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fergusminto

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Everything posted by fergusminto

  1. Hi Ken. I know how you feel. I am Coeliac (UK!) with multiple intolerances and it has taken me meny years to isolate exactly what the problem foods are. I cannot really advise you what to eat or to avoid as everyone is different but I can suggest you "go back to basics" - in other words absolutely no processed foods even those that are heavily advertised...
  2. Hi, firstly I do not have a medical background but I do suffer from Coeliac. No 'intolerances' linked to celiac disease have been proven but you only need to read comments on this site to see many of us do complain of such. Since being diagnosed 8 years ago I have developed intolerances to oats, all dairy, eggs, soya, Brazil nuts, all preservatives, pears...
  3. I see a number of fellow sufferers have already contacted you but just to add to what they have said, I was diagnosed 6 years ago and over that period I have become intolerant to: All dairy, Eggs, Soya, alcohol, sulhites (in fact all chemical preservatives which means I cannot eat processed ham, bacon etc) and a few other silly ones! I now make my own...
  4. Do not despair! You are not the only one in the US with this problem and believe me there are plenty of us in the UK. I was diagnosed 6 years ago and immediately went onto a gluten-free diet. However, it sone became obvious to me at least (not necessarily to Doctors) that there is much more to celiac disease than just a gluten problem. It has taken me a long...
  5. Firstly, don’t despair. There are many of us out there with similar probs and some of us have managed to control them. Doctors/nutritionists, generally, do not understand celiac disease and fail to identify the link between celiac disease and food intolerances. celiac disease damages the gut. I was diagnosed 6 years ago and have learned the hard way just l...
  6. Hi BarryC. Not widely known that wine can/does contain gluten. My experienced immunologist informed me that it can be introduced in two ways. Firstly, if the wine is of the "oaked " variety it may have been stored in casks that have been treated with flour and water in irder to seal any potential leaks. Secondly wine is more often than not "fined". This is...
  7. Yes there is more to gluten intolerence and Coeliac than meets the eye. I was dignosed with celiac disease 6 years ago. A first the diet went ok but then things started to go wrong about 4 years ago. Too many intolerences building up and I started losing weight and became increasingly tired. Intolerence tests and experience indicated that I was intolerent...
  8. I sympathise with what you are going through but you are not alone. I was diagnosed with celiac disease 5 years ago after decades of fatigue but soon found out that celiac disease does more damage to your gut that UK NHS doctors realise. Just fired my UK NHS doc and gone private. Intolerences abound and make me tired and rather depressed so now on a GAPS...
  9. Hi Llabrword. Welcome to the site. I joined about 4 weeks ago for the same reasons as you - confusion. I have just replied to Bartful in another string of this subject which I think may be of help to you. There are number of items on your list to which I am also intolerant but my reaction is not so quick. I am NOT a doctor just a sufferer btw. There is...
  10. Hi Bartfull. Same problem as you. Diagnosed 5 years ago but gluten-free diet did not do much except let the doctors tick a box every year as my blood tests came back fine. But actually a different story. Increasing intolerances. UK NHS will not test for intolerances. Had to go privately. Showed I was intolerant to all dairy, eggs and a lot of other foods...
  11. This thread is very interesting. Like so many coeliacs I thought my bad temper/anger was just part of my personality but realise that I have not always been like this at all and it is my celiac disease and other food intolerances that are playing a part. These intolerances make me very tired and very "down" and if anyone asks/tells me to do something I really...
  12. Forgot to add - my wife reminded me - that the word "inflammation" is recurrent in both posts. I have an inflamed sacroileac and tennis elbow in both arms. All have occurred since going on this gluten-free diet and I have been taking diclofenac an anti-inflammatory drug which I detest! I am also seeing a chiropractor monthly. In addition I have intolerances...
  13. Thank you both for these posts. I have learned more from you than I have from any doctor I have met especially the consultant I saw recently who just said he couldn't help, had no answer and said I would have to "live with it". I am particularly interested in the egg cases that are mentioned. Can the meat from the chicken be contaminated as well if they are...
  14. I have been questioning celiac disease treatment for some time as I was diagnosed with an antibody count of over 800. I think 10 is supposed to be high? Maybe someone can confirm that. Since going onto the prescribed treatment of 100% gluten-free I have encountered a multitude of food intolerences - oats, all dairy, eggs, soya, pears, grapes etc. I have...
  15. I have spent several hours trawling through coeliac-related web sites looking for "treatment" and all I can find is that an immediate 100% gluten withdrawal in the recommended default. I was diagnosed 5 years ago and was put on the subscribed treatment. Since doing so I have grown a large list of intolerances: Oats, all Dairy, Eggs, Soya, Ginger (!!)...
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