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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    That is great! I hope the results of this study become common knowledge soon, and will be accepted over here as well (could take many years, unfortunately).
  2. Ursa Major
    It looks like you may have a casein intolerance (not allergy), which is similar to a gluten intolerance and is mediated by the immune system as well. Meaning that you should try eliminating all dairy (including cheese, yogourt, butter, whey as well as milk). If it was just a lactose intolerance you would be fine using lactaid pills or drinking lactaid...
  3. Ursa Major
    I had to self-diagnose after 50 years of misery. A bowel cleanse I tried to help me feel better in May 2005 put me over the edge, and I had watery diarrhea for six months, being extremely ill (before that I had on and off D and C my whole life, along with gas and bloating, joint pains, brain fog and other symptoms). My doctor ordered all kinds of tests, which...
  4. Ursa Major
    Even though the most common cause of blunted villi is celiac disease, there are other causes. Here is a quote from one website: Open Original Shared Link Here is another quote: Open Original Shared Link I've also found some sites that say that a Cryptosporidium infection will cause blunted villi.
  5. Ursa Major
    Don't rely on your teacher to make sure you're safe. Ask your teacher for the information necessary to contact the people responsible for your food, and then see if you are able to arrange for your food to be safe for you.
  6. Ursa Major
    Good grief, your doctor is pretty clueless! If you've been diagnosed with celiac disease, what the heck is the point of re-checking if you really have it? And in fact, if you want to get a positive biopsy (there is no point, though), you'd have to eat about four slices a day for three to six months (not three weeks) to even have a remote chance of getting...
  7. Ursa Major
    It sounds to me like you may be intolerant to lectins and salicylates, like me (gluten is a lectin). Here are a couple of links to find out about those. These sites have been immensely helpful to me. Open Original Shared Link Open Original Shared Link
  8. Ursa Major
    Yes, unfortunately, that amount was enough to make you sick.
  9. Ursa Major
    Oh, yes, that sounds like a great many people here. All of your symptoms are quite common with celiac disease.
  10. Ursa Major
    Ravenwoodglass, I am intolerant to salicylates (Aspirin being 100% salicylic acid and being the worst offender), meaning that all fruits except for pears, and most vegetables are out for me. Including the ones that have those enzymes. I also can't use Immodium, it makes my diarrhea worse, because I am intolerant to it. What I found works for a diarrhea...
  11. Ursa Major
    I will get severe reflux from many things, but eggs, tomatoes and legumes (besides gluten grains, of course) are especially bad. It doesn't have to be an allergy. It can be an intolerance, which won't show up on allergy testing. Also, she may have delayed reactions (I do), which won't show up with any testing, and have to be figured out with an elimination...
  12. Ursa Major
    Ken, I am glad I am able to put some of this into perspective for you. Most people think that just eliminating gluten will easily get them well. They don't realize that your intestines are very badly damaged, and need to be treated with tenderness to heal. Here is an analogy that came to me today, that you guys might appreciate, concerning endoscopic biopsies...
  13. Ursa Major
    Joe, your doctor didn't know what he was talking about. A positive biopsy will confirm celiac disease, but a negative one can't rule it out. The reason is, that there are so many false negatives with celiac disease. Your small intestine is 22 feet long, and usually villi damage is patchy. Even with 10 biopsies taken (which I doubt your GI did), it is still...
  14. Ursa Major
    That is fabulous! And no, you are definitely not imagining it. I agree, that there is no need whatsoever for a gluten challenge. My oldest grandson (5, he also has a twin sister ) had joint and muscle pains, was very, very emotional (would cry for hours over things his siblings would just shrug off) and was so thin that he looked like he was starving...
  15. Ursa Major
    How do you know the difference between food approved by the FDA and the USDA?
  16. Ursa Major
    Okay, I see your point now. It sounds like a good idea then to test Travis with Enterolab first. Make sure you get their whole package, so you know what his genes are as well, and to see if he needs to be dairy free as well (very likely, at least for a few months) to get better. If he has the 'official' celiac disease genes, official testing will be useful...
  17. Ursa Major
    Yes, there is absolutely the possibility of a false negative with DH. Many dermatologists haven't got a clue on how to do the test right, and mess it up, only then to declare it was negative. The skin biopsy needs to be taken right BESIDE an active blistery outbreak. If it is taken right through the outbreak it will be negative, even if it is DH. Also...
  18. Ursa Major
    In your case, I'd go for official testing before I'd go for Enterolab, for the very reasons you are worried about it. Only if the bloodwork and biopsy are negative would I go with Enterolab. I do believe Enterolab is accurate. And no, not all people tested by them get a positive test result. I had my youngest daughter tested by them (she had negative blood...
  19. Ursa Major
    Since they mean to treat you on your anniversary, they would want you to enjoy yourself and feel safe, I hope. If they take you there and realize that you can't really eat anything, they would feel bad about it. I think it would be much better to let them know that you would love to go out with them, but it isn't safe for you to eat at this particular...
  20. Ursa Major
    I don't believe coffee is a problem, unless you drink more than two cups a day. I heard that smoking moderately helps with celiac disease symptoms! Still, it is a good idea to stop. If you plan on having official celiac disease testing done, you can't go on a gluten-free diet now. Because you would get false negatives if you have it. There is really no...
  21. Ursa Major
    Hi Valeria, and welcome to our boards. You can have DH outbreaks for up to two years after going gluten-free (usually not as severe any more, though, as when still on gluten). The reason is that the gliadin deposits under the skin that cause DH take that long to be gone. I find that I get stiff fingers and arthritis type symptoms not just from gluten...
  22. Ursa Major
    With all those fabulous gluten-free cookie recipes, there is no need to even think of having wheat around. Last year I baked a valentine's day cake for my husband, being VERY careful to slowly mix the batter, so nothing got in the air. And I certainly didn't eat any. Still, I was sick for three days! After that, wheat flour was completely banned from this...
  23. Ursa Major
    Hi, and welcome to these boards. Your childhood symptoms sound almost exactly the same as mine. Plus awful backaches. The doctors tried for a little while to figure it out and then gave up on me. They claimed I had a low pain threshold, and neuralgies and other copouts, rather than saying they didn't know and would keep looking. The awful pain in your...
  24. Ursa Major
    This is a very powerful drug. One recommendation is, that men who take it shouldn't father a child for at least six months after finishing the drug (on page two when following the link below). Open Original Shared Link I think you need to call the doctor tomorrow and let them know about the side effects. He may have to take something else instead.
  25. Ursa Major
    The first thing that comes to mind is Dove. Most, if not all, of their products are gluten-free. Since I've been using their hair care products, my scalp has stopped itching (it was driving me out of my mind, it was so bad). I am using a different lotion (Lame Advertisement Renew lotion, which has to be ordered online), but I bet the Dove lotion would...
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