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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    You appear to be in the same boat I was in two years ago. From May to October of 2005 I had chronic, watery, explosive diarrhea, which didn't let up for even a day. I had been unwell from the age of three, until the age of 52, without anybody ever suspecting gluten. When I figured out the gluten connection, I quit eating gluten that very day. The diarrhea...
  2. Ursa Major
    First of all, those blood tests are notoriously unreliable with little kids. Were the boys officially diagnosed with DH? Because if they were, then they automatically have a firm diagnosis of celiac disease. ONLY people with celiac disease get DH, it is the only thing that causes it. And the only valid treatment is a gluten-free diet. With all of them...
  3. Ursa Major
    I actually found a gluten-free brownie mix by a Canadian company, El Peto Products. They give a recipe for a light chocolate icing on the package. They took it out of "The Gluten Free Gourmet makes Desserts" by Bette Hagman, so it must be good. Light Chocolate Icing Makes about 1 1/2 cups of icing 680g - 4 1/3 cups confectioners sugar 80ml -...
  4. Ursa Major
    My off-limit list is very long. I recommend you do an elimination diet. MDs are very little help with any of this. IBS drugs would just be covering up symptoms (maybe), but won't fix the cause of your problems. That your MD suggests taking drugs and eating gluten again shows how ignorant he is, forget about him. Stop eating gelatin? I have never heard...
  5. Ursa Major
    Well, I was thinking dairy and/or soy. Since you are avoiding those already, that's not it. There is NO POINT in doing a gluten challenge and endoscopy. Nothing will be gained by that, and much can be lost. But an endoscopy is still a good idea, to see what is going on. You may have refractory sprue. An endoscopy may still show blunted or nonexistent...
  6. Ursa Major
    Just beware that most doctors have either never heard of Enterolab, or will discredit it. New discoveries usually take a while before they are accepted.
  7. Ursa Major
    What are your other food intolerances?
  8. Ursa Major
    Here is a link with a very interesting article. Open Original Shared Link Here is a quote from the very bottom of this article:
  9. Ursa Major
    My kids were resistant at first, too. It took nearly two years after I self-diagnosed before at least my two oldest daughters saw the light. Now my oldest daughter and her five kids are gluten-free (her husband will eat gluten at work, he refuses to be 100% gluten-free), and my second-oldest daughter and her babies (19 months and 6 months) are gluten-free...
  10. Ursa Major
    Speech delay seems to be a common celiac disease symptom in young children, as are delays in many other areas.
  11. Ursa Major
    With your husband having celiac disease, and you being gluten sensitive, it would surprise me if your daughter's symptoms wouldn't be caused by a gluten intolerance. Those celiac disease blood tests are notoriously unreliable, I wouldn't put too much confidence in them. My daughter's blood work was negative, too, but I had her tested with Open Original...
  12. Ursa Major
    Hi Britt, and welcome to our forums. I suspect that the meat had been marinaded with a marinade containing soy sauce, a very common thing to do (and the waiter may not have thought of the soy sauce, and even the cook may not think of wheat in soy sauce).
  13. Ursa Major
    Ha, I used to have to find bras in size 38 A, because I have a big ribcage (now it is 44 B, which is insanely hard to find). You are better off not wearing one with an A. That rules out one cause for not draining your lymph nodes. A lymph node massage is a great idea. It definitely can't hurt to do that.
  14. Ursa Major
    Oh, I am sure they don't. They also are suppressing valid cancer treatments and are wasting the money people give them on so-called treatments that destroy, rather than heal. Read the book "Dressed to Kill", and you may change your mind. Cancer is big business, and I don't trust the cancer society even the smallest little bit, any more than I trust the...
  15. Ursa Major
    Good for you. Many people get very quick relief from DH with the gluten-free diet. But be aware that it will take one to two years (sometimes less, sometimes more) for the gliadin deposits under your skin to be gone. They are what causes the rash. So, it is possible to get outbreaks of DH up to two years after eliminating gluten. But I hear that usually...
  16. Ursa Major
    Do you wear underwire bras (or tight-fitting ones) more than ten hours a day? I've read very convincing research that ties bras to breast cancer. The reason is that it cuts off your lymph drainage, trapping the junk that should be drained into your kidneys in your breasts. The breast cancer rate of women foolish enough to wear a bra to bed is sky high...
  17. Ursa Major
    I completely agree with gfp. Any doctor who tells you to purposely destroy your villi for a test should be sued. Because this 'gluten challenge' could be causing irreparable damage to your neurological system, your digestive system, and glands like your thyroid or adrenal glands. Not to mention possibly causing severe depression and other emotional problems...
  18. Ursa Major
    Buckwheat is a misnomer, as it has nothing to do with wheat whatsoever. It is not a grain, but a seed, and is related to the rhubarb family. I love cream of buckwheat myself. I add a little more water, and cook it with some ground hazelnuts and a cut-up apple. I then eat it with maple syrup and rice milk. Delicious, soothing, and filling.
  19. Ursa Major
    I am sorry you are feeling so bad. Unfortunately, your doctor is utterly wrong. One week of eating gluten is almost 100% guaranteed to give you a false negative test result, even if you have celiac disease. You'd need to eat lots of gluten for at least three to six months to even have a chance at an accurate diagnosis. At this point your only chance...
  20. Ursa Major
    Wildcat, if you've been off gluten for about a year, there is no way that eating wheat for two weeks will be enough for an accurate diagnosis. It is more like at least three to six months of eating about four slices of bread every day. And even then you might still get a false negative. You see, your intestines have healed by now. In order to get positive...
  21. Ursa Major
    Stacie, your baby sounds very ill. Unless the biopsy can be done within a week, I wouldn't bother with it. Those blood tests are very unreliable in young children and don't necessarily mean much. If it was my child, I would skip the biopsy and start a strict, 100% gluten-free diet immediately. At her age, the diet is the best test, not the blood work,...
  22. Ursa Major
    I am afraid that since you've been pretty much gluten-free for three months by the time you see the gastro, a biopsy will be useless. Because by then your villi will likely have healed enough to get a false negative. He'll want you to go back to eating gluten for about three months (which still may not be enough for accurate results). I really don't think...
  23. Ursa Major
    I am afraid that since gluten isn't a germ and therefore can't be killed, disinfectant spray does nothing to get rid of it. Washing the counter with a clean, soapy cloth will do the job, though. No, putting wooden anything (cutting boards, too) will not get rid of gluten in crevices. You need to have your own spoons, that will be used only for cooking...
  24. Ursa Major
    Are you all getting enough saturated fat? Coconut oil (non-hydrogenated, of course) is extremely healthy saturated fat, that might help you with those hunger pains. My oldest daughter started losing weight when she started on the gluten-free diet a few months ago. She is 5'6", and went down to 113 pounds. And was always hungry, too. I advised her to use...
  25. Ursa Major
    Yes, absolutely. Lard is what traditionally people used for pie crusts. They roll out without breaking. The same goes for cookies. Really, lard is bacon fat, same thing. I always buy a large bucket of Tenderflake non-hydrogenated lard. It is heat stable, too. I use it for all my cooking and baking, since I can't tolerate anything else. Every grocery...
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