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Celiacandme

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Celiacandme last won the day on February 28

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  • Nicki Raeleen

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  1. Keep us posted on your results. I hope you don't have to wait too long. Are you planning to have your son tested? Do you feel your father might get tested? Wishing you all better health.🍀
  2. You might also be sensitive to other things while you are healing. Dairy, for example. It won't harm you from a celiac standpoint but is inflammatory and could be bothering you. Have you been keeping a food & symptom journal? Might be worth it for a week to see if you notice something you are eating prior to the times you feel your worst. I hope you start...
  3. My gastroenterologist had me incorporate VSL#3 to help with similar issues. It can take a long time to heal. I also found adding kiwi to my diet was soothing to my stomach. For me, it was important to avoid other inflammatory foods. Dairy, corn, etc, were aggravating to my stomach. Bone broth has been another life saver for me over the years. I do know I...
  4. I hope you don't have to wait too long until her endoscopy. Is she able to bring her lunch with her in the meantime?
  5. Terry, I was diagnosed with Celiac disease and Barrett's from the same scope back in 2013. Did your endoscopy biopsy result confirm celiac or are you still waiting for that result?
  6. Thanks for taking the time to respond, Scott.
  7. Hello there, it's been ages since I signed into this account. Wanted to see if there were other celiac patients that have gone through perimenopause/menopause and chose to take estrogen or wear an estrogen patch? I know all of our bodies are different but curious how it went or is going for you. Thanks so much.
  8. Yay for a painfree day, bartfull! Did they start you on plaquenil or something when they diagnosed you with lupus? I hope you find that today is pain free as well and that good days always continue for you!
  9. This will definitely take some time. I'm sorry you are going through this. I can sympathize that it is difficult to deal with this while you want to care for and enjoy your young child. You need to be gentle with yourself and give your body time to heal. It can be a long road. As your wife learns more she'll understand more. It is difficult to understand...
  10. I'm just curious if anyone here has had to take immunosuppressants because of their celiac disease? If so, were you able to come off it after some time? What made the determination that your body needed to take it? Did you notice a difference? If anyone has anything to share regarding celiac disease and immunosuppressants, I'd love to hear it. Thanks...
  11. Since you were diagnosed last year remember your body is still adjusting and working on the healing process. Celiac disease can send inflammation to all areas of your body. I hope that the inflammation you are experiencing is caused by this. Are you eating dairy? Let us know how it goes with the immunologist this next week. A rheumatologist, like ravenwoodglass...
  12. Bartful - It sounds like you really like this doctor - yay! Have you heard any results yet? If they suspect lupus some tests that CAN BE associated with lupus are PT, PTT, DRVVT, Hex Phase Phoso Neut, and they'd want to run your complement levels (C3, C4, perhaps others). C3, C4 could indicate disease activity in your body but do not specifically mean...
  13. For those of you that have determined you can't handle sulfites - how did you determine? What kind of symptoms did sulphites cause you? Was this during the healing process for you and were you able to add them back in?
  14. You never know. If I were you I would schedule an appt with my gp. Explain to them your bathroom issues, etc, and request that they run the full celiac panel on you. Keep eating gluten so it will be accurate. I would tell them you'd really like to be tested because of the fact that you are having some issues and your grandmother has it. Good luck. Keep us...
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