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Latest Celiac Disease News & Research:
Everything posted by darkangel
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ARCHIVED Questions About Reactions
darkangel replied to CMCM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
People who are sensitive to gluten often have problems with casein, too... the protein in dairy. -
ARCHIVED Brain Fog
darkangel replied to Irishjoe's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Perfect! -
ARCHIVED Do You Ever Miss The Stupid Things?
darkangel replied to Lauren M's topic in Coping with Celiac Disease
I would think there'd be several gluten-free alternatives to the butter cookies. Pamela's makes a good shortbread. Brown sugar cinnamon Pop-Tarts. I'm sorry, but it's hard to beat that combination of warm, crispy crust and sugary sweetness. Since I'm gluten-free/CF, I also majorly miss Reese's peanut butter cups, tiramisu, custard-filled eclairs and... -
Could there be a thyroid problem?
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ARCHIVED Abdominal Distention?
darkangel replied to FaggieFresh420's topic in Coping with Celiac Disease
Make that triplets. I think this fits me, too. When I was sticking to a very strict no-grain, no dairy diet, my abs were wonderfully flat and well developed due to my workouts. After so many years of looking like a pregnant refugee, I was elated. Even planned to get my belly button pierced to celebrate. Because I was feeling so well, I gradually started... -
ARCHIVED How May Of You
darkangel replied to Becky6's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Off topic, but nini, can I just say I love your avatar? -
ARCHIVED Brain Fog
darkangel replied to Irishjoe's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My brain fog involves not being able to concentrate. I find myself unwilling to read long passages of text - and I love to read - feels kinda like ADHD... I can't stay focused. But the biggest mental thing that bugs me is short-term memory loss. I struggle to remember something that happened or something I said a day or two ago. And I blank out on the names... -
ARCHIVED How May Of You
darkangel replied to Becky6's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My bloodwork was all "normal," but eliminating gluten and casein has made a huge difference for me. -
ARCHIVED Trying The Challenge
darkangel replied to aknapp1978's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Eliminating gluten and casein made a huge difference for me very quickly. I went from multiple bouts of gut wrenching cramps and diarrhea per day to almost perfect bowel movements a couple of times a day. I'd say the transition only took a few days. -
ARCHIVED Now What Do I Do?
darkangel replied to dawinka's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I like your doctor! -
ARCHIVED Questions About Teeth Problems.
darkangel replied to Rusla's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was diagnosed with TMJ in college. And I've noticed a definite decline in my teeth, which used to always be excellent. Got my first crown last year. I attributed it to being on prednisone. I was also diagnosed with osteopenia, so I figured if my bones were suffering, my teeth would, too. Since I've turned my health around for the better, my bone density... -
ARCHIVED Now What Do I Do?
darkangel replied to dawinka's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I also got "everything's normal" result on my celiac blood tests. My doctor told me he didn't know what else to do for me. Gotta love that. Through trial and error, research and education, I've figured out that both gluten and casein (dairy protein) are problems for me. I'm working on figuring out what other food sensitivities I may have. I've decided... -
ARCHIVED Lump On Neck
darkangel replied to Hennessey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Could also be swollen lymph glands. Whenever I'm sick or having a flareup of other symptoms, I can feel sore, swollen glands on both sides of the back of my neck. Occasionally, the ones under the edge of my jaw in front will get swollen and sore, too. Have you ever had mono? Or Epstein-Barr? -
ARCHIVED Desperate For Advice
darkangel replied to blondie5star's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Try eliminating dairy, too. Many people that are sensitive to gluten are also sensitive to casein - the milk protein. Also, dairy's a common cause of constipation. -
ARCHIVED Please Help
darkangel replied to danikali's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm sorry if my responses have seemed abrupt. I know this is a confusing and stressful time for you. When you're sick, it's hard to process all this information and cook things from scratch and worry about every bite you put in your mouth. It's a struggle and most of us don't have anyone at home to take care of us and cook special foods. Doctors aren't much... -
ARCHIVED Cassin Intolerance?
darkangel replied to VydorScope's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had the ELISA tests run and it said I didn't react to anything but paprika and some obscure mold. Yet, I know from listening to my body I have very strong reactions to gluten and casein. It's frustrating, but I've found the tests aren't helpful for me. I never understood why, but I found this quote... Open Original Shared Link I've... -
ARCHIVED Vomiting Fest
darkangel replied to jcgirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So sorry to hear about your son... bless his heart! As severe and debilitating as his symptoms are, I'd definitely try him on a gluten AND casein free diet - regardless of what the nurse says. It took eliminating both to make me feel dramatically better. I've had experience with the Specific Carbohydrate Diet. It is totally gluten free... even completely... -
ARCHIVED Need Some Celiac Info!
darkangel replied to xcraigx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree... could be celiac or gluten intolerance. You may also be intolerant or sensitive to other foods. Dairy's the next biggest offender. Some others are nuts, eggs, peanuts, sugar, corn... Hopefully, the tests will give you some answers. If not, time to do some elimination. -
ARCHIVED Bloated Belly
darkangel replied to lovetoeat's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Not to frighten you, but pain and numbness or tingling in the left arm can be a sign of heart problems. Nausea, too. Source: Open Original Shared Link It may be nothing, but it's sure worth checking out. What did the doctor say when you told him about it? -
ARCHIVED Saw New Doctor Yesterday
darkangel replied to lizzy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Crohn's and and celiac are not so different. The intestinal villi are damaged in Crohn's in much the same manner as celiac disease. A gluten-free diet is going to help you, regardless of your diagnosis. There are a lot of folks here - myself included - that don't have official celiac diagnoses, but we feel better on a gluten-free diet. I've found everyone... -
ARCHIVED Please Help
darkangel replied to danikali's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The False Fat Diet book I recommended to you tells you how in very simple terms. If I remember correctly, it offers three different levels of "difficulty" so you can ease into it, if you need to. There are many other books out there on elimination and rotation diets, food allergies, food sensitivities. Here's one called Food Allergies and Sensitivities... -
ARCHIVED Saw New Doctor Yesterday
darkangel replied to lizzy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A gluten-free - better yet a GRAIN-FREE diet - is commonly very effective in treating Crohn's. Check out www.scdiet.org for plenty of testimonies to this fact. So, you're likely to feel better on a gluten-free diet, regardless of whether you have Crohn's or celiac disease - or both. With that said, I'm confused. I've never heard of Crohn's or celiac disease... -
ARCHIVED Bloated Belly
darkangel replied to lovetoeat's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Abdominal bloating immediately after you eat - or even before you finish eating - is a sign of dysbiosis... a lack of good bacteria in your gut and an overgrowth of bad. I've seen it explained best this way: Dysbiosis happens when we take broad spectrum antibiotics which kill off the good as well as the bad bacteria. Other things that contribute:... -
ARCHIVED Please Help
darkangel replied to danikali's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have to agree with Claire. I did the ELISA test - paid out of my own pocket - and it was useless to me. It basically showed I wasn't sensitive to anything I'd been eating. My blood test for celiac disease came back normal, after which my doc told me he didn't know what else to do for me. I've seen a lot of different doctors... six GIs, an integrative GP... -
ARCHIVED Gluten-containing Diet And Diagnosis
darkangel replied to Michelle C's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Maybe you need to find a new doctor.