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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    Juliet is right about the age for the blood test (and even then it still isn't very reliable). Why not try the blood test now. If it comes back negative, try the diet and test with Enterolab! They are very reliable, no matter what the age. Personally, I wouldn't feed a child gluten until she gets extremely ill and has severe damage. Your daughter has typical...
  2. Ursa Major
    Click above on 'My Controls', from there to 'edit profile information', and put the url of your blog into the window 'your website url'. Don't forget to click on the bottom on 'Amend my profile'. After that, people who check out your profile can click on the link to check out your blog. It is against the board rules to link to your website/blog in your...
  3. Ursa Major
    I did a little research for you (okay, several hours worth ). Here are some links with quotes from those articles that might interest you. Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link
  4. Ursa Major
    I don't believe there is such a thing as a gluten allergy. It is an intolerance that causes an immune reaction. And as said before, if you keep eating gluten you WILL do damage to your body.
  5. Ursa Major
    Celiacmomma, those biopsies are very unreliable. The patches with blunted villi are easily missed. A positive biopsy will confirm celiac disease, but a negative one can never rule it out. You have many symptoms of celiac disease. You get mouth sores, have a vitamin D deficiency, get diarrhea from gluten, as well as cramping and nausea. Why does your...
  6. Ursa Major
    There are other things besides gluten that can cause villous blunting, like dairy and soy. Are you still consuming those? They could stop you from healing all the way if you have an intolerance to them. Of course, maybe the damage was too great, and you have permanent damage, that is another possibility. I don't know how old you are, but the older you...
  7. Ursa Major
    Even though you were gluten-free for a year, it is not uncommon for periodic outbreaks of DH for up to two years after going gluten-free, as it takes that long for the gliadin deposits under your skin to be gone. And even if you don't have the official celiac disease genes, you can have celiac disease. Scientists have admitted that they likely haven't...
  8. Ursa Major
    No, you shouldn't eat turkey stuffed with gluten bread. Do you think your mother-in-law would be willing to make stuffing with gluten-free bread? We had a completely gluten-free meal for our Canadian Thanksgiving, including gluten-free stuffing, and it was delicious. Everybody loved it, and I hardly got any, it was that good!
  9. Ursa Major
    No, not so. There are documented cases of people having full-blown celiac disease with completely flattened villi who don't have the 'official' celiac disease genes. Scientists have acknowledged that it is likely not all of the celiac disease genes have been found yet.
  10. Ursa Major
    I don't understand this sentence. Anyway, nothing you eat will effect your gene tests, it would only effect your bloodwork or biopsies. I agree that your migraines as well as the manic symptoms might both resolve on a gluten-free diet.
  11. Ursa Major
    Well, first of all I think your doctors are all idiots. If you have a confirmed diagnosis of DH, you automatically have a firm diagnosis of celiac disease. Everybody with DH has celiac disease, but not everybody with celiac disease will have DH. Maybe you don't have severe villi damage YET. Or it got missed when taking the biopsies (a very common occurrence...
  12. Ursa Major
    What I really meant is, that after the first three months you should certainly gain weight. To have lost 17 pounds by the sixth month of pregnancy is terrible.
  13. Ursa Major
    I believe my sister has undiagnosed celiac disease (she is my only sister, we have six brothers). She had the blood test, but they told her it was negative, and she refuses to have any further testing or try the diet. She doesn't have any children. She had one miscarriage at three months, then she had twins, but one died inside of her and the other was...
  14. Ursa Major
    Donna, since this won't be your first baby, your age won't be a risk factor. No, you won't need to test for Down's syndrome. First of all, Angie is right, that it is never required. Secondly, the risk is for older women who are having their FIRST pregnancy. If you are gluten-free, you won't be high risk, and aren't more likely to miscarry than other women...
  15. Ursa Major
    Really, if I was you, I would just cancel the CAT scan and neuro appointments, as I think they'll be useless. You're right, they are just making wild guesses and aren't listening to you at all. They appear to have the all-so-common 'God complex', like so many doctors. Ugh, who needs them!
  16. Ursa Major
    Virginia, do you know that a gluten-free diet is VERY helpful to people suffering from ulcerative colitis? It could help your son tremendously to also be on a gluten-free diet. I know that Susie could have other problems. But she is the worst one for any kind of testing, as she faints even when having some blood drawn. I am glad she finally gave her...
  17. Ursa Major
    From my own experience, it can be anywhere from ten minutes to several days. Usually I will get diarrhea on the second or third day, but will get brain fog, irritability and tiredness within hours.
  18. Ursa Major
    Yes, that is exactly what I think happened. And I believe all the doctors are wrong and don't know what they are talking about. Mind you, celiac disease isn't an allergy (and neither is a dairy intolerance) but rather an autoimmune disease. If you want an official celiac disease diagnosis, don't stop eating gluten foods just yet. See your family doctor...
  19. Ursa Major
    Actually, your chiropractor IS a doctor, a doctor of chiropractic. They study every bit as long as every other doctor, and actually get more classes in nutrition, diagnostics, x-ray and others than your regular doctor. I find my chiropractor is a lot more knowledgeable than any other doctor I know. When I have a health problem, he is the first one I'll consult...
  20. Ursa Major
    You (and your homeopathic doctor) could both be wrong in a way. I do believe that your adrenal glands, liver and gallbladder are not functioning right. But celiac disease is known to cause those problems, not the other way round. If you were diagnosed with celiac disease, and being gluten-free has helped in getting rid of your acid reflux, then that was...
  21. Ursa Major
    Well, I finally got Susie to give her 'samples', and sent the package to Enterolab by FedEx today. She has been too sick for school at least twice a week for the longest time. If she goes to school at all, she is usually late, because she is so fatigued and dizzy in the mornings, that she is so slow getting ready, that even two hours are usually not enough...
  22. Ursa Major
    Yay for making the Black Forest cake! I checked out your pictures in your blog, and it looks great. Happy belated birthday!
  23. Ursa Major
    When I was still using shampoo and soap with wheat germ oil, I reacted to it. Since I've been using Dove shampoo and conditioner instead of my former shampoo that contains wheat germ oil, the unbearable itching on my scalp has stopped. Believe me, sometimes I thought I'd go out of my mind, that's how bad it was. Also, some people here were having glutened...
  24. Ursa Major
    Well, as far as I am concerned, that is rather simple. Do what I did and cook the whole meal gluten-free! That way you won't gluten yourself while cooking, and get to eat everything yourself as well. I am the only one gluten-free in this household (plus my granddaughter is, who was here on Thanksgiving). But everybody loved the food! We made stuffing...
  25. Ursa Major
    Yes, that is true. The only reason I bother saying anything is, that people like you will turn people away from the only place who will diagnose them if the medical establishment fails them. If they don't believe Enterolab is valid, they'd have nowhere to go. Many, many people here tested negative on the conventional tests, and positive with Enterolab...
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