Jump to content

Ursa Major

Advanced Members
 View Profile  See their activity

  • Posts

    4,191

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Ursa Major

  1. Ursa Major
    Why won't your GP order the Celiac panel blood test himself? That is usually the first step, and then, if you feel it necessary, you see a GI to have the endoscopy and biopsy to confirm celiac disease. Allergists have nothing to do with it, which just shows your doctor's ignorance on the matter. And you definitely don't want to start eating gluten-free before...
  2. Ursa Major
    Low blood pressure is a common adrenal problem, specifically, it can indicate low aldosterone. Some of your numbers are dangerously low, and if nurses/doctors are happy about those, that just indicates how very ignorant they are. Normal BP is for the upper number to be in between 110 to 130, and the lower to be in between 70 and 90. Anything below 100...
  3. Ursa Major
    Since tofu is 100% soy, you obviously need to stay away from it!
  4. Ursa Major
    Okay, here goes: If you have thyroid antibodies, you have a problem with your thyroid and need to take medication for that. Any value over 3 (and it is now being revised to being over 2) for the TSH is too high and indicates a problem. The brittle hair and some of your symptoms are definitely thyroid related. Lots of people with celiac disease have other...
  5. Ursa Major

    ARCHIVED Good News

    Ursa Major replied to a topic in Coping with Celiac Disease

    That's fabulous, having a friend like her can make all the difference.
  6. Ursa Major
    That is truly awful! He would only deteriorate in a nursing home and doesn't belong there. You are to be applauded for wanting him to come and live with you, I hope it all works out. You may need some help, though, make sure you plan that in.
  7. Ursa Major
    I think if you tell the other girls what you can and cannot eat, they will help you remember and yell "NO!" if you are about to eat the wrong thing. And make sure you have lots of yummy things to eat for yourself, so you won't be tempted. About avoiding cc: I would make sure your snacks are not at all near the other kid's snacks, and that you have...
  8. Ursa Major
    No way, you weren't too controlling at all! I agree with the two guys here, you did what you needed to do to keep your husband safe. Which really shouldn't be necessary with his own parents, who should care more and know better. Would they have been happier if they would have caused him to be sick and break out in DH again? In fact, they were incredibly...
  9. Ursa Major
    We had a kid with a peanut allergy at our church. Everybody who was entering the nursery had to wash their hands before they could get in. Since all the mothers/fathers, kids, caregivers likely have gluten on their hands and /or faces from breakfast on Sunday morning, or supper on Wednesdays, that is likely how Ali gets glutened. Why don't you suggest...
  10. Ursa Major
    Ali, I have no idea who called the police. The problem is, that when you say in a forum that you are thinking of committing suicide, people will take it seriously, and well they should. If then somebody knows where you live, they might feel they have to do something, so they won't be guilty of ignoring your plea for help, in case you follow through with your...
  11. Ursa Major
    I agree with Hathor. If gluten makes you that ill, stop eating it. You know it makes you sick, no tests needed to figure that out. And if your primary care doctor refuses to talk about your digestive system, it is time to find a new doctor. Besides, why hasn't your primary care doctor ordered the Celiac panel to begin with? That is what is usually done...
  12. Ursa Major
    To be on the safe side, you may consider going gluten-free while pregnant. That is what my daughter did, because the baby has two grandmothers with celiac disease. She fed her older child (who is now 16 months old) gluten foods for way too long, though. That child NEVER had a solid bowel movement after being weaned and eating solids, until she took her...
  13. Ursa Major
    Yeah, we've had crazy warm weather for this time of year. Last week we had one day when it was 36 degrees Celsius (96.8 degrees Fahrenheit), how crazy is that! But the leaves are turning here, too, and are beautiful farther north of us.
  14. Ursa Major
    I get a similar pain when glutened. I find that taking a homepathic remedy called Sepia really helps, you find it in health food stores.
  15. Ursa Major
    It is a fact that the blood test is very unreliable in young children. All your kids have the genes for celiac disease, and it sounds like they all have symptoms. Personally, if I was you, I would make my whole house gluten-free. You might be surprised at the symptoms clearing up that you didn't even know were there in all of them. By the time the blood...
  16. Ursa Major
    Here is a link that leads to many other links with tons of info on soy. Open Original Shared Link The bottom line is, that the only soy that is healthy (for people who aren't intolerant) is traditionally fermented soy (which you can't even get in North America), because the fermenting process (which takes several years) gets rid of all the toxins that...
  17. Ursa Major
    The reason you are doing so well so quickly is simply, that you have stopped eating the foods that were making you sick. The Benadryl has nothing whatsoever to do with it. I was sick for fifty years, and severely ill with chronic, watery diarrhea, horrendous back pain and unbearable joint and muscle pains the last six or seven months before figuring out...
  18. Ursa Major
    Joni, are you sure that the fish oil pills your husband is taking contain any vitamin D at all? Most fish oil doesn't, that is why cod liver oil is recommended for vitamin D. Maybe he is supposed to take them to get omega 3 fatty acids, which are known to really help with arthritis. Of course, so does the vitamin D. The combination would be ideal. Edit...
  19. Ursa Major
    Well, the easiest and cheapest way to test that is to stop the soy. And make him 100% dairy free, and then wait to see if he improves. If he does, you can see which one of those is the culprit (probably both I suspect) by trying them one at a time a couple of weeks apart, to see if he will react. If you feel he needs some kind of milk (which in reality...
  20. Ursa Major
    That supplement looks great. But it is so much more expensive than just plain old cod liver oil! My level was 24 when it was checked (and my doctor thought it was 'normal' and no problem, no surprise here), but I started taking two tablespoons of cod liver oil a day, and when my levels were checked again a year later, it had gone up to 150 (which was a little...
  21. Ursa Major
    Do you give your son dairy and/or soy? Both of those can also cause blunted villi, and symptoms similar to celiac disease. So can other things. Rice and eggs will give me symptoms that appear to be celiac disease symptoms, but are not. You may have to look into other intolerances on top of a gluten intolerance.
  22. Ursa Major
    I tried an online translator, and it says the word is "zah
  23. Ursa Major
    The absolut best way of getting vitamin D in the winter is through taking cod liver oil. I take the Carlson brand, which actually tastes good, not gross. When my vitamin D level was low two years ago I took the cod liver oil, and it was up to optimal within a year. Plus, the cod liver oil also gives you the essential omega 3 fatty acids as well as vitamin...
  24. Ursa Major
    That sounds like a sensible solution!
  25. Ursa Major
    I just found this article in Open Original Shared Link, and thought it relevant in light of so many of us having a vitamin D deficiency, and taking the inferior prescription vitamin D. Here is the link to the article: Open Original Shared Link
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.