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Latest Celiac Disease News & Research:
Everything posted by Judyin Philly
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ARCHIVED Got My Calgary Schedule Date!
Judyin Philly replied to num1habsfan's topic in Related Issues & Disorders
Lisa, Just getting back on line after some time. Missed this. so sorry..your trying so very hard in all areas of your life. i'll keep you in my prayers... judy in philly -
ARCHIVED Educate People If You Get Sick At Their Restaurant
Judyin Philly replied to Mtndog's topic in Gluten-Free Restaurants
[quote name=gfp' post='265690' date='Feb 3 2007, 08:23 AM]Yep, I guess its better to have a letter pre-written because after glutening it can be a little hard to put things constructively. -
ARCHIVED Educate People If You Get Sick At Their Restaurant
Judyin Philly replied to Mtndog's topic in Gluten-Free Restaurants
Thanks Bev, What a great post I'm going to save it and PRAY that I don't have to use it but we all know that it probably won't be the case. judy -
ARCHIVED Elizabeth Haselbeck Said She Has Celiac!
Judyin Philly replied to TBOX's topic in Publications & Publicity
Don't know if anyone posted this but here is a link to the show if people missed it Open Original Shared Link Judy -
ARCHIVED The Weekend From Hell
Judyin Philly replied to TinkerbellSwt's topic in Introduce Yourself / Share Stuff
Stef My computer has been down so haven't been on. What a weekend..so sorry for all your anxiety but glad CHOP is doing the gene test. Let's see..that's about 5 negatives and ONE POSITIVE...WE'LL TAKE IT RIGHT? JUDY -
ARCHIVED Just Ordered A Gene Test
Judyin Philly replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
oK NOW THIS MAKES TOTAL SENSE TO ME... THANKS FOR THE ANSWER.. MY COMPUTERS BEEN DOWN FOR 2 DAYS.. GOT MY 'TEST KIT' BOX YESTERDAY AND NOW HAVE TO WAIT CAUSE CAN'T SENT THURS -SUN BUT THAT'S OK THEY SAID TO SAVE WHAT I GOT TODAY DIDN'T HAVE TIME TO READ ALL DIRECTIONS WHICH ISN'T LIKE ME BUT ALOT GOING ON TODAY.. SO AGREE WITH WHAT YOU SAID HERE... -
ARCHIVED Just Ordered A Gene Test
Judyin Philly replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So given this fact, why should I do this test I just ordered? There still would be no proof right??? I know that I'll never eat gluten again reguardless of what the tests says as it makes me sick..but wanted for my son and also if not celiac ..still could be gluten intollerance which they're to test for. Oh this gets so confusing.. sigh! Judy -
ARCHIVED Just Ordered A Gene Test
Judyin Philly replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
HI I tried to log into sight on a Thursday nite last week Chickened out when it came to 'hitting send key' Mmost of my infor was there. I must link anyway to their site b/c called and placed my order on Fri late in Texas. Since my info was there already, she took my card over the phone. You can do it all on line. There are many options you can pick... -
ARCHIVED Just Ordered A Gene Test
Judyin Philly replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My full panel test is coming on Friday from Enterol labs...let's hope we kind some answers. judy in Philly -
ARCHIVED Omg Did Anyone Just Watch Cn8 Program On Celiac?
Judyin Philly replied to Judyin Philly's topic in Publications & Publicity
Thanks Patti..Just got up for the second time this am. posted early today and then...well....went back to bed.... I'd sure be interested in hearing what Alice Blast thought of this show. Good they put the URL but during the 15 I saw they didn't mention a link. Will pm you later after chiro. have to go scrap off the car judy -
ARCHIVED Omg Did Anyone Just Watch Cn8 Program On Celiac?
Judyin Philly replied to Judyin Philly's topic in Publications & Publicity
Sorry to be miss leading, Tiffany. I didn't mean to indicate all I typed here was incorrect info I was also sharing some of the 'right' things they said..I guess I wasn't clear enough. That sometimes happens when I post when I'm upset and not 'focused' . I'll have to not do that in the future. I was happy to hear some accurate info whcih I tried... -
ARCHIVED Omg Did Anyone Just Watch Cn8 Program On Celiac?
Judyin Philly replied to Judyin Philly's topic in Publications & Publicity
Hi and thanks for commments. I was just ck'n back in to see if anyone else saw it. I think you guys are like me, Let's hope hardly anyone saw the blooming thing. I'd rather have NO coverage that INACCURATE ones. -
ARCHIVED Omg Did Anyone Just Watch Cn8 Program On Celiac?
Judyin Philly replied to Judyin Philly's topic in Publications & Publicity
Well, I just finished my gluten-free, sf, df, dinner Granted, I did miss the first 15 min but what I saw... The moderator kept mispronouncing words...stumbling and stammering over what she was trying to say. That was distracting..I kelp yelling, 'spit it out for crying out loud' It didn't look professionally presented or ever thought out..She had... -
ARCHIVED Omg Did Anyone Just Watch Cn8 Program On Celiac?
Judyin Philly posted a topic in Publications & Publicity
I pray that some one else out there saw this show today Sunday 1/28/07 THE GREAT UNKNOWN DISEASE: CELIAC A friend just called me 15 min into the program and told me to watch. What I saw was so upsetting. The moderator, I believe was Mary Amoroso..The guests were a women and Dr with celiac and a registered Dietitian with 19 years experience AND OBTAINED... -
ARCHIVED Omg...i Might Be On To Something
Judyin Philly replied to Rachel--24's topic in Food Intolerance & Leaky Gut
I'm so glad you have your 'beloved' coat...but a word of advice.... better not get a husband anytime soon....cause they are just like those boys If you try to shop with them... Just trying alittle humor to cheer you up. judy -
ARCHIVED Omg...i Might Be On To Something
Judyin Philly replied to Rachel--24's topic in Food Intolerance & Leaky Gut
RACHEL SO SORRY ABOUT YOUR JACKET. DID YOU HANG IT IN THE WAITING ROOM? SEEMS THEY KNOW WHO HAD SCHEDULED APTS AFTER YOU. IS THIS A BUSY..IN AND OUT OFFICE OR JUST SMALL NUMBERS OF PEOPLE? DID THE WAITING ROOM HAVE MORE THAN JUST YOUR DR OR OTHERS TOO? IS THIS WOMAN WHO LOOKING 'YOUR SIZE'????? LET'S JUST HOPE YOU GET IT BACK. HUGS JUDY -
ARCHIVED Omg...i Might Be On To Something
Judyin Philly replied to Rachel--24's topic in Food Intolerance & Leaky Gut
HI RACHEL YES THE CELIAC PANEL DID SHOW A SLIGHT ELEVATION..AND THEN RETESTING THE PANEL 3 MONTHS AFTER gluten-free THE NUMBERS WERE HIGHER THEN THE FIRST ONE. ENTEROL LAB GAL SAID THAT CAN BE A NORNAL THING THEY SEE IT ALOT. I POST MY NUMBERS HERE ONCE IF I FIND THEM I'LL DO FOR YOU TO SEE... MY DR DIDN'T THINK NUMBERS SHOWED ''''REAL CELIAC''' BUT... -
ARCHIVED This Is Kind Of Gross...
Judyin Philly replied to chocolatelover's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
WELL SINCE I'VE BEEN gluten-free 19 MONTHS..SOY 10 MONTHS DAILY 2 1/2 WEEKS ( YES I'M COUNTING DAYS AND HRS AS I LOVED MY DIARY).... BEFORE gluten-free, COULD BE ANY TIME AND USUALLY W/IN 1/2 HR OR HR..SOMETIMES MIDDLE OF THE NITE.. ESP IN THE AM...CLEAR A FAST PATH TO THE BATH ROOM .....FAST IS SAY THE LAST TIME I HAD INDEGESTED SOY IN ERROR...IT COME... -
ARCHIVED This Is Kind Of Gross...
Judyin Philly replied to chocolatelover's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
GREAT QUESTION..LOOKING FORWARD TO SEEING OTHERS RESPONCES. MINE IS TOTALLY RELATED TO THE FOODS I'VE INJESTED. JUDY -
ARCHIVED Omg...i Might Be On To Something
Judyin Philly replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Hi Friends. I have been ck'ing this site and gaining so much info and trying so hard to get better. here is a up date. Think you all knew I'd reach this point sometime soon well i did hope you don't mind me doing a cut and paste from my journal in daily strength today. i want you guys to know how much you've helped me even tho i don't post that offen... -
ARCHIVED Elizabeth Haselbeck Said She Has Celiac!
Judyin Philly replied to TBOX's topic in Publications & Publicity
hi ALL Jess in carmel told me how to link ot listserv and found a link today from a guy's blog that gave a indept report with pictures up on his site. here is a link. Open Original Shared Link judy -
ARCHIVED Elizabeth Haselbeck Said She Has Celiac!
Judyin Philly replied to TBOX's topic in Publications & Publicity
Agree got allot in given the short time she had. i wrote her also. Thanked her for talking about her personal issue and asked to have more about it on future shows and suggested Dr P Green as a guest. Hope all will jot her a note of thanks and encourage her to do future shows on our topic. Judy -
ARCHIVED Skate Boarders Only
Judyin Philly replied to Teku's topic in Introduce Yourself / Share Stuff
HI Ben I'm not a skater either but my son, who is now 31 was a avid skater and still does. He lives in Hollywood CA now and really likes to snow board when he can get to the Mountains. I recognize some of the 'skater terns of stunts you can do' I hope you can og on the church trip also. I hope too, that more teen celiac skaters will join you. Until then... -
ARCHIVED Has It Stopped Since Going Gluten-free
Judyin Philly replied to Rusla's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yep, Rulsa, after a gluten this happens to me. It also happened my being 'soy-ed' and still itching off and on. i also an questioning. the candida connection. judy -
ARCHIVED Elizabeth Haselbeck Said She Has Celiac!
Judyin Philly replied to TBOX's topic in Publications & Publicity
Jess, How do you sign up for 'listserv'? judy