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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Gf Grains Besides Rice
tarnalberry replied to BRCoats's topic in Gluten-Free Foods, Products, Shopping & Medications
I've heard one or two people on all the message boards I'm on worry about Bob's Red Mill, but not most. Things made in their gluten-free facility are marked with their gluten free symbol and regularly tested. I've never reacted to their stuff, and know a bunch of people who haven't. (Their corn products are NOT manufactured in their gluten-free facility... -
ARCHIVED Help For Low Cholesterol
tarnalberry replied to emeraldskies's topic in Related Issues & Disorders
You may want to talk to your doctors - or a new doctor - again. I'm on supplemental testosterone (has to be compounded, 1mg/day), and it definitely makes a difference. Despite the recent articles that say that supplementing testosterone for women doesn't make a difference, that's not true for all women (even in the studies the articles with those headlines... -
Since you seem to have internet access, I'd look for a restaurant card that you can use to help you. The same rules apply - stick to the simplest things possible (steamed vegetables, rather than ones in a sauce, for instance). Also, if you have *any* friends/aquaintances/hotel-staff that speak english, see if they can help you write something down. *something...
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It can also be from vit B, as I recall my doctor mentioning. And iron. And some people bruise more easily than others - and it can vary from person to person. I ended up getting tested for von Willebrands disease, because it runs in the family, with my bruising, but hey, I'm also a klutz! If you've got good insurance, it could be sign enough to get your...
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ARCHIVED Iron
tarnalberry replied to scaredparent's topic in Parents, Friends and Loved Ones of Celiacs
My allergist warned me that those tests aren't reliable (in that they won't say that you're iron-deficient until you're *rather* iron deficient), so you may also want to talk to your doctor about better monitoring if you think you need to. -
ARCHIVED National Celiac Conference In Toronto
tarnalberry replied to Carriefaith's topic in Introduce Yourself / Share Stuff
cool! thanks for keeping us informed! -
ARCHIVED Want To Understand My Mom
tarnalberry replied to criosa's topic in Parents, Friends and Loved Ones of Celiacs
I know it can be annoying when someone starts on the crusade for any medical condition - or anything really. In this case, though, the easiest way to get her to not bug you about it too personally is the safest thing for you to do for your health - get tested. The disease is genetic, she's your mom... you know the rest. When she continues to harp on... -
ARCHIVED Absolutely Everything I Wanted To Know About Cd...
tarnalberry replied to a topic in Publications & Publicity
They'll do that for some gluten challenges, instead of 3 months eating gluten. I don't know... sounds painful, but not as painful as 3 months of gluten! ;-) -
ARCHIVED How Do You Stay Gf In College?
tarnalberry replied to wildkitty's topic in Introduce Yourself / Share Stuff
If the school you're thinking of attending has a celiac student, or recent celiac alum, you might see if you can get some contact information and talk to the student/alum to get a first had example of their experience - like pogirl's. -
ARCHIVED Advice Needed
tarnalberry replied to NewYrsBB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just backing up what Katie said, and adding that the test of trying the diet is a test in and of itself. If you get that other 10% out of your diet, feel better, and four weeks later try one meal with plenty of gluten, that is a very valuable test as well - without having to do it for 3 months. *Some* doctors will take that as evidence, but not many. -
ARCHIVED Corn Tortillas
tarnalberry replied to bklyn's topic in Gluten-Free Foods, Products, Shopping & Medications
I use either the ones from Trader Joe's or the ones from Wild Oats. -
ARCHIVED Thai Kitchen
tarnalberry replied to Carriefaith's topic in Gluten-Free Foods, Products, Shopping & Medications
Yep, it's gluten-free, but you may either be sensitive to coconut, or the xanthum gum that's used in it. -
You could certainly be sensitive to other grains. I would try making something simple out of a single grain to try to work through the options. (Pancakes or tortillas work fairly well for this for most flours though taste may not be optimal.) Just make the exact same recipe, the same way, with differing flours, and see how you respond. Alternatively,...
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ARCHIVED Robbie Update
tarnalberry replied to robbiesmom's topic in Parents, Friends and Loved Ones of Celiacs
I'm glad to hear he came through it well! I hope the week passes quickly, and the results are good. -
ARCHIVED What Are The Symptons Of Dairy Problems?
tarnalberry replied to VydorScope's topic in Related Issues & Disorders
Bloating, gas, stomach pain, and the like are all symptoms of problems with dairy. It's important to figure out - as was mentioned - if it's lactose or casein. The easiest way is to first try having a glass of milk (nothing else that morning) and take Lactaid immediately before drinking it (or use Lactaid milk). If that *does* cause symptoms, try eliminating... -
ARCHIVED Food Shelf-life
tarnalberry replied to lipreader's topic in Gluten-Free Foods, Products, Shopping & Medications
Dry goods stay fine on the shelf about the same length of time (pastas and the like). Cookies and crackers vary depending on the ingredients, but they'll probably go stale (like regular ones) after six or eight weeks being open. Bread tends to not last as long - I'm lucky to get two weeks out of a refrigerated loaf of Food for Life! ;-) -
ARCHIVED Iron
tarnalberry replied to scaredparent's topic in Parents, Friends and Loved Ones of Celiacs
My iron's been fine the whole time - we're all different. I take a multi that does have iron in it, but nothing more than that. Is he eating plenty of meat/eggs/milk? Have you tried giving him something high in vit C to go along with whatever he's having that's high in iron? It helps the body absorb the iron. -
ARCHIVED An Update
tarnalberry replied to e&j0304's topic in Parents, Friends and Loved Ones of Celiacs
Congrats!! That's fabulous! -
ARCHIVED Boyfriend/ Fiance With Celiac
tarnalberry replied to fuzzelfluff-04's topic in Parents, Friends and Loved Ones of Celiacs
Try telling him that not getting tested won't alter "the answer". The answer exists right now. He is or isn't celiac. It's not that once he gets tested he will or won't be - he is or isn't *right now*. Getting tested will only let him know what the truth is. (It's like not looking outside because you're afraid it's raining and you have plans. It either... -
ARCHIVED Is It True Or Not?
tarnalberry replied to scaredparent's topic in Parents, Friends and Loved Ones of Celiacs
Of course there's such a thing as the anti-endomyosial antibody test (EMA), but if it was misspelled, they may have been confused. The anti-gliandin IgA and IgG tests are separate, as is the total IgA test and the tissure trans-glutimerase (tTg) test. There is also an anti-reticulin IgA and IgG, but it is not used nearly as often these days. While it... -
ARCHIVED New,positive Biopsy Lots Of Dammage
tarnalberry replied to Gcbec's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the board, though I'm sorry you went through so much getting here. As for the diet - start at the easy places, but start now. Until you get a handle on what you can and can't have in the processed food world, stick with naturally gluten free whole foods. Whole fruits and vegetables are gluten free. Fresh, unprocessed meats are fine (though... -
You mention hypoglycemia - rice and fruit can be problematic with hypoglycemia since they release into the blood stream so easily. You may be fighting blood sugar issues (which can definitely make you tired). Try looking into lower glycemic load foods (don't have to have fewer carbs, just more slowly digested ones, and balanced better with fat/protein at...
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ARCHIVED Where Do I Go For Help Staying On The Gf
tarnalberry replied to a topic in Coping with Celiac Disease
What are the problems you're having staying on the diet? Do you cave into the temptation for things you don't have substitutes for? Do you have trouble finding anything to eat? Do you feel pressure to "have just a little"? It is vital to stay on the diet, so you might start by figuring out WHY you are having trouble sticking with it. -
ARCHIVED As Promised, A Few Recipes
tarnalberry replied to tarnalberry's topic in Gluten-Free Recipes & Cooking Tips
Kept in the fridge, and covered, they'd probably last two or three weeks at the least, and a few months at the most. (Most of my dressings are rather heavy on the vinegar, which keeps things from growing. ;-) ) -
I definitely avoid going out for ice cream. Oh wait... that's the dairy intolerance. ;-) I'd definitely ask them to wash the scooper in clean water, but you may find that it's already been contaminated and you might have to go for soft-serve type ice creams or frozen yogurt.