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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    Hi Connie, I am in Ontario, too (about 50 miles north of Toronto). I had the vega test done about five years ago. It was very accurate, but missed the most important intolerance, namely gluten. I guess that is because at the time I had a delayed reaction to it, and only got really ill three years later, with chronic diarrhea. Then it showed an...
  2. Ursa Major
    My daughter had scoliosis, due to one leg being shorter than the other. She goes to the chiropractor once a week, who has over the course of about four years pretty much been able to straighten out her spine. You may want to start taking your daughter to the chiropractor, he may be able to reverse the scoliosis.
  3. Ursa Major
    You might want to have something on hand....... like some gluten-free pizza in the freezer that you can just heat up, or some special cookies, or something else you really, really like, that you can grab and eat when those moments come. That way you won't feel deprived, and you feel that you don't need gluten to enjoy food!
  4. Ursa Major
    I believe you may be detoxifying through your skin, now that you have stopped eating a food that is poison to you. Hopefully it will clear up soon.
  5. Ursa Major
    This is the problem with doing this: You have been gluten-free for two whole years. If your villi were damaged, they have long healed. This GI wants you to purposely destroy your villi again, just to confirm that you can't tolerate gluten. Some people here were told to do the gluten challenge, and it nearly killed them. It could trigger other autoimmune...
  6. Ursa Major
    How could changing their shampoo endanger them further? What sense does that make? On the other hand, I agree that it is time to find another doctor who is willing to find out why these children are not responding to a gluten-free diet. Usually people only get refractory sprue after having had undiagnosed celiac disease for a very long time, and therefore...
  7. Ursa Major
    Your title confused me, a gluten challenge is usually if you give somebody gluten again who has been off it for a while. Well, often symptoms take more than a week to clear up on a gluten-free diet. I believe in order to give it an honest chance, a good trial period would be a month, not a week, to see if it makes a significant difference. Especially with...
  8. Ursa Major
    Now that is an interesting thought! After all, Dr. Fine IS a doctor. Most doctors are so set in their old ways, that they won't consider newer ones to be valid. It's like my doctor, telling me "That is not what I've learned in medical school!" When, 30 years ago? So what she didn't learn it when she went to medical school, things change! Enterolab's...
  9. Ursa Major
    Hi, and welcome to these boards. Yes, all your symptoms and what you describe sure sounds like classic celiac disease. Of course your blood work was negative after being three months gluten-free. In order to be positive it should have been done before you eliminated gluten from your diet. Anyway, it is obvious that you are at least gluten intolerant. You...
  10. Ursa Major
    Well, for the most part I just eat meat, some vegetables, the occasional banana (if I eat them too often I get oral allergy syndrome), peeled pears, peeled golden delicious apples, salads, nuts, fish. Sometimes I bake with buckwheat flour, and if I feel like it I eat cream of buckwheat for breakfast (I am not a cereal person, plus I can't eat too many starches...
  11. Ursa Major
    I've gotten swelling and hives from gluten before. The bright red cheeks could also mean an allergic reaction (as can the hives and swelling). Watch her carefully, if she seems to develop other problems, like not being able to breathe, take her to the ER immediately!
  12. Ursa Major
    Maybe there is still gluten in their diet somewhere. That is usually why kids won't heal. Have you replaced all their personal care products (bubble bath, shampoo, conditioner, lotion, soap etc.) with gluten-free ones? Did you get rid of play-doh and get gluten-free stuff? Kids WILL put their hands in their mouth and get glutened from things like that...
  13. Ursa Major
    Your doctor should have done the blood test to find out if it is celiac disease, not just a wheat allergy. Some people here have celiac disease AND a wheat allergy. Most have a gluten intolerance (which celiac disease is, too), which is not the same as an allergy. You might want to eliminate all gluten (rye and barley, too), not just wheat. Because if...
  14. Ursa Major
    Nobody was suggesting that you are purposely trying to harm your daughter. However, through putting her back on gluten you ARE destroying her villi again, making her sick. Which could cause permanent damage to her. It is through the ignorance of your pediatrician who told you to try her on the diet before testing that you even have this dilemma. Have...
  15. Ursa Major
    He might have developed another intolerance, possibly to dairy and/or soy. Or something else altogether. I get symptoms like that from legumes (not really green beans, but from kidney beans especially), eggs and rice. And from nightshades vegetables. Especially potatoes will cause stomach and bowel problems, including reflux. There is a reason for the...
  16. Ursa Major
    I don't think I had any withdrawal symptoms. But my youngest daughter sure did. She was awfully nasty and moody for about two weeks after going off gluten. She was fine after that. Of course, I was so sick for months before giving up gluten that I was hardly eating any before going gluten-free. And my daughter was eating it many times a day - in fact,...
  17. Ursa Major
    Allergy testing won't show intolerances. You can be intolerant to dairy in spite of it not showing up on allergy testing. The problem with dairy is, that if your villi are damaged, they can't produce the enzyme lactase which is needed to digest dairy. That is why it is recommended that everybody who starts a gluten-free diet eliminate dairy for at least...
  18. Ursa Major
    What prompted their doctor to diagnose them with refractory sprue? What are their symptoms? How long have they had celiac disease? I am asking these questions because it is exceedingly rare for children not to heal very quickly after going gluten-free. They might still have symptoms because of other intolerances! Dairy and soy can cause villi damage as...
  19. Ursa Major
    You are right to suggest testing for celiac disease. Since your oncologist is unreceptive to the idea, just go to your regular family doctor and ask him/her to order the blood tests for you.
  20. Ursa Major
    I am using the Dove pro-age products (for people over 50) and love them. My youngest daughter uses Dove as well, and did by choice before knowing about being gluten intolerant, because their shampoos, conditioners and gels are great. The same goes for the soap.
  21. Ursa Major
    I will often eat left over supper (yes, folks, that is a GREAT breakfast food - who says it is the law to eat only officially declared breakfast foods like cereals for breakfast?). Sometimes I cook cream of buckwheat from Bob's Red Mill, and for added nutrition and flavour I throw a cut-up apple in.
  22. Ursa Major
    Liz, there is lots of evidence that celiac disease can cause weight gain. Some scientists estimate that at least 40% of people with celiac disease gain weight, rather than losing it. Of course, those are the people that are even more underdiagnosed than the ones that lose weight. The following is a paragraph taken from an article (I will provide the...
  23. Ursa Major
    Madwick, if you were diagnosed by biopsy, that means that the tips of your villi (at least) are gone. However, those tips are what should be producing the lactase that allows you to digest dairy! So, if you now cut out gluten but added dairy back in, the dairy will stop you from healing. You will need to give up all dairy for a few months at least to...
  24. Ursa Major
    Hi, and welcome to these boards. You appear to have one of the extremely rare smart doctors, who understands about gluten intolerance. Gluten intolerance may or may not be your problem. At this point the only way to find out is to try the gluten-free diet, your doctor is right. What have you got to lose? If you decide to give the gluten-free diet a...
  25. Ursa Major
    If that shared colander is a plastic colander, then you can't get it cleaned of gluten. You would get glutened every time you use it (this doesn't apply if it is a metal one). You may have a problem with other foods. If you have replaced all your gluteny foods with their gluten-free equals, you may want to reconsider. Your damaged intestines may not be...
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