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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    Hi Jodi, and welcome here. One piece of advice is, to eliminate all dairy and soy for at least three to six months, to allow your insides to heal. The dairy especially could be causing the continuing bloating. Many people here can't tolerate dairy even after several months, but others are able to reintroduce it eventually. You'll have to figure it out...
  2. Ursa Major
    Hi Camy, and welcome to these boards. You've had some rough years, I am glad you figured out what the problem is. Yes, you should tell your doctors that you finally figured out that gluten is causing you to be ill. And that you have no intentions whatsoever of eating gluten again, not for any testing or any other reason. Because you like feeling well...
  3. Ursa Major
    I go to McDonald's (here in Canada) about twice a month. I usually get the warm salad, either the Caesar salad or the ranch salad with the grilled chicken (of course, the crunchy chicken is breaded), and sometimes fries. In fact, I ate the same thing in Germany! I've never been sick so far eating the salad. And neither has my daughter, who started eating...
  4. Ursa Major
    Hi Lisa, I am sure glad you made it through the night! Seriously, you sound like you need some help getting your asthma under control. I ordered that book last night and I urge you to get it as well. Those exercises will over time make your asthma medications practically obsolete! I can pretty much guarantee that they will help a lot. I find that...
  5. Ursa Major
    No, I would wait to see if YOU would have long term effects first. Seriously, because of being undiagnosed for so long I have irreversible damage already, I have no intentions of being a guinea pig and maybe die of cancer like my mother as a result.
  6. Ursa Major
    You are right, it is a royal pain in the neck. That is why naturally gluten-free foods that are as unprocessed as possible are the safest foods for us. You may want to use pure maple syrup and/or apple sauce on your pancakes to be safe. I hope you and your son will feel better soon.
  7. Ursa Major
    Apparently your ped is very ignorant of celiac disease (no surprise here, most are). MOST children with celiac disease are NOT failure to thrive and don't look like they have celiac disease at all. Their tests are often negative because they haven't been around long enough for the gluten to destroy the villi yet to the point of being deathly ill and testing...
  8. Ursa Major
    Lisa, how are you now? I hope you got better or went to the ER (even though the ER is often not much help, at least being in a hospital might be safer than at home when you can't breathe).
  9. Ursa Major
    Well, we can't delete it, but I set it to invisible until Scott deletes it. The reason you think that topics won't show up is, that they stay at the very end of a board until a moderator reads it, approves it and pins it. Which then puts it at the very front. You can always find new posts (pinned or not) by clicking on 'View New Posts' above. The...
  10. Ursa Major
    Lisa, it is 3:22 AM here, I stayed up to help you. But I am going to bed now. So, posting won't help, I won't be around, and there is a good chance others won't be, either. Do you have any peppermint oil around, or what is that menthol stuff you put on your chest with congestion (can't think of the name)? Put some of that into boiling water, put a towel...
  11. Ursa Major
    salbutamol is the ingredient, the brand name is ventolin (I just get the generic one, it is cheaper and the same thing). That isn't good, that it won't help. You can ask your doctor to prescribe an epi-pen. In my opinion all asthmatics should have one for emergencies (not even doctors know that, of course, they aren't taught to prescribe them, because...
  12. Ursa Major
    Do you not have a salbutamol inhaler for emergency situations? Also, if you have an epi-pen, use it if it gets really bad. It is a little known fact that epinephrine stops an asthma attack cold (that is what they use in Germany if somebody has a bad asthma attack - nobody dies of asthma attacks there!). Do you have benadryl around? See if it helps, it...
  13. Ursa Major
    Sorry about coming across as abrasive today, I have family issues happening and I am in a crappy mood. I misinterpreted your saying that you have older children as in, that you know more than me, since you have older kids. Obviously, this lady's doctor doesn't know much about celiac disease, if he thinks that being back on gluten for four weeks after...
  14. Ursa Major
    I completely understand the dilemma. Here most doctors won't accept Enterolab either. On the other hand, they don't know much about celiac disease anyway, so why trust them to begin with? I had my daughter diagnosed by Enterolab after she had a negative blood test. She is now gluten-free and so much healthier, no more diarrhea/ constipation or stomach aches...
  15. Ursa Major
    Dove products are gluten-free, that is what I am using.
  16. Ursa Major
    Enterolab tests world wide. The only problem would be that you would have to send the samples back by overnight courier at your own cost, which would undoubtedly be very expensive. It already cost me over $80.00 from Canada, and it would be more from overseas. Yes, gluten WILL cause mucous in stools! Of course, so can dairy. As said before, it is highly...
  17. Ursa Major
    Almost EVERYBODY in North America is vitamin D deficient. Unless you are able to be out in the sun with almost no clothes on for 20 minutes a day during the time the sun is high in the sky (which only works in he summer, and only for white people), you won't make enough vitamin D yourself. If you have dark skin you can NEVER make enough vitamin D unless you...
  18. Ursa Major
    What harm can it do? Oh, only possibly do irreversible damage (plus trigger other autoimmune diseases, like type 1 diabetes), I guess that won't matter, right? If it comes to who has more experience raising kids, I have four grown kids, ages 28, 26, 24, 22, and a 16 year old, as well as eight grandchildren (a ninth being due any moment). Apparently, there...
  19. Ursa Major
    Sometimes it takes a while for symptoms to return, sometimes they are delayed, and sometimes you will have different symptoms altogether (like tantrums, moodiness etc., rather than digestive problems). After being gluten-free for six weeks, being back on gluten for four weeks might still produce false negatives. Kids heal fast and get better very quickly...
  20. Ursa Major
    Oh yum! Where do you get The El Peto mix? I've never seen it before (or anything else from El Peto). I would love to try it!
  21. Ursa Major
    I forgot to mention that for about six months I was unable to eat any starches or grains at all. And I could not digest anything raw, including ordinary salad or fruit. So, for six months all my fruits or vegetables had to be well cooked, or I would have horrible stomach cramps and diarrhea within minutes, with everything coming back out undigested. After...
  22. Ursa Major
    You may let her know that every time she uses your butter, she has to buy you new butter, as you now can't use it any more. Keep track of how much she owes you as a result of her carelessness. Since both of you probably don't have a lot of money, that might help. Also, make rules. Dedicate parts of the kitchen as gluten-free only, and make her stick to...
  23. Ursa Major
    Actually, you are right. A lot of vitamin E is derived from wheat germ oil. And often they use soy as well. If you suspect your vitamin E is a problem, you need to check with the manufacturer to find out what it is derived from.
  24. Ursa Major
    I second the dairy, but say, add soy to that. Those two often stop people from healing, even when on a 100% gluten-free diet.
  25. Ursa Major
    Lisa, you are putting yourself at risk when baking with gluten flours. Even if you wash your hands and scrub under your fingernails after baking, there WILL be flour in the air, which you will breathe in. I baked with gluten flour just once after finding out that I can't have gluten. That was two years ago, when I baked a cake for my husband on Valentines...
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