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tarnalberry

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Everything posted by tarnalberry

  1. tarnalberry
    Many people here found their migraines eased a little, a lot, or went away entirely when gluten free. Some of us did not, however. I'm on daily preventatives (topamax), and found that seeing a chiropractor to correct a significant forward head posture and loss of curvature in the cervical spine almost entirely got rid of the non-migraine frequent headaches...
  2. tarnalberry
    well, it sounds like you don't particularly trust your doctor... maybe I'm projecting, because I wouldn't from what you describe. I would note that you decided to go gluten free if you do it, for the sake of full disclosure, but feel no obligation to discuss it.
  3. tarnalberry
    particularly with gluten free flours, everybody's tastes are different, and it may take trial and error - a lot of trial and error - before you find what you like.
  4. tarnalberry
    I'm sorry you have to deal with that. For those who are used to accepting only well-established standards, her reactions are quite expected, but frustrating none the less. At the same time, there is no need for her to understand your reasoning. She doesn't have to agree, or like it, or think it's sane. She merely has to accept that you've made this decision...
  5. tarnalberry
    The natural assumption would be that those who are allergic to wheat are reacting to a different amino acid segment than that which celiacs react to, and there is less commonality between those two grains in that area that triggers those who are wheat allergic than in the area that triggers those who are celiac.
  6. tarnalberry
    You may be able to use a topical antifungal (an OTC for jock itch may work just fine), but if it's not an area that's likely staying damp, it may well be something else. Fungus tends to grown in areas where there is more moisture, so where there are skin folds or skin touching skin; depending on the exact location, you may or may not feel it's more or less...
  7. tarnalberry
    Eh... "forcing" people to go gluten free in the house isn't really all that horrid. They can have gluten outside of the house, of course, so you're not actually forcing them to go gluten free at all. In my place, my husban also has gluten filled cereal and granola bars and crackers and bread that he can eat over his own plate (that then goes in the dishwasher...
  8. tarnalberry
    why now? well, you can't know that it's *now*. you know that now you're experiencing symptoms, but damage to your intestines may have been occurring for anything length of time. why not always? because celiac is a genetic condition that appears to often require a trigger to activate the expression of the genes that produce the autoimmune antibodies...
  9. tarnalberry
    alcohol, if nothing is added after distillation, is gluten free due to the distillation process. of course, if it's made from corn or another grain that doesn't contain gluten, it was gluten free to begin with. if you're soy intolerant, however, you can't have soy sauce (or tamari) either.
  10. tarnalberry
    because compliance rates on the diet are notoriously hideously low, and the insurance companies have absolutely no way of tracking how well you are staying on the diet, unless you hit them with large bills. well, they haven't come up with a way, yet, but I bet they could if they got creative.
  11. tarnalberry
    I suspect that the sleep study is unlikely to find anything terribly remarkable - maybe something slight, but nothing big. My husband hasn't noticed anything obvious (and I've asked him to look) despite the fact that he often comes to bed at a later time than I do, and I'm 'fast' asleep when he comes into the bedroom. But not everything is noticeable by...
  12. tarnalberry
    I know no one here would intentionally be a meanie-head (five-year-old-speak intended ), and I do appreciate the information. It's in the back drawers of my head. I've tried the LOD before - years ago, for vulvar vestibulitis. It didn't make any difference for me for that. I'm probably not going to try it any time soon, as inflammation isn't one...
  13. tarnalberry
    I am, at this time, satisfied with the level of testing I have had done for lyme which has come back negative. I will keep what I've learned in the back of my head, but I don't feel like the possibility has been ignored either.
  14. tarnalberry
    oh, goodness that gave me a smile! I thought that you thought that I was angry about a post on here, when I totally didn't catch any American/English usage. (Which is funny, because I sometimes use British slang for swearing, though I've spent all of 10 days in the country. Guess I watch too much BBC. ) And these sorts of miscommunications just make...
  15. tarnalberry
    ugh, I'm sorry. I was aiming for stressed-in-my-own-life, not pissed off (because I'm not pissed off). I tend to talk quite quickly, and string long sentences together, so if you haven't heard me speak face-to-face it might be very easy to read it as something other than the way I mean it when it's written out just the way I speak it. sorry.
  16. tarnalberry
    no, I was referring to decreased serotonin levels, increased levels of substance P, alpha-delta sleep disturbances, and - apparently - decreased dopamine levels and decreased ATP supplies in the muscle fibers.
  17. tarnalberry
    Ugh... I am of two minds of posting this. So, when I come to report back that my appointment went well, the doc took a full history, went over the almost entirely complete set of lab work my GP had run, and did a few manual exams during the appointment to come to the conclusion that I do, in fact, have a budding case of fibro, I don't really want to...
  18. tarnalberry
    overactivation of the sympathetic nervous system - as is common due to the stressors of our daily life that aren't the stressors our ancient ancestors had to face - I've read to be though of as one possible reason for lower levels of serotonin. (I'm not sure of the full chemical link from increased cortisol levels, but iirc, it starts there.) goodness knows...
  19. tarnalberry
    may I suggest that starting to do *all* those things is horridly HARD! start by doing *ONE* of those things. Just One. then, after you have that one down, and making progress, for something like two months, add in another. he can work on the nagging too, for that one. but keep talking. perhaps that's the first thing - you guys work with a counselor...
  20. tarnalberry
    No, lectins don't cause me an increase in pain. Pain isn't my major symptom - fatigue is the larger problem. Yes, I have the tender points. No, this isn't something that 'went away' after going gluten free - it came on four years *AFTER* remaining gluten free. I've had fewer colds/flus/infectious diseases recently, and have better fought off what I've...
  21. tarnalberry
    Depending on the field that you're in, and the company/organization you work for, I'd consider talking to your hiring manager - that executive director, or another person you work for that you trust that you have a rapore with. I know it sounds daunting, and there's no guarantee it'll solve things instantly, but part of this is something you have to work...
  22. tarnalberry
    but there are biological findings consistent with fibro patients (that are not found in the 'normal' population), which - to the best of my knowledge - is not the case for conditions like IBS. there are some things in the world that we don't know the real root cause of - like gravity - that we don't suspect are any less foundational because of it.
  23. tarnalberry
    I'm not of the belief that fibro is a 'wastebasket' dx. If it is, then depression should be too, and I don't think that is either. That's not to say that there aren't misdiagnoses, but I do think it's real, given the biologic bases they've found.
  24. tarnalberry
    Rachel, the quotes you have about lyme, cfs, and fibro being indistinguishable are interesting, because I came across a couple of websites with differential diagnosis criteria that specifically listed distinguishing characteristics. But, of course, it's an odds game, and there's a great deal of overlap. I think you know that I don't quite believe the...
  25. tarnalberry
    honestly, I think my body would do *worse* on THREE MONTHS of antibiotics. *SHUDDER*
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