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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Reading Books Or Watching Movies
tarnalberry replied to SharonF's topic in Coping with Celiac Disease
Not too much, but I do wonder - so, do any of these actors have food intolerances or something like that so what we *think* they're eating isn't *really* what they're eating? (Like a vegetarian actor looking like they're eating a hamburger, with a cleverly disguised veggie patty in the bun. Or a wheat allergic actor with a non-wheat bun!) -
ARCHIVED Can't Do The Biopsy
tarnalberry replied to Bonnie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The dietary challenge IS a test, so you already have done additional testing. It is a VALID test, so the question is if it's *enough* testing for you. I didn't go with a biopsy, and even had inconclusive blood results, but decided the dietary results were enough for me. -
ARCHIVED Gf Brands, Mainstream Products, Or Pure Foods?
tarnalberry replied to quantumsugar's topic in Coping with Celiac Disease
The VAST majority of what I eat is naturally gluten-free stuff, not packaged products (hence, no brands). But, because I cook, I don't find it too limiting. Or, if I'm finding it limiting, it just means it's time to go pick up a new cookbook or a new recipe or two. You can make almost anything you want - what are you finding your limitations to be and... -
ARCHIVED Tea, Health And Celiac
tarnalberry replied to AmandaD's topic in Gluten-Free Foods, Products, Shopping & Medications
Yep, they are healthy. White, green, and black teas are all made from the same plant; the difference lies in the processing. White is processed the least, and includes some of the flower buds from the plant, green is dried, and black is cured before drying. Hence, black tea has the fewest antioxidants of the three, but still has quite a lot. An interesting... -
The first step here should be a letter from your doctor. The second should involve a lawyer. I realize it's a family thing, but they need to understand that in a company that size, they have legal obligations regardless of family status.
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ARCHIVED Till I'm Blue In The Face!
tarnalberry replied to Nicolette's topic in Coping with Celiac Disease
If someone told you that something you do every day, something you take for granted, something that is a very normal part of your world, will kill them if they ever have it again, you might find it hard to believe too. You don't, in this case, because you have some experience with what happens to you if you eat wheat, but it is a non-trivial concept for... -
ARCHIVED Products For A Gluten Free Kitchen?
tarnalberry replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
1. What kind of frying pans do people recommend? I had a Calphalon that got scratched and my hubby cooked pot stickers in it, washed it and i still got some gluten in me. I bought a new Cuisinart stainless steel one. What does everyone recommend? I use a Calphalon hard anodized 12" skillet most of the time. I don't like using non-stick surfaces. The LA... -
ARCHIVED Is It Hard To Be Gf And Vegetarian?
tarnalberry replied to frenchiemama's topic in Related Issues & Disorders
In practice, I usually have meat every day - in with my dinner. Sometimes that will translate into leftovers for lunch, depending on if there are leftovers. But meat usually doesn't make the main portion of my meal - it's the shrimp in a stir-fry full of vegetables, or the ground turkey in a chili full of beans and tomatoes, the beef in a stew full of other... -
ARCHIVED Imitation Crab
tarnalberry replied to bluelotus's topic in Gluten-Free Foods, Products, Shopping & Medications
I've used canned crab meat just fine in sushi. Real crab has a lighter taste, so it is a bit different, but I actually prefer it, not to mention I've *never* found a gluten-free imitation crab. -
ARCHIVED Buckwheat Flour
tarnalberry replied to NepalFreak's topic in Gluten-Free Foods, Products, Shopping & Medications
Pure buckwheat flour (not in a mix with other flours that do contain gluten) is safe. (Technically, buckwheat is a fruit.) -
ARCHIVED I Am So Confused!
tarnalberry replied to glutenfreeheather's topic in Gluten-Free Foods, Products, Shopping & Medications
In the US, if it says "vinegar" on the label, it is distilled vinegar. -
CoQ10 is supposed to be helpful for energy. I'm taking it - on the recommendation of my doctor - as a migraine preventative, but think it's made an energy difference as well. (I take it along with my regular calcium/magnesium/vitD, B-50, and multi.)
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ARCHIVED Bard's Beer
tarnalberry replied to Diosa's topic in Gluten-Free Foods, Products, Shopping & Medications
No kidding on the dangerous exploding glass! (I posted a story about my experience with it last month. As of yesterday, I was still finding glass around the apartment! (The piece in the bed covers worried me most - and no, the beer never went in the bedroom.) I tried drinking the last bottle I had at my house cooling party (after wrapping it in towels... -
ARCHIVED Is It Hard To Be Gf And Vegetarian?
tarnalberry replied to frenchiemama's topic in Related Issues & Disorders
Depends on what your other food issues are. I've thought about going vegetarian, but I can't have dairy at all and don't deal well with soy every day. Add to that the fact that I get hypoglycemic tendencies and need about 30% of my calories to be from protein (I think if I ate nothing but lentils and high-protein beans, I'd get enough protein), and that... -
ARCHIVED Blood Test Or Gluten Free Diet To Test?
tarnalberry replied to aberglund's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think that, while it may be unpleasant, a single blood draw shouldn't be a huge problem for a 5 year old. Getting that test *can* be helpful, and you can try the elimination diet after the blood test regardless of the results. It will be easier for your doctors (her doctors) to take you more seriously. The tests do have false negatives, but they're not... -
ARCHIVED Rating Recipes & Products
tarnalberry replied to brian26's topic in Gluten-Free Recipes & Cooking Tips
It's kinda funny... if you read over the posts about things here, you'll see that there isn't always a consensus on things. A lot of people like one thing, but a good number of people won't like the same item, so - unfortunately - you're stuck with a fair amount of trying things sometimes. But I don't know of a place (other than randomly here) to do that... -
ARCHIVED Emergency Kits
tarnalberry replied to FaithInScienceToo's topic in Gluten-Free Foods, Products, Shopping & Medications
I didn't see it mentioned, but don't forget flashlights and a battery powered radio to be able to hear the important news warnings. :-) -
ARCHIVED Ttg Iga Vs Ttg Igg Results?
tarnalberry replied to rgeelan's topic in Parents, Friends and Loved Ones of Celiacs
The problem with that theory is that an intolerance could be an early sign of celiac, before sufficient damage has been done to the intestines to show up as "celiac". So cheating, even if it's "just an intolerance" at this point, could lead to larger problems in the future. Perhaps keep her gluten-free until after the move, and then try the challenge later... -
ARCHIVED Should I Be Doing More To Help My Son?
tarnalberry replied to krisb's topic in Parents, Friends and Loved Ones of Celiacs
If he's iron-deficient anemic, then a multi-vit with iron is a good idea, or making sure he drinks orange juice or something else with vit C with meat or eggs. He shouldn't need flouride in his multi-vit, particularly if you live in an area where your water is flouridated, so I wouldn't worry about that. There are a lot of vitamins (without colors and additives... -
ARCHIVED Sore Tongue, Thirst, Loss Of Bladder/bowel Functio
tarnalberry replied to lorka150's topic in Coping with Celiac Disease
Between the urinary and bowel urgency, I might suggest talking to your doctor about pelvic floor issues. Pelvic floor exercises help many women with bowel incontinence, as well as the urinary incontinence. (It's the same muscle that runs along the urethra and anus, but different sections of it can be weaker, so you don't always get both incontinences, but... -
ARCHIVED Explaining Gf As Lifestyle Choice.
tarnalberry replied to dogear's topic in Parents, Friends and Loved Ones of Celiacs
Some of us do not have "formal" diagnoses, but we know that gluten-free makes us feel better. If your body has told you that it works better without gluten, you're doing the right thing listening to it! The physical reaction and your quality of life is a valid diagnostic test in determining whether or not you're gluten intolerant. And there is growing... -
ARCHIVED Potato Chips
tarnalberry replied to bluelotus's topic in Gluten-Free Foods, Products, Shopping & Medications
Not me, on the regular ones, anyway, but it does seem that almost every flavored chip I want to try has whey in it! ;-) I enjoy the Natural Ruffles, though I'm not a big potato chip fan, and they are fairly salty. -
ARCHIVED Gluten Ataxia (only)?
tarnalberry replied to tiredofdoctors's topic in Related Issues & Disorders
Regardless of the tTg, EMA, and biopsy results, the fact that you have elevated anti-gliandin antibodies means that your body is immunologically reacting to gluten, so the right thing to do is maintain a gluten free diet. If the damage wasn't severe enough (some doctors require completely flattened villi, not merely damaged) or if enough samples were not... -
ARCHIVED Pots And Pans
tarnalberry replied to scottsuzann's topic in Gluten-Free Recipes & Cooking Tips
Lol! You haven't seen my crappy non-stick pan! ;-) Next to impossible to verify everything's out of those scratches. But I'd agree that items that are in good shape shouldn't be a problem. -
ARCHIVED Drug For Celiac/type 1 Dia. Being Tested On Humans
tarnalberry replied to celiac3270's topic in Related Issues & Disorders
They're still pretty early in this. I'd expect a minimum of another five years of testing, perhaps 10 before it reaches market. They're only testing safety right now, so we won't get any numbers on effectiveness until the next set of testing that's done.