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tarnalberry

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Everything posted by tarnalberry

  1. tarnalberry
    I'd encourage you to get the numeric test results. Some doctors will call the exact same results "inconclusive" or "negative". Big difference! :-)
  2. tarnalberry
    You might consider taking a look at what TYPE of food you're eating. Not only do a lot of packaged gluten-free foods have a lot of fat, other ones are high in simple carbs. This can spike your insulin, then drop your blood sugar, and make you hungry again. Getting plenty of protein and fat with your carbs will help make you feel more full for longer on...
  3. tarnalberry
    I agree with getting the exact test results. "Negative" is not the hard and fast interpretation that you'd think it is. Two doctors have disagreed on my test results in particular, but I go by how I feel on the diet. (My allergist didn't want to believe that only having a slightly elevated anti-reticulin IgG could indicate gluten-intolerance.) But I also...
  4. tarnalberry

    ARCHIVED What Type Of Doctor To See?

    tarnalberry replied to cstoup's topic in Doctors

    Ironically, my diagnosis path is quite different... I have never been to a GI. I went in to my doctor, after noting going gluten-free for two weeks helped, told her about my symptoms and the diet results, asked for the blood test, and she ran it. Came back inconclusive, she said "do a dietary challenge", I had a reaction, and there's the end of the story...
  5. tarnalberry
    nah... seeing improvement in 3 days is totallly believable. it varies for everyone, but I'd take it as a big sign! :-)
  6. tarnalberry
    Oddly enough, speaking of fevers, until I went gluten-free, I almost NEVER had a fever. The first time I got seriously sick after being gluten-free for a while, I had a nasty flu, and a NASTY fever (>101 for >5 days), but I didn't realize that I should have called my doctor after the second or third day, or how much fever-reducers I needed to take...
  7. tarnalberry
    My doc said protein and/or fat. The nutritionist probably didn't say fat because she doesn't want to encourage a high fat diet, but you should eat as makes your body happy. (20% fat was too low and tended to make me feel worse, I need closer to 25-30% fat in my diet - it varies by person). The fat will help slow down the release of sugar into the blood...
  8. tarnalberry
    Start out slow - maybe just a walk around the block - and get plenty of liquids. Take it easy, and treat it as though you were sick. It's hard, I know. :-( I also find it hard to exercise for a few days after getting glutened as well.
  9. tarnalberry
    The whole process of sprouting a grass from the seed grain isn't a hard science. The gluten proteins are "used up" in the process of growing the grass. But this isn't a step function, it's an asymptotic process. You approach "no gluten" over the course of the growing of the grass, but there's always a question of where in the process you are. In theory...
  10. tarnalberry
    The deal with body fat and estrogen is that body fat _produces_ some of the estrogen in the body, and it also stores estrogen. (Obese women may have a problem with TOO MUCH estrogen.) The fact that all the rest of your hormone levels were low may be indicative of other problems (thyroid? I'm not really sure), though. The millet/sorguhm/arrowroot issue...
  11. tarnalberry
    I've used Bob's Red Mill cornmeal with no problem. I think the reason they don't label it as gluten-free because they don't test it and produce it in their strictly gluten-free plant. It's worth calling them on it though, based on the ingredients.
  12. tarnalberry
    For the most accurate results, you really don't want to go off of it before your test. Then again, if you're that confident it's the gluten, maybe you don't need to blood test at all! The thing is... will one week off and then one week on mess up your results? The answer is ... it depends entirely on YOUR digestive system as it is RIGHT NOW. Maybe it...
  13. tarnalberry
    Yep, that the CODEX wheat starch there that you're referring to. It's still a controversial thing among celiacs, and among American doctors, though European doctors seem fairly accepting of it. Again, while it's gluten-free in theory, in practice, it is NOT 100% gluten-free. CODEX believes it's gluten-free enough to not cause reaction, but that can vary...
  14. tarnalberry
    I started doing an elimination diet a week and a half ago, eliminating... what, everything? Seriously, I was eating potatoes, sweet potatoes, carrots, onions, beets (whoo, there was a mistake), beef/lamb/turkey, peeled apples and pears, watermelon, olive oil, and salt. Only took five days for me to break down and go bonkers! I mellowed out the test a bit...
  15. tarnalberry
    I get Lundberg Farms rice cakes at Wild Oats, but only because I usually shop there. Trader Joe's carries them (but they're not always in stock), and many large chain stores here on the west coast carry them.
  16. tarnalberry
    That dizzy/nauseaous/funny-headed feeling is my main symptom of gluten contamination. Turns out it's also my primary symptom of casein ingestion as well (delayed reaction, takes nearly exactly 2 hours). Try eliminating dairy as see if that helps? (Both gluten and casein proteins are similar in that if they're not properly digested, what's "left over" can...
  17. tarnalberry
    Here are a couple of webpages on it (you can find a LOT of information by looking it up in google): Open Original Shared Link Open Original Shared Link Most of the information out there is much the same, and yeah, steroids are used to treat it initially and can clear it up. But topical steroids have some pretty serious side effects, whereas going...
  18. tarnalberry
    Yes, they are. Though, as someone pointed out, trusting a message board is risky, so you might want to call the number that's on the bottle for additional peace of mind. :-)
  19. tarnalberry
    yes, there is some research, but much of it is being done overseas. there's not a lot of research on it - 'cause there's not a lot of money. but if you've got a few million to donate to the research cause... it doesn't help that there isn't a huge push to find a pill or something, because we already have a "cure" - the gluten-free diet. (it "cures"...
  20. tarnalberry
    It's a good sign that your doc is willing to go off of blood work! With numbers that conclusive, it's great to save yourself the trouble of having to have a biopsy. As for nursing, from what I understand, there _could_ be some issues with nutrients, BUT don't worry too much! If she's looking healthy and happy, chances are, it's not a big problem. Of...
  21. tarnalberry
    The company says that they are - the big ones, I believe. But I've heard people complain about cross-contamination, so I stick to Lundberg Farms rice cakes - which are quite tasty. :-)
  22. tarnalberry
    nukapai, you DO need to be eating gluten before your test. hopefully the days you have been gluten-free won't affect the test, but two weeks of being gluten-free did affect mine.
  23. tarnalberry
    Yes, definitely keep eating lots of gluten before your test! The diet really isn't that bad. Yes, it's hard to start, but once you find foods that you do like that don't have wheat, it will be much easier. It can be hard, it can take time, and it can mean you've got to do a fair amount of cooking on your own. But you can make a lot of very tasty foods...
  24. tarnalberry
    hmm... a burning esophogus is a bad thing. perhaps there's a reflux issue? (though I agree that I've not heard of gluten-free wheat outside of CODEX wheat starch, which we still find controversial in the US) if it's an acid issue, you might try drinking some "basic" (I mean pH, not "single ingredient") liquids (milk, if you can have it; soy milk) or...
  25. tarnalberry
    welcome! I hope the diet does help you. It can be hard at first, but catfish is right, once you get the hang of cooking, it really isn't that bad. (I really do seem to post this all the time... maybe I should change my signature to include it? ;-) ) Sticking with naturally gluten-free staples will help you keep it less expensive and easier. A LOT of...
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