ezgoindude

SEPT UPDATES: Wow, life has been busy! I did all 3 SIBO breath tests, they came back negative. Beta Carotine tests and B12 came back extremely high above normal?!?!??! I am NOT supplementing any vitamins this year except for vitamin d since that has shown very low several years ago when this all started. Doc word for word tells me "congrats...

MAY UPDATES: Alright, so I'm back talking with the doc I got the CT scan from last year. The doctor who just prescribed me the two weeks of steroids wants to wait three months and in between go to a hematologist? for skin testing for allergens. Yea, I'm not wasting my time on that. I have dysbiosis, IBD, SIBO, something..... hell I only eat around...

Afternoon folks, as an advisory I am still undiagnosed, possible eosinophillic disorder, possible food allergies, possible leaky gut, possible celiac, it just keeps going..... But anyways, I feel this is similar to all but how have you helped slow the hair thinning? I'm not balding, I still have a solid hairline, HOWEVER, its so light and thin that...

Went to the GI, considering everything is normal and my vitamin b12, beta carotene came back more than normal he's trying to tell me severe food allergy. I finally got him to open his mind when I asked why that would give me a calprotectin result of 150, which is not crohns level but definitely a lot of inflammation last year. He has perscribed me a 90...

evening googles! If you dont mind I had a question about your story..... I see a few years back you were on this forum with a diagnosis of celiac. So there was also inflammation in your colon at the time of your diagnosis? Have you every taken medications to reduce inflammation? I only ask as reference to my own struggles, I've been undiagnosed...

Thanks nvsmom! I'll have to suck it up and call it getting "well"... I'm still frustrated how I could eat something, get no reaction whatsoever, and 3 days later it comes out as foul odor, rotting wet just bleh formed blob.... yes TMI but dude, if my enzymes are good why is it not being absorbed? frustrating yes I do feel much better than when I first...

APRIL UPDATES: Been awhile my friends! Still undiagnosed but feeling much better, for reasons also unknown? I as usual am in no pain, I sleep well, and other than what I eat I for the most part feel normal again. My only complaints are my stools are formed but a long way to go before perfect (they float, sometimes pale, foul odor sometimes) and my...

Ugh! I wish she was still posting on this website!! I have a low level of inflammation as well, I'm frustrated to the point of taking immunosuppressants! But what if its gut flora? then do I take prednisone? Even the intro stage of SCD is frustrating because that's how I found out I can't tolerate carrots, even if cooked for hours. ANY carbs are a problem...

waddup! Thank you for your honesty, it is comforting in a way your blood results were negative, I have the second highest genetic probablility of having celiac, blood results were negative the doc is redoing my endoscopy as they have fears they didn't go far enough down for my sample, as my first endoscopy was clean even though visually the doc was...

Sup john! I don't have too much to add in considering Im undiagnosed and probably have several unknown autoimmune conditions, but I had two questions for ya: 1) How did they find out you had celiac? was it from a combination of testing? 2) When you eat these bad foods, how do you know you can't have them? Is it neurological pains or do you get malabsorption...

MARCH UPDATES: I'll be posting this in separate sections, as I feel i'll need my own suptopic just to vent my frustrations over the past month and a half. To summarize I pretty much spent $200 to say hi to a doctor....but back to that later.... I've been on an autoimmune paleo/scd like diet since the holidays last year with mixed results, I finally...

sup CFS Crusader! yeah even in my case my new GI is interested for restesting into celiac/IBD/IBS panels again, but after we get our results he feels more comfortable I still go to an allergist. If I can ask how long would you know after eating a banana or pepper your voice close? Depending on how you look at this, fortunately I dont get any respiratory...

EXCITING UPDATE: My insurance kicked in, I saw a new (third) GI today, he is VERY interested to get down to at least an idea of what I have. It's funny because he didn't seem too interested until he heard my first GI doctor was in intern in the same program back when he first started. I think the competition is on! which I don't mind, it doesn't change...

Sup everyone! yea, I relate alot with Mycasmommy. My blood tests were negative but I have the genes for it..... and the docs KNOW gluten is a no. But just a few weeks ago I tried to have corn tortillas for a couple days and BAM, its been two weeks and I'm just slowly getting over that decision (loose stools, insomnia, low energy). As I'm reading more into...

hhhmmm.... I'm restarting my SCD diet this week and was going to follow more of Dr. Haas's recommendations of bananas being a lower source of carbs, bananas are tough as they don't seem to make me any better, but one of my top foods id love to keep around. Anyways, maybe I'll try cooking an extra ripe one! My GI Appt is this monday, well get a better...