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tarnalberry

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Everything posted by tarnalberry

  1. tarnalberry
    Not, biochemically speaking, true. A person may not notice the symptoms - either because they don't develop any outward symptoms or because they are mild enough to write off as something else - but celiac disease is a chemical reaction, and the presence of gluten is what starts it, regardless of the amount, and the destruction of the intestinal villi is...
  2. tarnalberry
    The NIH Consensus on Celiac Disease may be just the paperwork your doctor will listen to: Open Original Shared Link
  3. tarnalberry
    I'm sorry that she's got to deal with both, but glad that she was dx'ed young, and didn't have to suffer from it for a long time before finding out. Be patient with yourself coming to understand the disease. It's a lot to learn and will take some time to come to a satisfactory knowledge of it. One thing that can help, in thinking about the contamination...
  4. tarnalberry
    I believe Enterolab usually includes an interpretation of the results with the numeric values, so you may want to check there. Technically, Enterolab never dx'es celiac disease itself, because that "traditionally" requires a biopsy (though *some* docs will take a blood test). But what you're seeing there shows that you have higher than acceptable levels...
  5. tarnalberry
    Nope, can't have the turkey if it's been stuffed with gluten-filled stuff, and the same goes with the juice from it. Technically, it's safer to make the stuffing outside of the turkey anyway, and then just make the gravy with a gluten-free flour. I've done all of Thanksgiving dinner (including desserts) gluten-free for the past two years for the family...
  6. tarnalberry
    Ginger (with honey is my preference) can help. So can Coke - sometimes you can find Coke syrup on its own for that purpose at a pharmacy.
  7. tarnalberry
    Food for Life makes a gluten-free flour tortilla (it's made from rice flour), but it's not quite like a "wheat-based" flour tortilla.
  8. tarnalberry
    I haven't seen any good scientific evidence of that, except for the studies done on the rare (and I do mean *rare*) cases of enteropathy caused by casein. Do you have any scientific studies to back up that idea? (I'm curious to read them.)
  9. tarnalberry
    I don't know if oatmeal (my husband's) is considered species specific for conures, but man does my bird love the stuff. ;-) Not only is it important to supplement with fresh food (when I board him, I send a baggie of pellets, and a baggie of nuts/dried fruit/dried veggies), but it's socially important to get some time in with the pet and food's a good way...
  10. tarnalberry
    Much like the use of wheat starch, it's a question of "did you really separate the protein?". I won't use whey, myself, as the contamination question concerns me too much, but if you're not reacting to it, that may be the answer for you.
  11. tarnalberry
    It's unfortunate that, in updating formularies and the costs associated with different medications, insurance companies assume that generics are equivalent to brand name. They're not. They can often be used as substitutions, but there are sometimes differences in inert ingredients that can cause a person to react badly to the medication. Generic albuterol...
  12. tarnalberry
    Now, I understand that many of you never feel well...so how do you cope with your jobs every day? How do you eat during your lunch break? Is celiac disease really affecting your job performance? As long as I don't get gluten, it doesn't affect my job. I sit in front of a computer most of the day, or attend or lead meetings. But I also was never...
  13. tarnalberry
    Rice vinegar (that doesn't have added ingredients) is safe. (Most seasoned ones are safe too.) Sushi is not universally OK, a lot of varieties of sushi have a sauce in them - particulalry things like eel. And, as you noted, imitation crab is right out. If there's a sauce in it (and mayonaise based sauces are also popular and I don't know what all they...
  14. tarnalberry
    Good luck! I hope it's not serious.
  15. tarnalberry
    If you're actually repeatedly getting sick (infection-wise), you might try an infectious disease specialist, or someone who specializes in immune system issues.
  16. tarnalberry
    Yes. It's genetic, so all first-degree relatives should be tested. Second-degree... it's their call...
  17. tarnalberry
    Blood testing is unreliable under the age of two years. Perhaps he can be retested in ten months or so. She could also try him on the gluten-free diet to see empirically how he does.
  18. tarnalberry
    Authentic Foods also makes a powdered gluten-free vanilla that can be quite useful for recipes that aren't baked that you don't want the alcohol taste in.
  19. tarnalberry
    If the casein antibodies are caused by a leaky gut caused by the celiac, then perhaps after a number of month off of both of them, your system could tolerate casein again. But, yes, for at least a few months (I'd start with 6), you do need to go casein free. There aren't any supplements that will reliably digest all of the casein you could consume, so I...
  20. tarnalberry
    I pretty much agree... doctors are what you make of them and what you tolerate out of them. You get rid of the bad ones, and spend a lot of effort trying to find the good ones. Sometimes, this can be pretty intimidating, but you push through that until you find one you can work with. (And just because a doctor is right for a friend, doesn't mean he/she...
  21. tarnalberry
    You definitely can't make any generalizations about types of foods. You need to read the labels, and call companies on any questionable ingredients.
  22. tarnalberry
    It is such a tough balance to try to reach. I hope you get your results soon so you can move past this stage of uncertainty.
  23. tarnalberry
    Sounds like they're really willing to work with you. Good luck! :-)
  24. tarnalberry
    My bird's food (primarily a specially formulated pellet) has wheat in it, but birds can do grains just fine. Interestingly enough, there is a WIDE variation in the fat and protein needs of various species of pet birds, and a few avian food manufacturers have been catching on over the years and building species specific foods. (Lories, of course, subsist...
  25. tarnalberry
    I agree; he shouldn't just learn to live with it - he needs to work with a doctor to find out what the problem was. (A friend had something similar, and it turns out it was hypoglycemia. I know there are a number of VERY different conditions that can cause this.)
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