Jump to content

tarnalberry

Advanced Members
 View Profile  See their activity

  • Posts

    8,591

  • Joined

  • Last visited

  • Days Won

    13

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by tarnalberry

  1. tarnalberry
    Don't discount the emotional/psychological effect that such a drastic change in diet could bring on as well. Hopefully, it'll pass soon! :-)
  2. tarnalberry
    He's been doing them for a while. And I'm really not trying to bad-mouth him in any way - it would not surprise me if, after he publishes his methods and others independently verify it - that his methodology is confirmed. It just has not been independently confirmed yet - that doesn't mean it's wrong. I come from an applied science background, which is...
  3. tarnalberry
    It's true that most people - and probably most celiacs - are not allergic to wheat. That's because an allergy is defined as being an IgE mediated response to a substance (and the subsequent histamine related symptoms). Celiac disease/gluten-intolerance is not IgE mediated, but rather through IgA and IgG. Some people are both, of course, but _technically...
  4. tarnalberry
    sorgum is a grain that is not considered to be a problem for celiacs, but is somewhat closely related to corn, so people with corn issues may not tolerate it well - it's hard to say without trying it. tapioca is, I believe, a starchy root. you can use those flours and potato starch for baking (though you may need other flours). It's definitely worth sitting...
  5. tarnalberry
    Here's the thing... the work Dr. Fine's doing and the work being done in Italy _sound_ like the same test, but as Dr. Fine has not yet published his methods (which I've heard he's working on), we can't know for sure that the lab methods themselves are similar - if they're not, the conclusion that Enterolab's results are accurate based on the Italian research...
  6. tarnalberry
    Well... _how_ high? I mean, if they've gone down 50%, maybe you're body is just slow at healing on this one. If they've gone down 10%, maybe it's time to have the GI dig really deep into those "other reasons" to have a higher IgG that I keep hearing about but have never heard anything _specific_ about...
  7. tarnalberry
    yep, like burdee said - your best bet is to call the manufacturer and find out if it's got gluten from any of the other "forbidden grains".
  8. tarnalberry
    I know what it's like to have a doctor like that - specialist in his field, well respected for his work in the field around the world. Sometimes, they only have so much in them, and they get worn out. I doubt I see the doc I drive down to San Diego to see (gyn specialist) for even 10 minutes, most of the time, but I know it helps him to remember his patients...
  9. tarnalberry
    There was a study a little while back about people not improving on a truely gluten-free diet (so no accidental exposure) often having SIBO (small intestine bacterial overgrowth). Perhaps that is the issue here?
  10. tarnalberry
    Just for a different route, my blood tests were inconclusive, but I did better on the diet, so my doc said "guess you better stick with gluten-free then". End of story, for me. A positive response to the diet IS a test as well.
  11. tarnalberry
    I don't remember the brands - there were a couple. I have not called the company, but there is no mention of ANYTHING but tuna, water, and salt (I like the salted version). You might just check the ingredients the next time you head out there. (I _think_ the one I get from Wild Oats is Nature's Value.)
  12. tarnalberry
    you can find some tuna that's really just packed in water - tuna, water, salt (or no salt) - and avoid the broth entirely. I've found it at whole foods and wild oats.
  13. tarnalberry
    Yeah, you'll get lots of sites that promote wheatgrass saying that it's perfectly safe for celiacs. Maybe in theory. The thing is, as a seed sprouts, the protein (glutens that bother us) are converted into energy and other compounds for the blade of grass. This is an asympototic process - the quantity of offending glutens approaches zero over time, but...
  14. tarnalberry
    I'm going to cover a wide range of things here, since I can't tell if you're avoiding soy, dairy, beans, veggies, and fruits as well. If you're uncertain about these items, I'd recommend finding the time and energy to do an elimination diet so you CAN figure out what you can and can't eat. (Note that different beans produce more gas than others - you just...
  15. tarnalberry
    I think the biggest thing is getting out the word to doctors that the gluten-free diet does NOT have to be "nearly impossible" to follow. I know doctors are often concerned about patient non-compliance on treatment, and so they may figure the rate of non-compliance will be so high, and even trying will make the patient so miserable, that it's not even worth...
  16. tarnalberry
    That's the funny thing about most of the gluten-free recipes I've seen for snack-type foods... Oodles of sugar and/or oodles of butter. Blech! (I'm not a huge splenda fan either - I can taste the difference between it and regular sugar (as determined by a blind taste test with a friend who didn't believe me).) Ha! Maybe that's the niche I need for putting...
  17. tarnalberry
    I think it pretty much entirely varies by individual, and no one can answer that question for you... I seem to have gotten a bit more sensitive, but was never terribly sensitive to begin with.
  18. tarnalberry
    yeah... I don't really use the word "diet" in that common way either. "Diet" simply means the way you eat, period. Not some special "program" for some goal. (Like a biology class discussing the diet of the blue-footed booby (my favorite animal from biology class).) I eat much that way anyway (the whole, unprocessed foods thing...), but don't stick to...
  19. tarnalberry
    Celestial Seasoning will put "gluten-free" in small print on the bottom of their gluten-free teas. (This is as of a year or two ago, so really old boxes might not have it.)
  20. tarnalberry
    There is a protein powder made from grains - quinoa, amaranth, rice, and so on, with a bunch of greens that appears to be Gluten-free Casein-free. It's alright tasting, with enough fruit in the smoothie you mix it with. ;-) I forget the name of it, but next time I'm at the store, I'll note it.
  21. tarnalberry
    I didn't mean to sound like I was pushing avoiding a biopsy in favor of a dietary challenge. While I think dietary challenges should be used (by the medical community) more often, I can completely understand that you would want to have a better idea of the quantification of damage that has occured and the medical "stamp of approved diagnosis" for dealing...
  22. tarnalberry
    I think the key is finding recipes/products that you are quite happy to serve as though they weren't gluten-free. I offer anyone/everyone the stuff I make, including my muffins (like the ones I made this weekend) and treat them as though they're just as good as anything else. I give them the warning that they may taste different than expected, but are still...
  23. tarnalberry
    exactly what celiac3270 said - bread has more than just wheat in it, and you could be reacting to something other than wheat in the bread. bulgar and pasta (I'm thinking regular pasta, NOT egg noodles) are _just_ wheat and water. as for how to add it in, the whole point is to make the reaction as obvious as possible, so you go _totally_ cold turkey for...
  24. tarnalberry
    Once you get used to the layout, you'll probably find it easier. (I like knowing "where do I go for pasta? the pasta aisle" is the same gluten-free or not.) Some stores do have a gluten-free aisle, though. (I saw one like that near Detroit.)
  25. tarnalberry
    The last thing I read on cross reactivity between cows milk and goats milk suggested that, since there is some of all forms of casein in both (albeit at decidedly different proportions), some people may not tolerate either - even if it's the primary cows milk casein that's bothering them. But some people may tolerate goats milk where they won't tolerate...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.