Rusla

I have Flovent and Ventolin inhalers, Synthroid for my thyroid and I am now starting Wellbutrin to see if I can grow an extra head.

Is your doctor bloody daft? Why do you need to remain glutened? No, you need to remain unglutened. I almost vomited the last two times I was glutened, one which was yesterday. Gluten can make your back hurt. I get kidney pain with it along with other things and leper face.

Most people don't know how to react to our problem so they think we are paranoid. If you are as sensitive as I am and it sounds like many are, there is no such thing as paranoid. Tell your mother Chelsea, to make gravy out of cornstarch it makes more for less and no gluten and just as good if not better than flour. As sick as I get with such a small bit of gluten I think we can not be too careful.

I live alone. I have replaced all my spatulas, pots, pans, and wooden and plastic spoons. I found Silicone shells for my muffin tins and tossed out all my plastic bowls.

I am not able to see how the counters are kept and it was for sure a glutening. I have leper face today from it.

I had written to Stouffers and got such a vague answer as to whether they had anything that was gluten-free or if it was made in a place that does the meals with gluten in it.

What I got out of their email was some do not have wheat or gluten in them but they cannot guarantee them gluten-free. As they are all made in the same facility as the ones with wheat or gluten. It was very badly worded and written.

My mother and I discussed the other night how sensitive I am to small particles of gluten.

It is like being an alcoholic, when an alcoholic or drug addict goes off of the drugs or booze for any length of time. If they use again it effects them harder than before and it becomes more difficult for them to quit because they are addicted. Like things people are allergic to you either crave them or hate them.

We are like gluten addicts some of us will gobble them up if we have not immediate ill effects but if you are like me then, you would never want to touch the stuff. I am so sick on minute amounts if I ate bigger things with gluten, I don't even want to imagine what I would go through.

Welcome to the board Danielle. You will find not just great information and support here but great recipes.

My cross contamination issues are from eating out, like today and my stomach still hurts and I am bloated up like the Goodyear Blimp. I cleaned my whole house, disenfected it and got all new pots and pans ( mine were more than 20 years old and scratched), when I found out I had to be totally gluten-free. Although there has been some lotion or makeup issues but I think I have tossed those out.

It is so much harder and my heart goes out to those who have to try to be gluten-free in a house that still has gluten in it and for those who have no symptoms.

For those who are having trouble with friends and family clueing into what we go through. They could photocopy the article and give it to them to read Maybe then people will begin to see what a small amount could do to us.

As soon as Chapters gets it in I told them to call me so, I could pick it up.

My sister scared the pants off of me. She told me about one of her Celiac friends who had colon cancer because of the disease and now has to walk around with his waste in a bag. She also told me about another friend who ended up having stomach cancer from it and he died. That is what prompted me to do something about it.

I see cans of adzuki beans all the time. I just picked up the magazine and they have some of my favorite Cuban foods also that don't contain gluten.

Well for the article, I think they were truly just focasing on recipes rather than on the symptoms of the disease and the effects.

Other fried foods are no problem after I had my gall bladder removed some 34 years ago. This problem has happened twice at this place and it is identical glutening.

Thanks Patti, me too. It is a cross contamination issue and it is amazing how awful a few lousy grains can make some of us feel.

This sounds like a place to add to my Caribbean vacation list.

Only when I have been glutened by accident. I have it starting in the corners of my mouth right now because, I know I was glutened with a small amount earlier. I am hoping it won't spread from there.

Right now I want someone to shoot me to end the pain.

  Carriefaith said:

I would guess that the oil may be contaminated from the hotdog and/or hamburger buns.

That is my take on it also. I am sure sick from this and it is never happening again.

I just had some fries at New York Fries in Market Mall, Calgary. This is the second time it has happened so it will never happen again. They assured me their oil was Sunflower oil, nothing is cooked in there but the fresh cut fries that have no gluten etc., in them. However, it is now twice that I have been very ill with sweating, pain, and nausea, D and almost vomiting. I fear that because they have hot dogs and buns there that maybe gluten flakes from the buns are in the fry containers or in the oil. It takes a very, very small amount, just crumbs to make me sick.

Has anyone else eaten there and had this problem there?

When I get it across my chin, under the lip and in the corners of my mouth, I look like a leper.

The ones with the Cheetah and the Koala ones are the only gluten-free bars of Envirokids.

DH doesn't have to be a rash, get a skin biopsy. It also doesn't have to be on arms and legs mine is every so becoming on my face. Remember you don't have to have DH to be a Celiac but only Celiacs will get it and your villi is screaming that you are a Celiac.

Believe me I know where you are coming from on this. I went through this with so many doctors not just on this disease but on the Hashimoto's as well and pernicious anemia. Vent away when they blather to me about this and that, I tell them I have had my body much longer than they have been admiring it so, who knows better how I feel me or them.

Time to book appointments with our veterinarians.

Tell him you are like a box of chocolates. He didn't know what he was getting originally but now he has something special and, wonderful.

  Kasey said:

Thanks for posting this....I have a wedding coming up and I'm waiting to paint!!

Oh my gosh! I have the nail envy and after using it my nails became worse. I did not feel good the whole time I had it on so I took it off. Darn now what will I do for my nasty nails.

I know that it takes a very small amount even just a few crumbs for me to react. So, I know my limitations and how awful I feel so cheating is not an option or something I even think about.

Radman--As you have found out, we become addictive...lol. I guess you come back to talk to us for the same reason we do, so that we can share experiences, gluten-free recipes and find out information that we can not find out from other sources. Also, it helps us all feel not so alone but yes, I think we all are off the wall kind of crazies and perhaps that is also a condition of Celiac Disease or Gluten intolerance.

As for Gorilla Munch, I am in Canada and get it either at health food stores or in Safeway.

Here is their website, they are in the US Open Original Shared Link. You could probably get a list of stores from them. Believe the Gorilla Munch is like corn pops only better.

  Canadian Karen said:

I suck at baking - I'll just send Altoids.......

Karen

I can share my Gorilla Munch.