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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Need Some Advice
tarnalberry replied to mat4mel's topic in Parents, Friends and Loved Ones of Celiacs
no, for a gluten challenge, you go by body symptoms. so you are gluten-free for somewhere between a week and a month, then eat a bunch of gluten (not in other products though - so like pasta or bulgar, not bread) one day and see how your body responds. you only have to eat gluten for a day or two, since you're not doing any blood work or biopsies. -
ARCHIVED What Other Food Allergies Do You Have?
tarnalberry replied to Mballerina's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Based on my elimination diet test, I appear to be casein intolerant, but have no problems with soy or egg. -
ARCHIVED Underweight/Overweight?
tarnalberry replied to Mballerina's topic in Related Issues & Disorders
Doh! You don't have a category for being neither under- nor over-weight! That would be me. -
ARCHIVED Need Some Advice
tarnalberry replied to mat4mel's topic in Parents, Friends and Loved Ones of Celiacs
You said she's using rice milk... Is it Rice Dream? That stuff isn't gluten free. I've found the gluten challenge to be useful - and not require eating gluten for nearly as long as the biopsy - but it's a tough decision no matter which route you take. -
ARCHIVED Cd And The South Beach Diet
tarnalberry replied to FreyaUSA's topic in Related Issues & Disorders
I haven't done the SBD, but just wanted to remind you that gluten is in a lot of things that aren't grain related as well - soy sauce, anything with modified food startch, etc - in case you hadn't checked out the safe/unsafe list yet. I'm glad it's been helping you! -
ARCHIVED Is Bad Breath A Cd Symptom?
tarnalberry replied to kathyhay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Possibly, but it can be a lot of other things. His sinuses could be a problem, so could his dental health (flossing daily is very helpful to keeping breath from being nasty), and a number of stomach and intestinal problems can contribute to it. It can, however, be the sign of a problem, and he should talk to his doctor about it further. -
I hate it when men assume that nothing else is allowed to bother you around your period. Honestly, I don't think people can understand how it feels to have a basic human need threatened. Do keep talking to them - you've got to stick it out though, and not walk out. Because you walked out, they don't know there was a problem. I understand why - oh I know...
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ARCHIVED They Can't Really Be Serious About This?
tarnalberry replied to rgeelan's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have you ever tried cleaning one out? You'll find that there really are crumbs all over the metal that the bread does touch. For $10, it's not worth the risk -
I forgot it was coming up so soon. Good luck! (I admit to being confused at first, because I'm used to 'endo' being used to mean endometriosis, a gyn condition, and ... well, was just very confused. ;-) )
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Well, I've been eating gluten-free for a year now, so I really haven't had much in the way of gluten any time recently - and no gluten that I can pin my finger on in a year. ;-) My symptoms aren't particularly classic, but not that far off classic either, but I never was very sick, so it really isn't that easy to quantify. To the best of my knowledge, gluten...
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ARCHIVED Enthusiasm, What Do You Do To Keep It Going?
tarnalberry replied to ponita's topic in Coping with Celiac Disease
For me, it's all about feeling well so I can go out and live the way I want to, not being limited by my body. Want to try something new? If you're not feeling well, you're not likely to get up the motivation, and then, at the end of it all, you've got a lot of sitting around on the couch and not trying things you like. I'm enthusiastic about finding... -
ARCHIVED They Can't Really Be Serious About This?
tarnalberry replied to rgeelan's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You absolutely cannot use the same toaster - there's no way to get all the crumbs out. (Then again, I never use a toaster, but you can get a $10 toaster from WalMart after saving up.) But, depending on your cooking implements, you may not really need new pots and pans. If you've got stainless steel that's in decent shape, then just washing well is fine... -
Talk with the director about your concerns that people don't know what's going on? Direct them to the signs posted everywhere? Remember that they may have been dealing with celiac disease - and not even as something they have - for only the length of time you've been there. And you're a very small part of their day. In five minutes a day (and that's...
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ARCHIVED So Much To Deal With Right Now...
tarnalberry replied to Niteyx13's topic in Coping with Celiac Disease
Good luck to your mom, and a speedy recovery! And good luck with your blood tests! -
While I don't think there is a strict correlation (like the genes that cause celiac disease also cause peanut allergy), we may have more exposure to peanuts than some others, and food intolerances from an overactive immune system often go together, so it's not terribly surprising. It's one reason why I try fairly hard to avoid eating peanuts (or any other...
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With dairy showing up as a problem in my elimination diet, my mother-in-law asked something along the lines of "So are you still thinking you have to avoid gluten?". Argh! The seed of doubt! Oh no! You might not think that this would cause me the "mental anguish" (I'm being facetious) that it is, but my major test for gluten-intolerance was only...
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ARCHIVED Soy Problem Or Too Much Margaine?
tarnalberry replied to Alexolua's topic in Coping with Celiac Disease
Silk is gluten-free/CF. You might try eliminating soy for a few days, then adding it back in with a vengance to see if it's bothering you. -
ARCHIVED What Do You Use For...
tarnalberry replied to Mom22's topic in Gluten-Free Foods, Products, Shopping & Medications
I use Imagine brand chicken broth, but there are a few boullions available at health food stores that are gluten-free. (I don't remember the brand, and I used up the box a few weeks ago.) Lea&Perrins is supposedly gluten-free, but I've not yet found a single gluten-free teriyaki sauce. The good thing is, however, since you can get wheat-free tamari... -
ARCHIVED Eating Gluten
tarnalberry replied to EddieJP125's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You're not going to completely wipe out the entirety of your digestive tract with one (albeit large) gluten accident. So I'd guess you might have slightly impared absorbtion for a few days, but I don't know that you'll notice. As for how long the symptoms can last - that varies greatly person to person (as does the amount of damage/duration of healing)... -
ARCHIVED Sweet Corn Cake
tarnalberry replied to kirst4588's topic in Gluten-Free Foods, Products, Shopping & Medications
I'm curious to hear the response. I have yet to see a single brand of baking soda or baking powder confirmed as to HAVING gluten. :-) (Though, I'm with you in always checking.) -
ARCHIVED How Gf Should I Be?
tarnalberry replied to hthorvald's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't have DH, and I know you can't absorb gluten through your skin, but I go with better safe than sorry. -
ARCHIVED Safe Snacks For The Kiddies
tarnalberry replied to kirst4588's topic in Parents, Friends and Loved Ones of Celiacs
You can make lots of bar things at home, and freeze them (I think a full-size freezer will be our first purchase (after washer/dryer) after buying a home!), same with muffins (don't forget the sugar like I did yesterday!) and lots of other things. When I have the space to do it, it's nice and convenient - and doesn't have to take too long if you stick with... -
ARCHIVED New Here - Dealing With Possibility Of Late Dx
tarnalberry replied to Dewey56's topic in Parents, Friends and Loved Ones of Celiacs
Yep, I'm almost completely positive that mine was late onset as well. The only symptom I might have had as a kid was getting sick often, but I was also under a lot of stress and had undertreated asthma, so I don't think that's it. :-) (Yes, I know they can be related, but really, no symptoms that correlated that I can remember.) -
ARCHIVED Enterolab Testing
tarnalberry replied to admcs13's topic in Introduce Yourself / Share Stuff
Yes, I had heard that he's been working on a study for publishing this year, but I'm still waiting for it to come out. I know from my research experience that it may take a while, and that it doesn't mean a lot (from the scientific research world) until it comes out and other people get to independently confirm it. ;-) An article about the Italian research... -
ARCHIVED Gf Store Brand Formula?
tarnalberry replied to rattaway's topic in Gluten-Free Foods, Products, Shopping & Medications
If she's still producing milk, she can try going gluten-free (and possibly avoiding/reducing the rest of the potential allergens in her diet), and try breastfeeding again.