Jump to content

Ursa Major

Advanced Members
 View Profile  See their activity

  • Posts

    4,191

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Ursa Major

  1. Ursa Major
    With your mother having celiac disease (and yes, she still has it, no doubt about that) it is very likely that your daughter has it too (and possibly you as well). If it is celiac disease, then almost gluten free is pretty much as bad as not bothering at all. If you don't want to wait to put her on the gluten-free diet, and since the official testing is...
  2. Ursa Major
    Angie, eliminating things from your diet IS a form of testing! If Annika has a rash, and it goes away when you eliminate a food, that should be enough evidence that she can't tolerate it. Do you eat/drink dairy? If yes, that could be the problem. Dairy is well known for causing ear infections and rashes in babies and toddlers (as well as everyone else...
  3. Ursa Major
    Actually, many celiac researchers are saying now that about 80% of the North American population is gluten intolerant. And that 33% of the population has celiac disease, with most being undiagnosed. Meaning that to the majority of the population, gluten is poison. Most just don't know it, and many wouldn't want to know, either, because they like gluteny...
  4. Ursa Major
    The celiac disease testing (both blood work and biopsy) is extremely unreliable in children under six. In children as young as Aidan trying the diet is the best and most reliable test. He got better without wheat (it would be better to make sure it is rye and barley as well, because those also contain gluten). He gets sick again when reintroducing it. That...
  5. Ursa Major
    The protein part of various foods (not only plant foods) are called 'lectins'. And it is possible to be intolerant to lectins in general, which will include gluten (I have that problem). Open Original Shared Link
  6. Ursa Major
    Ken, I found that a homeopathic remedy called sepia helps with the stomach pain when glutened. I let about six little pellets dissolve under the tongue, and repeat every two to three hours until the pain stays away. Also, for heartburn/reflux from eating something wrong, I find that the homeopathic remedy 'nux vomica' (also called colubrina) works very...
  7. Ursa Major
    Yes, there is a very real danger of developing intolerances to foods you eat every single day. It is better to have a four-day rotation diet. I used to eat a banana every day, until I developed an allergy to them. I was unable to eat bananas for nearly two years. Now I can eat one once or twice a week (max) without a problem.
  8. Ursa Major
    I expect that your daughter had a false negative on her blood test, due to not eating enough gluten. If the surgeon saw changes consistent with celiac disease when taking out her appendix, I suspect that a biopsy might have been positive. The blood tests aren't that accurate, and many people have had negative results, while still having villi damage. ...
  9. Ursa Major
    The problem with dairy, soy and corn is, that usually those are intolerances, and the adverse effects aren't immediately apparent. If you have a delayed reaction, it will not show up on allergy testing. Those tests are usually pretty good for environmental allergies, though. So, what I am saying is, that even if you have a problem with those foods,...
  10. Ursa Major
    Unfortunately, you may not have eliminated one or more of the triggers yet. I also start wheezing when eating rice and eggs. And my asthma is also triggered by environmental allergies. I am unable to have any pets because of that, and can't be near people who smoke.
  11. Ursa Major
    I started having asthma about the same time I started having celiac disease symptoms, at the age of three. It got better with age for the most part. But now, when I am glutened, I also start wheezing and get asthma. Normally I only get it when near tobacco smoke, dogs or cats, or with exertion. It has been shown that in many cases that celiac disease can...
  12. Ursa Major
    Oops, double post
  13. Ursa Major
    Only 250? Anything under 200 is dangerous (contrary to what most doctors think). Putting somebody on statins for a cholesterol value of 250 is ridiculous (in fact, statins are a terrible idea, no matter what, and are of no value to anybody, except for the drug companies). By the way, cholesterol rich foods will NOT cause high cholesterol. In fact, it...
  14. Ursa Major
    I think you are right, that now her symptoms are milder, because the damage has healed. I expect she won't eat when glutened, because it hurts her tummy. You may just have to be more careful about cross contamination and other ways of getting glutened. Like buying gluten-free cat food. It would be better for your cat, and if your daughter eats cat food now...
  15. Ursa Major
    Also, you would do well to wash all of his bedding in hot water and dry them in the dryer once a week, to keep the dust mites out. Another thing that is advisable would be to make sure he has no curtains or rugs in his room, and to limit stuffed animals (and make sure the ones he's got can be washed regularly). A dust and dust mite allergy will NOT cause...
  16. Ursa Major
    Lisa, it has been shown from various studies (I can find you examples if you want) that it is desirable for older women to have a higher level of cholesterol. First of all, our bodies cannot function without cholesterol. And secondly, women with higher cholesterol levels appear to live much longer than women with low levels (that is not true for men, curiously...
  17. Ursa Major
    Well, you have three options now. 1) Keep eating gluten, getting sicker, until your villi are flat and your biopsy comes out positive. 2) Stop eating gluten and feel better, and the heck with tests and doctors. 3) Do Open Original Shared Link testing, so you will know for sure if gluten is your problem, and to see what your genes are. Have you tried the...
  18. Ursa Major
    Hi Cheryl, and welcome to these boards. Since you have been gluten-free for five years, the celiac disease should not be a problem with pregnancy at all. As long as you are careful about avoiding gluten, celiac disease is not an issue. As for the other problems, you've had great advice, I believe.
  19. Ursa Major
    I wholeheartedly agree that your GI is a moron. I think EVERYBODY with celiac disease has at least some neuro symptoms, probably all of us. And with some, they are the primary symptoms. They were for me for fifty years, before I started having terrible digestive symptoms (even though I had milder ones all my life, too). I was told many times it is all...
  20. Ursa Major
    It is terribly unhealthy, but no, it does not contain gluten.
  21. Ursa Major
    Getting glutened once in a while is unfortunately inevitable. You really can't worry about that. Just be as careful as possible without getting paranoid. I am sure the baby will be just fine.
  22. Ursa Major
    Soy is highly toxic. The only method that takes out the toxins and renders it edible is fermenting it. And I mean slowly, over the course of years, which is the ancient Asian method of doing it. Soy milk is not made from fermented soy, but is rather a waste product. Also, soy is high in phyto-estrogens. It has been shown to bring on early maturation in...
  23. Ursa Major
    Besides being one of the most common allergens (and you are right, many people with celiac disease can't tolerate soy or dairy, either) it is not only devoid of nutrition, but one of the worst things to give a young child. If you think she needs milk of some kind (which she doesn't), see if she likes rice milk (not Rice Dream, it is not gluten-free). We...
  24. Ursa Major
    Your husband's primary care doc is wrong. By the time celiac disease testing of the blood is positive, the villi are usually destroyed and have caused leaky gut, which is why the antibodies are in the blood. Since the damage is in the intestines, it makes perfect sense that the antibodies would be detected in stool long before they can be detected in blood...
  25. Ursa Major
    Since celiac disease is not an allergy, allergy testing would be quite useless if you want to find out if your son has celiac disease. To start out with, your regular family doctor or pediatrician can order the celiac blood panel. If that comes back positive, he should be seen by a GI. Just be aware that at his age those tests are very unreliable. The...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.