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C-Girl

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Everything posted by C-Girl

  1. C-Girl
    Icelandgirl - I've been going through the same thing! It's super duper frustrating. I am beginning to suspect some sort of hormonal component to it - it is very obviously cyclical, and they did find a big old ovarian cyst they said was benign looking. But it's pumping out ridiculous amounts of estrogen. I don't know why that would give me D for weeks on end...
  2. C-Girl
    Thanks again for all the feedback. I too am blessed to have a caring, supporting husband and that makes it easier, but I really hate being a burden and worrying him. I wish it would all just go away! Had the lower GI scoped, and they found nothing remarkable, but am waiting on the biopsy. Meanwhile, I have a barium x-ray for the small intestine on the books...
  3. C-Girl
    Thanks everyone - it's much appreciated. I'm trying out a counselor this afternoon. We'll see how it goes. After two weeks of hardly eating, zero chance of gluten and I'm still having the big D. Neither Immodium nor pepto bismol has helped, it's pretty frustrating and frightening. More tests on Monday. Hooray.
  4. C-Girl
    I've been thinking that I need to find a counselor to help me deal with all of this. Having never had any serious health issues my entire life, it's a bit hard dealing with this piece of s$#& body that I've suddenly been presented with. Has anyone had any luck with that, and what should I look for in a good counselor?
  5. C-Girl
    Thanks kareng. I had been eating greens, trying to stick to whole, unprocessed foods. I cook them, but I guess I just can't have them at all yet, which stinks because I love greens. Back to boiled rice and eggs for another week until things settle down. On another note, I know when things are about to get ugly when I suddenly gain 3-4 lbs. it's first bloating...
  6. C-Girl
    It's both encouraging and heartbreaking to read these stories... I think I was glutened last week by some nut butter I got a whole foods. I'd been feeling great, and got cocky and didn't read the label. Damned shared facility. It's either that or my failed attempts at baking gluten-free bread, either I can't tolerate yeast or the flours from nuts.com were...
  7. C-Girl
    I'm sorry you feel the tone was aggressive, but what with all that all of us have been through, not only is this a completely silly question, it is borderline troll to complain that you are looking for someone out there who went back on gluten and had a positive experience. Perhaps you should educate yourself a little bit about what celiac is and how...
  8. C-Girl
    I've been reading this Open Original Shared Link on the origins of autoimmune diseases like celiac, and it is clear through much research that these are caused by a disruption in the bacteria and other organisms, known as the "microbiome" that inhabit our bodies. It's 500 pages of scientific research, so it's not for the faint of heart. The book details...
  9. C-Girl
    I've been reading this book Open Original Shared Link "an epidemic of absence - a new way of understanding allergies and autoimmune diseases". Fascinating book! I'd heard of crackpots infecting themselves with parasites to "cure" autoimmune diseases but had never thought there was a sound scientific basis to it.. Don't spoil it for me if you've read it...
  10. C-Girl
    Haha true! It definitely goes beyond the fact that if you're crapping your brains out all day long you just aren't really happy... I'd never have thought to keep on with the probiotics if it hadn't been for this forum, so I am quite thankful for the collective knowledge here.
  11. C-Girl
    Last night I listened to Terry Gross on NPR, she was interviewing the author of Open Original Shared Link talking all about the bacteria in your body and the effects of modern life on the natural balance. In it, he mentioned how none of the probiotics are regulated, and very few are scientifically studied. The reason I went for Culturelle is because the strain...
  12. C-Girl
    You know what? I joined in your rant as I was feeling really low at the same time. I turned things around, too - and I think venting about it helped. I also started to feel better physically after starting on a different brand of probiotics. I'm not sure if it was the Culturelle, or getting some stress out of my life, but things have quieted down in my guts...
  13. C-Girl
    They did a stool test in October, found no cysts or ova. No salmonella, shigella, campy, yersinia or E. coli 0157. But there are other bacteria that can cause travelers D. Who knows, maybe if that's it I'll get immune eventually. My immune system ought to be looking for things to destroy now that it's not working on my small intestine....
  14. C-Girl
    After much waiting, my third (3rd time a charm?) gastroenterologist finally got back to me with my labs from my last visit two weeks ago. Abdominal ultrasound, normal. C-reactive protein, normal. Pancreatic enzymes, normal. Good news? tTG which was >100 in October is now down to 5! That's a huge, huge drop, so why am I still having these issues? I...
  15. C-Girl
    You are most certainly not alone. I'm right there with you! Every time I think I'm over the hump, something that I have no idea was a problem becomes a problem and I need to stay in tight orbit around the bathroom. I feel like my ball and chain is made of porcelain. I hope we don't have to just get used to it. I wish doctors were more useful, but alas...
  16. C-Girl
    (sigh) I do OK as long as I don't have to think about celiac, diarrhea, doctors or tests, but unfortunately as soon as any of those topics enter my conscious mind I get super depressed... It's been 11 days since my blood tests - checking pancrease/gallbladder/inflammation and re-checking gluten antibodies - and not one peep from the doctor with the results...
  17. C-Girl
    It's a great idea to try and work this out before trying the in vitro again. In the USA, Quest Diagnostics has been Open Original Shared Link urging people to be tested for celiac before going on a gluten free diet. It's $124 to get it done and the test is 96% accurate. There are Quest labs in Niagara Falls, if you don't have any options closer to...
  18. C-Girl
    Actually feeling better today... I think it mighty actually be sugar that triggers the episodes. I ate some Peeps - who can resist those Easter candy displays? And they're gluten free! All they are is gelatin and sugar, right? Is previous episode was brought on by some gluten-free brownies a couple months back. At the time I was on fodmaps and was told chocolate...
  19. C-Girl
    Yes, dairy, soy, nuts, chocolate (ugh!), caffeine, alcohol. It would be nice to have something obvious to try though!
  20. C-Girl
    Thanks everyone. I really appreciate the sympathy. It seems it took a day and a half for the Bentyl to take effect. Only now I have the headache, dizziness and lethargy as side effects that didn't show up initially. But at least I have had a few hours of rest from the toilet! Nobody's tested my stool aside from the very first ones for parasites. I don...
  21. C-Girl
    Please post a review to Yelp about them so that any other celiacs looking for restaurants will avoid the place!
  22. C-Girl
    I kept a food diary for four months, spent hours inputting it into a program that could correlate symptoms to foods. The only thing I got back was food is a trigger for my D! The doc suspects microscopic colitis. Of course there isn't much to be done about that either. That's frustrating. I just want to get back to normal, without any drugs or 20 trips to...
  23. C-Girl
    I'm sorry to be such a downer all the time here, but I just can't vent anywhere else. I can't stop the D and it is getting so frustrating I don't know what to do! I found Yet Another Doctor, this one seems more thorough. Going for an ultrasound tomorrow, had more blood taken, scheduled a colonoscopy (yay.) but she also put me on Bentyl and it's done just...
  24. C-Girl
    Well, after my initial dip in energy, I managed to get back some get up and go, but it seems for every step forward I take another two back. Maybe this is the "darkest before dawn" phase...
  25. C-Girl
    Ugh! I also have the receding gum and transparent teeth. Last week I bit down wrong and chipped TWO teeth at once. I also have an ovarian cyst and am seeing Yet Another Doctor about the abdominal pain, which I suspect to be the gallbladder since the stabbing pain in my right shoulder blade appeared to join my stabbing churning stomach pain. FML. I'm sick...
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