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Ursa Major

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Everything posted by Ursa Major

  1. Ursa Major
    Patti, you overlooked the 'not' here. But it would be good to know if the full celiac disease panel was run, that is why it is essential to get a copy of the results for yourself, smousie. Unless the full panel was run, which is what Patti posted it is really questionable if you have celiac disease. It is weird, most doctors refuse to diagnose...
  2. Ursa Major
    You can certainly make gluten-free pies, and my daughter made apple crips with buckwheat flakes instead of oats the other day, and says it was delicious. For the apple crisp just substitute buckwheat flakes for the oats in your recipe.
  3. Ursa Major
    It depends on your level of damage. I was completely unable to eat anything raw for six months when starting the gluten-free diet. I had to cook all vegetables and fruit to the point of well cooked (almost mushy), or I would get horrible stomach cramps and diarrhea within minutes of eating them. Salad was completely out for that time. Even now (probably due...
  4. Ursa Major
    Hi, and welcome to this site. Yes, you appear to know how to post just fine. However, you gave it exactly ten minutes from posting to saying nobody is responding! Most people are at work, or making/eating lunch right now. There are plenty of forums where it takes days to get a response (if you get one at all). Here you usually get one within hours. This...
  5. Ursa Major
    Do get a copy of the blood test results. Who knows what at your lab they consider a celiac disease blood test. In order to get an accurate diagnosis there are five tests for celiac disease as far as I know. If they didn't do them all, then you may be right. Besides, there could have been a mix-up of your blood with somebody else's. It happens. Can you...
  6. Ursa Major
    Hi Douglas, and welcome to these boards. Your symptoms sound definitely like they could be caused by gluten. Or dairy, or soy, or all of the above. You can go and try getting an official diagnosis and get the testing done. Or you could just try eating gluten-free to see if you feel better that way. If you don't notice any difference within a couple...
  7. Ursa Major
    Somehow oats don't agree with me. The protein in oats is very similar to gluten, and some people aren't just having a reaction because of contamination, but rather because they are intolerant to the protein in oats as well.
  8. Ursa Major
    Maybe wearing socks would help? I found that when I had hives, and I scratched, they would spread and get really inflamed, red and terribly swollen. And of course, that would be awfully annoying and drive me crazy! I still sometimes get that, but not nearly as often.
  9. Ursa Major
    You might be right. But I found that finally my allergies are getting better because of treatment for Addison's disease. Apparently low aldosterone causes allergies and intolerances. Too bad that it hasn't improved my gluten intolerance! I ate something with gluten the other day to try it, and got really sick. Darn! But I was exposed to my daughter...
  10. Ursa Major
    Owen's mom and Jess, you both know there is a problem, and you suspect it is gluten. You absolutely DO NOT need a doctor's permission to remove gluten from your children's diet! If it makes a difference, you know what the problem is, and it doesn't matter what the doctor says. The gluten-free diet is very healthy, nobody needs any grains at all to be well...
  11. Ursa Major
    Yes, large adrenal glands are definitely a clue! I just did a search on enlarged adrenal glands, and what I found is not good. I don't have any more time right now. Just put enlarged adrenal glands into the google search engine, and read what you find. You need testing done asap!
  12. Ursa Major
    It sounds like you have adrenal fatigue and/or hypothyroidism. Which are both quite common with celiac disease. The added stress you are under now will make it worse. I used to feel absolutely dreadful in the morning, but would feel somewhat better at night as well. I have recently been diagnosed with Addison's disease (near complete failure of the adrenal...
  13. Ursa Major
    The strainer could be a problem. It isn't possible to clean a plastic strainer completely of gluten, as it is just too sticky (they make industrial strength glue from gluten - glue comes from gluten). It sounds like you are doing everything else right. Many people with celiac disease didn't get well until they eliminated dairy. Try it, you've got nothing...
  14. Ursa Major
    I wouldn't worry about going to an allergist just yet. A week is too little to be over the diarrhea and cramping. I still had stomach cramps and diarrhea off and on for over a month after starting the gluten-free diet, as it takes time for the inflammation to heal. I found that a homeopathic remedy called sepia (available in health food stores, but also...
  15. Ursa Major
    NewCeliac, I was in the place you are in to a great extent until two years ago. When I first started the gluten-free diet, I was unable to tolerate anything raw for six months. Raw fruits or veggies (including salad) would give me terrible stomach cramps and diarrhea, I had to cook everything. I also couldn't handle any regular vitamins or other supplements...
  16. Ursa Major
    In your recipes you can just substitute gluten-free alternatives, and your soups will turn out the same, nobody will even notice the difference. Good substitutes for flour are light buckwheat flour (my choice), corn starch. You can use rice or corn noodles instead of wheat noodles.
  17. Ursa Major
    I don't know if it could be DH, but it certainly sounds like an allergic reaction to the hay (those may be awful hives, that would happen to me). You may need to wear boots that stop you from getting in contact with the hay when looking after your horses. In the meantime, try icing those spots and taking antihistamines. I don't know if anything else can...
  18. Ursa Major
    From everything I have read, dairy and soy can also cause flattening of the villi. And it is true that gluten doesn't have to cause a gastrointestinal reaction. Some kids will have temper tantrums, get whiny, get 'growing pains' in their legs, or no obvious symptoms at all, while at the same time there is damage occurring in the intestines. So, it would...
  19. Ursa Major
    Maybe your doctor could give you iron injections? Iron is so very important for both you and the baby! I hope everything is going to be okay. Try taking it easy, resting a lot, as little stress as possible etc. With my youngest daughter I should have had twins, but lost one. I know I would have lost her as well, but pretty much stayed in bed for two months...
  20. Ursa Major
    Yes, it is absolutely possible. There are people here who's only obvious symptom was anemia, yet their villi were completely destroyed. Some people have no obvious symptoms at all with celiac disease. You might feel lethargic, have brain fog, aches and pains from gluten, yet never connect the dots and suspect celiac disease. From your reaction to the gluten...
  21. Ursa Major
    Well written! I could somehow make that apply to my doctor and Addison's disease as well. In fact, I had to self-diagnose everything I've got, as she is incapable of looking past lab numbers. I had to go all the way to Germany to find a decent doctor who knows what he is doing. Without him I am not sure if I would have lived past Christmas, and now I am on...
  22. Ursa Major
    I also have never heard that lung cancer could be caused by gluten. It is cancer of the intestinal tract that is associated with gluten. Sara, the macrobiotic diet is very unhealthy. The people who invented it both died of cancer, and were very heavy smokers. Because the diet is so unbalanced that it doesn't give you enough energy to get through the day...
  23. Ursa Major
    Linda, when you say you used Enterolab for the stool test, what were your results? Are those negative tests you tell about a blood test, or were those negative at Enterolab? I am a little confused.
  24. Ursa Major
    Have you eliminated dairy? Those symptoms sound like a dairy and/or soy intolerance to me. If you are diligent in avoiding gluten (including in your personal care products) and avoiding cross contamination, then it is probably another intolerance that keeps you from feeling better.
  25. Ursa Major
    Everybody needs a family doctor for emergencies, and to get referrals to specialists if needed. Other than that, I see no good reason to have a doctor telling you that you need things you don't. If you feel well off gluten, and sick eating it, you don't need a doctor telling you how to handle gluten intolerance, because you already know what to do. I agree...
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