks everywhere will be baking a very particular cake to celebrate the Queen's Platinum Jubilee (a reign of 70 years). The famous cake is the Victoria Sandwich. I thought I'd share this gluten free version of it with my non-British friends on the forum. I also attach the history behind it. If you want to give...
  23. cristiana
    I am not sure where you live, but do some research and see what local products are available to help you put some more good bacteria into your gut through probiotics, either through food or supplementation. I was put on gluten-free probiotic tablets by my nutritionist and when I could tolerate dairy again, she told me to try live Greek yoghurt.
  24. cristiana
    Aussienae, I agree with you. You do need more time. I seem to recall someone else on this forum advising me the same many years ago. We can't expect instant results if we've been undiagnosed for many years. I am not sure how old you are but I was diagnosed, by some strange coincidence, at the same time as two of my friends. One is about 15 years...
  25. cristiana
    Hi Aussienae I am so sorry - I missed your post completely.🤗 In a nutshell, us females should always get lower pelvic pain checked out in case it is a gynae issue, at the very least requesting a CA125 test from your GP. But if you have already had that checked, it does sound to me as if it could be some kind of bloating that builds up during th...
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