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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Greetings From Scotland
tarnalberry replied to Evonneda's topic in Coping with Celiac Disease
There's nothing for it but to practice the willpower. Of course, I would encourage you to get rid of non-gluten-free items in your household if at all possible to reduce your tempation. You know the risks, so I would also encourage you to figure out why you mentally allow yourself to poison yourself. (We all do self-destructive things, the question is why... -
ARCHIVED My Daughter And I Are Looking For Help!
tarnalberry replied to bonjovigirl's topic in Parents, Friends and Loved Ones of Celiacs
If she is allergic to wheat, and not gluten intolerant, you can use oat flour to replace wheat flour in a lot of baking items, which can be a big help. Commercial breads are unlikely to provide what you need, and as richard pointed out, gluten-free breads aren't all that great so some of us just don't eat them. It will take some time learning to read... -
ARCHIVED Going Gf Without Diagnosis
tarnalberry replied to lorka150's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As evidence from my sig line, I'm sorta self-diagnosed. I asked my doc to run the tests (seemingly out of the blue, I'd imagine she'd say), and the results were inconclusive, though I had been gluten-free for two weeks. I did a challenge - I ate a hearty serving of gluten - and it made me feel crappy. There was my test. I've been gluten-free since, and... -
ARCHIVED Safe Liquids
tarnalberry replied to swittenauer's topic in Gluten-Free Foods, Products, Shopping & Medications
Be careful of the TJ's broths - some are fine, but not all are gluten-free. (I think it's the organic chicken that's not, but it might be the veggie.) All you have to do, though, is check the label. It specifically says "barley" on it. (I got caught on this one - bought the wrong one. Good thing I read the label before I poured it in the pot!) -
Many people are tempted to cheat. And according to the statistics, a lot of them do. But according to the posts on here, not - for the most part - the members here. And that may be because we know all too well the ramifications of cheating. Even monthly cheating will increase your risk for complications from nutritional deficiencies (anemia, osteoporosis...
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ARCHIVED Daughter Just Diagnosed - What Next?
tarnalberry replied to CeliacMom's topic in Parents, Friends and Loved Ones of Celiacs
Welcome to the board! I don't have kids, so I can't help on that first question, but I'm sure that others can. As for the other kid, it depends on how gluten-free you're taking the whole household. It'll take some time, but it can be just another part of their lives. Yep - everyone should be tested, and you can't really outgrow it. She may develop... -
ARCHIVED Premier Japan Ginger Tamari
tarnalberry replied to jkmunchkin's topic in Gluten-Free Foods, Products, Shopping & Medications
San-J's wheat free tamari is some high quality tamari, let me tell ya! Oh, I guess I just did. ;-) (it's late, I've turned silly...) seriously, it's quite good. La Choy on the other hand... ick. :-P -
ARCHIVED Glutano Products
tarnalberry replied to mandigirl1's topic in Gluten-Free Foods, Products, Shopping & Medications
They're a raw food bar, that's essentially just nuts, dates, and spices with other dried fruit - depending on the flavor. -
ARCHIVED Making Lattes And Chai At Home
tarnalberry replied to misskris's topic in Gluten-Free Recipes & Cooking Tips
I just buy chai tea - either in tea bags (you can get lots of varieties... green chai is my preference and a lot of tea companies make chai tea bags), or Oregon Chai's boxed stuff (they have an unsweetened version that's quite tasty and doesn't have much at all in the way of sugar). If you're cheap, I encourage trying the tea bags (of course, use at least... -
ARCHIVED Help - New And Feeling Awful
tarnalberry replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If you've got blood sugar problems, though, or are prone to them, it WILL hurt. Half a day eating like that, and I would feel soooo crappy. You're absolutely right though, not everyone responds that way. It's important to be aware of it, but if that many carbs doesn't cause a problem, it can be nice and easy on the stomach. -
ARCHIVED Rise Milk
tarnalberry replied to BamBam's topic in Gluten-Free Foods, Products, Shopping & Medications
Trader Joe's Rice Milk is fine. I also like Almond Breeze. Soy milk might also be an option. -
ARCHIVED Alcohol
tarnalberry replied to Mahee34's topic in Gluten-Free Foods, Products, Shopping & Medications
regular vodka (ciroq's my favorite), rumplemintz, and goldschlager are also gluten-free. :-) (me, the one with next to no tolerance, prefers the 100proof stuff... ;-) ) -
ARCHIVED Help - New And Feeling Awful
tarnalberry replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
give consideration to the fact you may be fighting off a bug as well. I would disagree with the rice, applesauce, bananas advice from a strict perspective - that could make you feel worse if it affects your blood sugar. it's a good place to start, but I would make sure to get fat and protein with that. (avocados are a good way to get fat and most people... -
ARCHIVED Safe Liquids
tarnalberry replied to swittenauer's topic in Gluten-Free Foods, Products, Shopping & Medications
Depends on the ingredients. :-) Imagine makes a chicken broth and veggie broth that are tasty, and gluten-free. Rapunzel makes a chicken boullion and veggie boullion that are good as well, and gluten-free. -
You can also get raw peanut butter. I think I've got a bit of a soy problem, but more of the sort of thing where I can't have it every day, but can once in a while.
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ARCHIVED Disappointing Visit With Ped. Gi
tarnalberry replied to e&j0304's topic in Parents, Friends and Loved Ones of Celiacs
I, too, would encourage you to keep looking for a doctor until you find one who will take you seriously and work WITH you, rather than AT you. -
ARCHIVED Gluten Awareness - How Did Europe Do It?
tarnalberry replied to Nevadan's topic in Coping with Celiac Disease
I think it's a combination of a number of things, including: * it was discovered in Ireland * public health care systems aren't dependent upon pharmaceutical company handouts/lecturing * Europeans generally eat a more natural diet (at least, until recently) than Americans -
ARCHIVED Glutano Products
tarnalberry replied to mandigirl1's topic in Gluten-Free Foods, Products, Shopping & Medications
I think, like anything, you've just got to try them. I tried the apple ones - they're ok. Nothing spectacular, but not awful. But, then again, I like Lara Bars. ;-) Sometimes, we've just got to try out these things (I know, I know... the cost gets expensive... that's why I don't try these things very often!) -
ARCHIVED Twilight Zone Of Cd
tarnalberry replied to debmidge's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I do know that they are working on gene therapies for similar conditions that would likely be applicable. But the question of reversing it is a tricky one. We'd have to have a therapy that would stop gene expression of a segment of our genetics that produces a particular molecule that starts the reaction that causes damage in the intestines. The understanding... -
ARCHIVED Delicious Crunchy Sweet Snack
tarnalberry replied to skbird's topic in Gluten-Free Foods, Products, Shopping & Medications
I saw those at a little restaurant the other day, but didn't try them. I'm surprised Costco had them, and I might just have to get ahold of someone I know with a Costco card! ;-) -
ARCHIVED Yosemite, Mariposa, Mammoth, Tahoe
tarnalberry replied to Emme999's topic in Traveling with Celiac Disease
Mammoth's got a sushi place near the movie theater's that has sushi that's safe (minus the soy sauce, of course). And they've got a regular grocery store and all that... -
Celiac disease cannot be cured, and I've seen no research evidence that suggests that it's the sort of autoimmune condition that can go into remission. But it's possible that he didn't have celiac disease, but, rather, tropical sprue, which is not-autoimmune based and somewhat different. (I think it's parasitic? Can't quite remember.)
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ARCHIVED Help - I'm New
tarnalberry replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the board! The spills/cross-contamination. Yeah, you have to be concerned, but it does get easier. If she spills cherrios on the sofa (and it's a fabric sofa) and you have any reason to believe that there could be crumbs left behind, then yes, you need to not touch the crumbs and then touch your hands to your mouth. But vaccuming up the crumbs... -
The list Laurie put up is one of the most helpful ones I've come across. I'd encourage you to keep a copy with you for a while until you've got the important ones memorized.
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ARCHIVED Apples Sprayed With Gluten
tarnalberry replied to Misa's topic in Gluten-Free Foods, Products, Shopping & Medications
Organic apples can also be waxed - provided the source of the polish is organic. You may want to check with the grocery store you visit to determine their policy.