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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED To Tell Or Not To Tell . . .
tarnalberry replied to stargirl's topic in Introduce Yourself / Share Stuff
I'm the only celiac, but we do a totally gluten-free thanksgiving too. It's easy! (Though we go with rice stuffing, and don't eat pie. ;-) It's gluten-free, and Ornish-diet friendly too. :-) ) -
I find that much of what they already list for emergency kits still applies, only you have to go with gluten-free varieties. So, what goes in mine (I still need to update it to be gluten-free) is: packages of tuna (Whole Foods has a gluten-free foil package, but cans are fine too if you keep a can opener in your emergency pack) non-refrigeratored peanut...
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ARCHIVED To Tell Or Not To Tell . . .
tarnalberry replied to stargirl's topic in Introduce Yourself / Share Stuff
I found that MY confidence level was the most important part in talking about it. If I have the confidence that I'm doing what's right and I'm healthiest I can be, it helps. A lot of it is attitude, I think. -
ARCHIVED To Tell Or Not To Tell . . .
tarnalberry replied to stargirl's topic in Introduce Yourself / Share Stuff
There has never been anyone who I haven't (when appropriate) or wouldn't give the brief descriptions "I have a dietary restriction." "I'm gluten intolerant." "I can't eat wheat, it will make me very sick." (I start with the first, and add the next two as appropriate.) I've even said this to the guy sitting next to me on a plane (when I got a sandwich I couldn... -
ARCHIVED A Survey, For Fun
tarnalberry replied to ryebaby0's topic in Gluten-Free Foods, Products, Shopping & Medications
Rice cakes? Seriously, I buy very few things that are designed to be gluten-free (being the whole-foods, cooking-from scratch freak that I am ;-) ), and probably rely on nothing other than rice cakes. If I were eating corn, I might say corn tortillas... -
ARCHIVED A Days Menu....
tarnalberry replied to XoHeatherxO's topic in Gluten-Free Foods, Products, Shopping & Medications
Aww... thanks guys. This is why I don't think that eating gluten-free is very hard. ;-) Really, it's all practice, creativity, and experimenting. But you have to already like cooking to be happy to dive in to that. (I'll admit to being a California snob too... I think our year-round, fabulous quality of produce helps... All the other states I've visited... -
ARCHIVED A Days Menu....
tarnalberry replied to XoHeatherxO's topic in Gluten-Free Foods, Products, Shopping & Medications
Breakfast: Smoothie (homemade, soymilk and fruit) gluten-free cold cereal (like Nutty Rice or Erowen Crispy Rice) gluten-free Hot Cereal (like quinoa flakes or cream of rice or cream of buckwheat) gluten-free pancakes (homemade, not frozen) plain yogurt and fruit Lunch: canned tuna (with apples, or yogurt, or celery seed, or onion, or tomato, or some combination... -
How much water are you using? Ideally, particularly for strand pasta, you use A LOT (I'm talking a gallon of water for four servings of pasta) so that it doesn't clump together. Using plenty of water (and a touch of salt to up the boiling point), and keeping a good boil going, I've never had it stick too much (without oil).
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ARCHIVED How Much Would You Pay For A Pill?
tarnalberry replied to asdfgh's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
lol, I would pay $10-$20 for something that would stop a gluten reaction if I got contaminated! -
November here. There is a studied link between asthma and birth season - thought to be due to how much time is spent indoors/outdoors. (Winter babies have a higher chance of asthma - it's a small difference.)
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ARCHIVED Negative Biopsy
tarnalberry replied to Cstrong's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Grrr. I really hate it when doctors treat patients like they're stupid. There's no excuse. I say stick with what makes you feel better. You want another test? Have a wheat based sandwich. See how you feel. There's a test if you're not sure already! -
ARCHIVED Moms With Young Kids
tarnalberry replied to AmyandSabastian's topic in Parents, Friends and Loved Ones of Celiacs
That's why I have a problem with Enterolabs. But it doesn't mean they're wrong. I remain skeptical of their practice, but the dietary challenge is a test in and of itself. You can use their test if you like, of course. They may well have believed that oatmeal didn't count do to the reports that it's safe, but that remains controversial for enough people... -
O positive for me!
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Someone mentioned that PeiWei - a faster food place that spun off of PF Changs - has gluten-free items.
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ARCHIVED Pasta
tarnalberry replied to lilliexx's topic in Gluten-Free Foods, Products, Shopping & Medications
I also like Tinkyadas. But Quinoa pasta (by Ancient Harvest) is also good, if you can have corn. -
ARCHIVED Need Energy
tarnalberry replied to chasefamily's topic in Gluten-Free Foods, Products, Shopping & Medications
Don't forget to make sure you've had your iron, thyroid, and hormone levels checked - all of those can affect energy levels. Getting exercise daily (and I know it's hard when you're already tired, but it's still important) is also helpful. -
ARCHIVED Celiac Or Gluten Intolerant: Does It Matter?
tarnalberry replied to Judithg's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think that's from two pieces of misinformation many doctors have: 1. There aren't any serious long term complications from being celiac (except symptoms) or that going gluten-free doesn't reduce the risk of the long term complications (my allergist fell into the later category). 2. The diet is overbearingly hard, painful, and practically impossible... -
why do you think you don't already have a diagnosis? a positive reaction to a gluten challenge IS a diagnosis in and of itself (and _some_ doctors accept it as one... _some_) if you're confident of this, just go gluten-free! BTW, did the second set of tests include a total IgA? if not, they can't conclude anything from below normal IgA's.
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ARCHIVED Getting Diagnosed
tarnalberry replied to ErraticBinxie's topic in Introduce Yourself / Share Stuff
Having been off gluten for a number of years, there is no test that will be able to tell you if you're celiac. The tests all check for gluten antibodies, and if you're not ingesting gluten, you won't produce antibodies to it. You could get the gene test. It won't tell you if you have celiac disease, but it will tell you if you have one of the two genes... -
ARCHIVED How Much Would You Pay For A Pill?
tarnalberry replied to asdfgh's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I wouldn't take it regularly. Following the diet, when you get creative and good with your cooking (branching out where need be) really isn't that hard, and is healthy to boot. I'd consider paying up to $2/dose for special occasions, but that'd be ~twice a year. -
ARCHIVED Tic Tacs G/f?
tarnalberry replied to Canadian Karen's topic in Gluten-Free Foods, Products, Shopping & Medications
wait! altoids gum is NOT gluten-free. It contains wheat maltodextrin. here's a direct reading of the ingredients: Gum Base, Xylitol, Isomalt, Sorbitol, Mannitol, Gum Arabic, Oil of Peppermint, Natural Flavor, Artificial Color, Aspartame**, Acesulfame Potassium, Wheat Maltodextrin, Artificial Flavor, Carnauba Wax, **Phenylketonurics: Contains Phenylalanine... -
ARCHIVED Gf Frozen Pizzas
tarnalberry replied to hjkmatthews's topic in Gluten-Free Foods, Products, Shopping & Medications
I've had good luck with Amy's rice pizza crust. But one thing that may help is using a pizza stone. -
ARCHIVED Hair Color Product
tarnalberry replied to westrivergirl's topic in Dermatitis Herpetiformis
You could try henna. It won't lighten your hair, but can be used for shades of red and brown. It's a great conditioner (you can even get colorless henna just for conditioning) and is very easy on the hair. It's not permanent, however, and washes out naturally after about five weeks. -
ARCHIVED Natural And Atrifical Flavors
tarnalberry replied to HeatherMelissa's topic in Gluten-Free Foods, Products, Shopping & Medications
Homemade chicken stock can be as strong as you like. And the quality of store bought broth or stock varies greatly by brand. Imagine brand chicken broth has always had plenty of flavor, I think. (And it's sold in handy asceptic boxes!) -
ARCHIVED What Do You Use?
tarnalberry replied to Canadian Karen's topic in Gluten-Free Foods, Products, Shopping & Medications
oh yeah, i had heard about the coconut macaroons in the newspaper, actually. :-)