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bluewhitesky

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Everything posted by bluewhitesky

  1. bluewhitesky
    Wow...what an improvement! And I hear you on finding it difficult because the rash flares up and improves for no apparent reason sometimes. That drives me crazy! Keep us posted if anything happens after adding iodine back.
  2. bluewhitesky
    Wow, that must have been so awful for you. The final picture looks like a brand new hand!
  3. bluewhitesky
    I'm glad you are healing quickly!
  4. bluewhitesky
    That looks exactly like my son's DH, especially those little craters where he has scratched off the tops. I know exactly the frustation of trying to figure out what's going on. What we did, was take our son off gluten to see if the tummy aches would get better. Tummy aches stopped immediately and the rash started healing. That was great information and...
  5. bluewhitesky
    So iodized salt for sure, plus pretty much any seafood, fish, seaweed, are the biggest. Also dairy products, egg yolk, turkey, some random veggies in lesser amounts. My son reacts to carrageenan which is an additive/thickener made from seaweed in lots of processed foods, esp. dairy products. We figured this particular one out after some experimentation and...
  6. bluewhitesky
    That looks like a lot of new blisters compared to the last picture you posted. Have you noticed any worsening of the rash after your son eats foods containing a lot of iodine? Iodine is connected to DH. For my son, it is a huge trigger.
  7. bluewhitesky
    Hi Si and Ash's Mom, I am a mom to a 7-year old boy with DH (not formally diagnosed yet). You can look up my past topics and you'll see some pictures of his rash. It does look a lot like your son's rash. I don't think you're barking up the wrong tree, esp with the other digestive/mood stuff. I wanted to comment on the itchiness question. For much of the...
  8. bluewhitesky
    Glad you got a definitive answer from the endoscopy!
  9. bluewhitesky
    Good idea!!
  10. bluewhitesky
    Here are my posts about going through this with my son. Pay particular attention to squirmingitch's responses. She knows what she's talking about. https://www.celiac.com/forums/topic/106990-possible-dh-6-year-old/ https://www.celiac.com/forums/topic/107188-dermatologist-appointment-today/ https://www.celiac.com/forums/topic/107778-i-think-we-have...
  11. bluewhitesky
    Poor little sweetheart. He must be so uncomfortable. We went through something similar with the dermatologist for my DS. He kept saying excema, prescribed steroids, said it wasn't in the right spot for DH, not symmetrical, etc. My first thought for you was to insist on another appointment with the Derm to take a biopsy. But, you're in a hard place...
  12. bluewhitesky
    DH can take many different forms. My DS's DH starts off like little itchy bump/pimples on his forearms and legs.
  13. bluewhitesky
    I love it! Thanks for sharing.
  14. bluewhitesky
    Soozy, I'm from Ontario too. Ottawa actually
  15. bluewhitesky
    Hi Becky! I'm relatively new here as well and we've just got a (semi-)diagnosis for my son this week. We have an appointment on Wednesday and I'm expecting to make the change in our house to 100% gluten free directly after that. I agree, this site is a God-send. I spent hours and hours reading over the past few months. I also feel overwhelmed...
  16. bluewhitesky
    We did it!! Appointment is over. Biopsy done!! The first thing the dermatologist said when he walked in was, "So Mom wants a biospy." He said the new lesions were active (I was worried he'd put us off again). I said that I understood it needed to be taken from skin adjacent to the lesion. He said quite firmly, "I know what I'm doing". Then from that point...
  17. bluewhitesky
    Thanks squirmingitch
  18. bluewhitesky
    Thanks squirming itch! I feel like you are my coach So the wonderful person at the Derm's office got back to me yesterday with an appointment for tomorrow afternoon! I took your advice and covered up the sores in DS's elbow with many layers of gauze to hopefully keep them intact. It is just on one elbow at this point. His other rashes, bum...
  19. bluewhitesky
    A bit of background, very short version: (I have made other posts with the looong version) My DS (age 6) had what I thought was DH on his bum/hips/lower back. Derm said it wasn't active and come back in 6 weeks to look for changes and potentially do a biopsy. We kept feeding him gluten hoping for a flare, but low and behold it cleared up on its own almost...
  20. bluewhitesky
    I found some pictures online that so far look closest to what my DS (age 6) has experienced. They might be helpful to someone else, especially a parent. The boy in the pictures is 11 years old. Here is the link: http://www.globalskinatlas.com/imagedetail.cfm?topLevelID=1360&imageID=3208&did=458
  21. bluewhitesky
    Thanks MGR, I missed your post somehow. Thanks for explaining the differences with molluscum. That helped. Yep, it definitely doesn't look like molluscum and it's definitely itchy unlike molluscum. Also my daughter, who baths with my son, shares everything, etc. hasn't caught it in all this time. So molluscum is definitley ruled out. As for DH, I'm still...
  22. bluewhitesky
    Thanks for your response! Yes, we had a tTG and total serum IgA, both normal. GP did a tele-derm (email photo) with pediatric derm who said molluscum, which even the GP disagreed with. Real live dermatologist a few weeks ago who said it looks like DH and prescribed hydrocortisone and said to come back for a biopsy in 6 weeks (but I'm not doing the hydrocortisone...
  23. bluewhitesky
    Welcome! I'm new here too and might not be the best person to answer your questions, but I can direct you to the photo bank thread: https://www.celiac.com/forums/topic/94056-dh-photo-bank/ There are also lots of photos in individual threads but you have to spend some time looking around.
  24. bluewhitesky
    Well, he hasn't reacted to shellfish before but I'm not ruling anything out. He just came home from school, scratching a bit. I asked to have a look at his rash. He's getting sick of me looking at his butt!! Poor kid.
  25. bluewhitesky
    I'm hoping it's something else, I just don't know what. The doctors haven't agreed on anything.
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