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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Newbie To Cd
tarnalberry replied to spokethewind's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's hard to adapt to, but once you learn it, it doesn't have to be hard to live with. A lot of "how hard it is" depends on your attitude towards food, your restriction with food, people (both rude and ignorant). If you don't have a kitchen (or at least *something* to cook on/with, it will be harder, but there are ways around that too. I prefer to... -
ARCHIVED Asian Food Marts/foods, Band-aids, Hot Dogs
tarnalberry replied to lorka150's topic in Gluten-Free Foods, Products, Shopping & Medications
As far as those go, depends on what the ingredients in the noodles were. I find that asian markets - like american markets - are not "generally okay". It all depends on the ingredients and sometimes it's just harder to read them in asian markets. -
ARCHIVED I Am So Bummed!
tarnalberry replied to Billygoat's topic in Gluten-Free Foods, Products, Shopping & Medications
Yeah, it's a tough niche to stay afloat in. I'm sorry they closed, that really sucks. :-( -
ARCHIVED What Would You Eat?
tarnalberry replied to floridanative's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
sourdough with olive oil and balsamico. mmmm.... yeah! pain au chocolat (chocolate croissante, really) rosemary foccacia -
ARCHIVED Chinese Buffets (thai And Indian Food Too)
tarnalberry replied to a topic in Gluten-Free Restaurants
It absolutely, totally depends on the restaurant. Even the egg drop soup may not be safe. (The chinese restaurant where I used to live used broth that had gluten - I found out the hard way.) You have to ask them about the ingredients in all of their dishes - any of those could contain gluten. -
ARCHIVED How Important Is Full Celiac Panel Blood Test?
tarnalberry replied to floridanative's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Standard protocol is blood work first (full panel) and then biopsy. The biopsy is currently considered the gold standard, though that may change. Frankly, I'd probably do both at the same time, but I don't know if your doctor would go with that. -
ARCHIVED Has Anyone Experienced This?
tarnalberry replied to Danijela's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yep, unless I've been eating well balanced meals for at least a few days, I don't get hungry, I get nauseous and headachey - that's when I know I need food. You may just need to keep your meals more balanced, and may just need to eat every few hours. -
ARCHIVED Blue Ice
tarnalberry replied to elonwy's topic in Gluten-Free Foods, Products, Shopping & Medications
Whoohoo! Congrats on the find! :-) -
If I get glutened and get constipation, my hemmroids (yeah, I'm 26 and have 'em... blah!) get aggrivated and there can be bright red blood *on* the surface of the stool when having a bowel movement. If there is blood *in* the stool, particularly if it's dark, see your doctor immediately.
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You sound stressed, with good reason. I second the thought that your daughter may find benefit from the gluten-free diet as well, particularly by following a diet of naturally gluten-free foods and maintaining as healthy of a diet as possible. You don't have to be a master chef to cook healthy, gluten-free meals, but it takes some time to learn it if you...
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it's not inappropriate to just sit there, because the food will make you ill and will damage your intestines. but you can also bring your own food, and ask your hosts if they have any fresh fruit or something that is safe for you to eat.
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ARCHIVED Someone Did Something Nice For Me Today.
tarnalberry replied to frenchiemama's topic in Coping with Celiac Disease
That's very nice! Congrats to her for being thoughtful! -
ARCHIVED Soy Sauce?!
tarnalberry replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
La Choy is gluten-free, but it also tastes pretty bad. San-J makes a wheat-free tamari that can be tough to find, but is very good. -
ARCHIVED Interested In Knowing How Long...
tarnalberry replied to AmandaD's topic in Coping with Celiac Disease
"Formally" is a loose term in my case, but it's been just over two years now. -
ARCHIVED Does Anyone Avoid Dairy/casein Just Because?
tarnalberry replied to lorka150's topic in Related Issues & Disorders
I avoid it because I think I reacted badly when I did an elimination diet - no medically ordered diagnostic tests. I'll test it again in the future, so I sort of eliminate it just because, sort of because I have to. -
All you really need is a regular oven, but a pizza stone makes a huge difference (it affects the way the pizza is cooked from the bottom, allowing more air (as the stone is porous) to get to the bottom of the crust) and a high heat is a must.
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ARCHIVED Breakfast Bars/ Energy Bars
tarnalberry replied to tstarbrat's topic in Gluten-Free Recipes & Cooking Tips
Yeah, that raw brownie isn't really breakfast material. :-) You can use quinoa flakes instead of oatmeal, but it will change the taste a bit. It's probably the easiest place to start. You can also make bars out of things including flax meal, rice bran, and hemp seeds for added protein. -
ARCHIVED Help W/ Gluten Challenge - Biggest Bang For Buck?
tarnalberry replied to trimummy of 2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"vital wheat gluten" (just labeled that for the bread makers) is the most concentrated form of the wheat protein you can get, and yes, it'll work, and yes, it'll taste NASTY. That's what I did - mixed it in yogurt (which I don't recommend, as it can confuse the issue if you're casein intolerant). the problem comes in when you consider that it's uncooked... -
ARCHIVED Extreme Hunger....
tarnalberry replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yep, classic hypoglycemia problems. You won't necessarily show up odd on a blood sugar test, but may still have the functional problems associated with your blood sugar changing too quickly. A "quick snack of sugar" is NOT the answer, as it will just continue the pendulum swinging. A small amount of carbs is important, but fat and protein to moderate the... -
ARCHIVED Trip To Dietician (rant & Long)
tarnalberry replied to bluesky8130's topic in Coping with Celiac Disease
Wow! I know people should be given credit for trying, but... man... that takes the cake! -
ARCHIVED To Add To My List Of Problems...
tarnalberry replied to bellybattle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sounds like the bug that was going around where I was and got my asthma going. Seriously, "tightness in my chest and a bit of a dizzy feeling" is how I usually feel if my asthma is acting up. Well, add spontaneous coughing to the list, at least. If you feel it's something serious, go it, but it also sounds like just a bit of a cold/congestion thing going... -
ARCHIVED Casein Intolerance...
tarnalberry replied to Rachel--24's topic in Related Issues & Disorders
On the "gluten like reaction" from casein question: If you check out pubmed, you'll find that it IS possible to have enteropathy (villi destruction) from casein proteins, but it is actually VERY rare. (As in, handful of reported cases ever, not the <1% of the population sense.) -
You adapt around these problems. Eating out may be a boring meal of a plain baked potato, but you enjoy the company. Dining at a friend's place may be bringing your own stuff, but you enjoy the experience. Hosting at your own place needn't present any concern at all, so I'm curious where those glutening problems has come from. The way in which you enjoy...
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ARCHIVED Wheat Free
tarnalberry replied to prince caspian's topic in Gluten-Free Foods, Products, Shopping & Medications
There are things that aren't labeled gluten-free that are - and some of those might not really be due to cross contamination. Basically, it's wheat, barley, rye, and oats that you are avoiding. The protein in these grains triggers an autoimmune reaction in your gut, and that's a bad thing. Take a look at the celiac.com safe/unsafe ingredient list - it... -
ARCHIVED Gluten-free Lifestyle And Marriage
tarnalberry replied to tammy's topic in Coping with Celiac Disease
It's tough - particularly if he's going to take it personally. The most important thing to do in those situations is to make sure that he is explicitly told that you appreciate the thought he put into it. That you know, love, and cherish the intent behind the gift. Other than that, he's definitely giving it a good shot - willing to call the company, asking...