dlp252

lyme ladies...today was a bad day for me...couldn't even make it into work. actually had time to read up on lyme today. is it ok to be terrified?

I'm sorry you had a bad day! Yes, I'd say not only is it okay, but I'd go so far to say that I might be worried if you weren't terrified!

You big babies! It was 68 and sunny here today!!! Very unusual!

I'm the first to admit, I'm a big baby! I did have some small excuse though...I needed to get some stuff together for the trip--hadn't even begun to think about packing...it's hard to think about what to take to the caribbean when you're shivering, lol. I am now mostly packed though. Gotta love those space heaters.

Doggies licking your fingers.....I have that every day here. I don't know what I would do without my girls, and they were allowed to go to my brother's (their stinkiness usually deters social invitations :lol

very humourous indeed! and crazily sad......

Yes, I'm so happy my cousin brings hers to all family functions...they are beagles...rescued from a research lab, and they are adorable.

it's just SO cold here today! (well, we are wussies in California, it's probably 50 degrees and that is freezing to me, to go hiking )

Yep, I had a long sleeve tee-shirt, a sweat shirt and the space heater on today...we really are wussies, we Californians, lol.

Oh -- new avatar. Now you've "met" Luke!

Luke is quite handsome!

Then I went to buy some new shampoo ... they added wheat and oats to Alterna ... jerks ...

Jerks!!! Why do they have to change a perfectly good product...I just don't understand it.

As far as I know there was no extra cost....you can also bring in any supplements or meds you want to have tested.

Making bracelets and lying on the couch sounds sooo peaceful and relaxing to me. I've been up since 4...had to go in to work....filling up milk and eggs. Not fair.

Thanks! Well, I woke up at 4:30, but just didn't get out of bed until after 5:00, lol. Hopefully you'll get to relax soon!

becasue most people are like I screwed up I ate 5 pumpmpkin pies and you cheated by eating fresh crab and I was anxious cause I ate baked sweet potato and apples- There is somethign very humorous about this.

You're right...it IS very humorous!

Hi everyone! I successfully fed 13 people for Thanksgiving dinner yesterday with Morgan's help. Because I cooked it all, it was ALL safe!!! That's the advantage of having it here. I just went into my living room and it looks like there was a party in there yesterday!!

Okay, gotta go, taking Morgan and Luke to Starbucks, but wanted to say good morning to you all first .... Morgan says hi, too.

Chat with you later.

Oh, you don't know Luke, but he says hi, too. We'll take a picture at Starbucks for a temporary avatar (we all just rolled out of bed and put on sweats )

Hi to Morgan and Luke!! Wow, may I just say that I am not worthy, lol. You cooked for 13 people!! Wow, fairly amazing actually. I get a bit stressed if I have to make something for anyone other than myself, lol.

Donna, that sounds like a nice day. Enjoy. You inspired me to get out my quilt project with the beading on it, I had tucked it away for the summer and I am delighted to find I'm excited about finishing it. Thanks.

Oh good! Course, I haven't ACTUALLY done anything yet, but it't only 8:40 a.m. here, so I have a little time left, lol. I DID do a leg workout so the day wouldn't be entirely slug-like.

Miamia, I am SOOOO not good at looking at tests with lots of numbers, lol.

I'm feeling really good so far today so I think I'm fine after dinner yesterday. The only thing I ate which I shouldn't have was a little fresh crab that my cousins brought, but I didn't have much.

I slept better again last night...woke up a few times but went back to sleep each time. Perhaps the true test of the new supplement (which contains valerian root) will be on MONDAY, lol.

Oh, and I also got an email response from the BioSET lady...basically just answering my question about the cost of the first appointment and what all they test for--I had mentioned Lyme in my question to her, but she didn't mention it in her email...Rachel was it any extra cost wise for them to test for they Lyme stuff?

Now I just have to decide when to go. In some ways I'd like to do it now, but then won't be around for a few weeks while on vacation.

I am being lazy today, lol. I was planning on doing some grocery shopping, but decided I have enough to last me the week so am just going to stay in and lay on the couch, maybe make some bracelets, which I haven't had any time to do in weeks. My friend wants me to bring a bunch of them to church on Sunday...I think either she wants to buy some for gifts, or once she mentioned she wanted to take them to her ladies club because they like to buy stuff, lol. Hope so cuz with all these medical bills, I really need the money. I got my credit report on Wednesday, and while my credit and score is very good, I have a huge amount of outstanding credit and it's a bit scarey.

Donna....everything sounds so yummy.

I'd be down about the pumpkin cheese pie too. My favorite deserts are cheesecake and pumpkin pie....I've never had them *together* in one pie though.....OMG...it sounds GOOD!!

Yep, I tried NOT to look at the pie too much, lol, but it LOOKED really yummy. The dog licking almond butter off my fingers helped take away the downness though.

Donna-

so glad you had a good thanksgiving!!! Mine started out really badly- I ahd a bit of a breakdown but I recovered- I can never stay sad when I am sround my neice and nephew- Ny meal tasted really good, unfortunatly I wasen't feeling well but the good news is it didn't make me any sicker- and I had all this unusual (for me unusual) things

The only things that made me sad I coulden't eat where these homemade biscuits that were steaming hot when my mom served them and my moms pecan pie- which looked like it should have been on the cover of a marthat stewart magizine- and I know from the past tastes as good as it looks

Miamia

Wow, I think it's great you didn't get sicker, but sorry you were not well to begin with. This whole thing just sucks! Those homemade buscuits and pie would have tortured me, lol.

if I find out I had lyme and had a real diagnosis that would be enough for me- I woulden't want any gifts- I would have e\verything I needed!!

Miamia

OMGosh, wouldn't that be a gift indeed!!!

Sorry I missed you Andrea...will be thinking of and praying for you, even if you don't know it, lol!

I'm finally home from my mom's house...it was exhauting, lol. Still my cousin said I look 100 times better than I did the last time she saw me (just a few weeks ago!)...must have been the pink sweater I was wearing, lol. Finally I just couldn't keep my eyes open any longer and just came home. Mom and auntie made the whole dinner so I could have most of it. We had a roast, veggies and baked potatoes, all with no seasonings (just salt), so that I could eat it all. I took one of my HN nutrition bars for desert with some almond butter...and my Applegate turkey and cranberry was my mid morning snack, lol. All in all a good day. I was slightly down about the wonderful pumpkin cheese pie my cousin made which I couldn't eat, but I got over it quickly...they brought their two dogs, so I had a love fest with them, lol.

omg, I am replying to my own post Am I Canadian when I am tired? I think I spelled humor like dear rinne. Or maybe I don't know what I am talking about.

I will not remember this in the morning so I apologize in advance for my half asleep brain

Hi Cecile!!!!!

Happy Thanksgiving to all!!!

Oh, and I got a better night sleep last night...woke up many times, but at least dozed off again...there may be hope for this new supplement.

Donna....I must say, you are a very cheerful insomniac! I can't believe you are functioning on this little sleep.....I have done it and just cried all the time......

You don't have to work with me! It can get bad for me too though...the doctor asked me about mood swings yesterday, and I said I was too worn out to have swings...it's mostly just down now.

Well, have to figure out what to do with this turkey breast now, adn then homemade cranberry sauce.

HEINOUS!!!!!!!!!!

Now, the thought of all that makes ME want to cry, lol. Applegate turkey lunch meat!

Thanks Donna-

I should let the people at the lab know they have to put a rush on my tests becasue its not just me there keeping in suspense.

Yes, please do!

I put C D and it put in celiac. Tricky little thing!!

I know I ahte that I ahve to wait til monday to get the blood work done becasue tomorrow is thanksgiving. Holidays are so inconvinent!!

I think the only one more anxious to hear about your results than us is YOU, lol. They're keeping us all waiting!

And what fills out the bottom part that you've taped up?

And, what if there isn't even a bottom part?

Donna, I have three months, too. I just show up on Sunday, too, but we don't have a practice before Mass ... I totally wing it, standing in front of a mike, standing out with my flute. If it's bad, it's bad.

HA, at least you read music, lol. I don't. Our service starts at 9:00 but we have to be there at 8:00 to rehearse.

Did they look at you like this??

OMG...your post made me laugh....I needed that!

I take it back....they *did* find something in my stool test. It wasnt a parasite though...it was that C-Diff. infection....BUT the C-Diff may have been overgrown and maybe creating toxins...but it wasnt what was making me sick. C-Diff causes serious "D"....and I did NOT have any "D". I kept pointing that out to Dr. Rick...."How could I have C-Diff...I read about it on the internet and I dont have any of those symptoms?" Yup...I think he probably dreaded seeing me...I was the "internet girl".

Yep, that's exactly how he looked at me, lol...I haven't brought up the internet thing too much, but I think he "know", lol. I DO have the D, but they looked for C.Diff in February AND H.Pylori. Maybe it's kind of like the adrenal thing...the labs HN uses probably look at more things. I'm really interested to see what it shows.

Ok so I had this doctors appt today and I have to say I feel it went well. We talked about a lot of things. In terms ofthe lyme he was very open to further testing and he definitly seemed pretty knowledgable about it. So On Monday I am going in to get a bunch of blood work up done - I am redoing the original igenix test becasueits been a while and they recommending retesting. I am also getting the celiac disease 57 Stricker test done- which is a more sensitive lyme test. The last thing I am having done is the Thrombotic marker panel -

Ahhh.. so its alot.

The other test where you have to take antibiotics first we are waiting on becasue I am on the diflucan right now and we are gonna have these done first. My doctor is very cool though- he really does respect me as a patient he said if we do go ahead with that test he would rather give me the antibiotics through a shot or something else becasue my system is so sensitive and taking them orally will just be so hard on my stomach.

Ok so thats most of what I can remember right now.

Miamia

Oh Mia, YAY!!!! That sounds really encouraging to me!!! Yay yay yay!

I'm assuming Dr. Rick does believe that mercury can cause these horrid symptoms.....he *did* send me to the new Dr. afterall. Or maybe he was just trying to get rid of me.

Yep, I think we just haven't satisified his parasite thing yet. Once the parasite thing is done with, I'm sure he'll start considering the mercury. THe PT guys are convinced I'm not doing my exercises and stretches cuz I'm not getting better...I'm doing the stupid things 2-4 times a day!

Judging by the article Rinne posted, it sounds as if mercury and Lyme often go hand in hand ... and that would certainly tire your adrenals!!

Yep, that's what I'm thinking too. I can't imagine what else it is...but he's really certain I have bugs, lol. He said he'd very VERY surprised if I didn't have them...I felt like saying "get ready to be surprised". I took these tests last year and they showed nothing, but he thinks the difference in lab processing will make a difference, lol. Might, could, maybe...we'll see.

Donna...is it Dr. Rick you're talking about?? If it is...he's probably thinking "Oh God...not another one of *those* girls."

I think I annoyed him because I was always diagnosing myself. He never said it *couldn't* be these things...just that there were other things that were more likely. Same thing with Lyme....he thought he would find a parasite or something because he usually does...but not in *my* case. They were "stupified" by me....couldnt figure it out....I am just too darned complicated. Well....HA...I was RIGHT all along.

Lyme Clan

Yep, doctor Rick...ha, see my post above...that's exactly what he thinks...it's a parasite! I think the PT guys are already rolling their eyes at me, lol...my neck isn't getting better...and I said one day "I bet it won't get better until I get the mercury and lyme out of my body"!

My mailbox is down the street, so I only pick it up every 4-5 days, and that's only if there is an open easy parking space in front of it. The box has been so jammed that the lock fell off twice because the mechanism couldn't move, so when I put my key and and turned, it came unscrewed! I have 3 months worth of bank statements to balance! Rachel, I so understand about that and am so sorry you have that going on too.

Carla - our choir practice starts at 7:00 also, and I haven't been able to go in a couple of months now. I did get a nice email from the choir director yesterday who said I can come back anytime I feel up to it. And, he's being very patient and understanding about me just showing up on Sunday to sing...I basically learn the song during the early Sunday rehearsal.

Rachel - I think there are at least two LLMDs in our area...I pulled their names off one of the websites Rinne posted...the link is at work though. I thought originally I might ask to see your doctor, but maybe I should see one of the LLMDs instead, lol.

Oh, and I actually called the BioSET office today, but no one answered...then I sent them an email. Sometimes it takes me a while to get around to something.

Yah, but if you have lyme you have an even better reason to be messed up. I'm sure the mercury isn't helping. My doctor blames my mercury for my few intolerances. I don't have any other issues that I know of.

Yep, he really wants to find out why my adrenals are so fatigued and why my immune system isn't working right...but he looked like this when I mentioned I thought it was mercury (didn't even mention Lyme although I had planned to... the made me think twice about it, lol).

I am glad for my friend and I am glad for you. We are stronger together.

Oh Rinne, I am just sooooo disappointed in him! We have so few people who "get it" and it's just disappointing when someone we thought got it, didn't. I'm so sorry! Hugs to you!

I think this is very good grandmotherly advice.

Ha...I happened to ask the receptionist while I was there for my PT appointment how long I should give the melatonin to work...she said "um, should work right away", lol...then she called one of the dcotors who upon hearing that I've been waking up at 12:30 for 2 weeks and mostly not going back to sleep, said "Um, she needs to see one of us". So they fit me in with Dr. Rick.

They don't want to get too carried away with stuff yet because they're still waiting on the results of the stool test before formulating the "plan"...but he did give me some herbal stuff which is supposed to help the melatonin...it even relaxes muscles... We'll see. Nothing works on me like it's supposed to.

He had a long explanation about how the body functions work and it all made sense as he was speaking and I don't think I could relay if someone paid me a million bucks, lol. Basically, I'm messed up.

Don't remember about Richard Pryor and his mojo whammy....

I'll approach any and all mojos with great caution, but, alas, I have an intense need to check things out, you know, like going into a pitch black room after hearing a noise from there.....

Donna- Please look for the missing mojos of DingoGirl, TricticusToxicum and Mtndog in the carribbean on your cruise - you lucky girl! If you find them and they are relaxing on the beach drinking pina coladas, TELL THEM to STAY RIGHT where they are until we get there!!!!!!!!!!!!!!!!!!!!!!

You got it sister!

Andrea....cute picture of Seth.

Is that one of the new ones??

I think I'll be the only Rachelvillian working tomorrow. I dont care though....I'm not into the holidays this year. Hopefully it will be my last year of ruined holidays cuz of this heinous illness.

I'm not doing anything for Thanksgiving at all. Its the first year I'm totally not gonna participate but if I go with everyone I'll be miserable. Last year they had scented candles, everyone wearing perfume, me with my "special diet"....everyone wondering WHY?? I just dont wanna deal with it.

Oh well Donna.....if you didnt get a mojo....at least you got a sense of humor!!

Sometimes I WISHED I worked on holidays...thankfully no one wears perfume or cologne in my family. No candles either. Bounce yes.

gotta go hunt down a turkey breast somewhere to make my own entire dinner for tomorrow. I know you all feel my pain so why am I whining about it here? But it is a crack up - - - ME, the non-cook, non-baker, FURIOUS about cooking, and I"ll be cubing up my bread for my own stuffinf, making my own cranberry sauce, and all the other crap......kind of funny since I have NEVER cooked one thing but mashed potatoes for TG in my life. harumph!

I'm taking Applegate Farm turkey luncheon meat and a cranberry all fruit spread I buy at Whole Foods, lol. I MAY live it up a little and take chicken.

When I'm in the checkstand at work...I've been messing up all the time. It doesnt matter that I've done this job for more than 15 years....my brain doesnt work the same. Customers bring in W.I.C. vouchers...its kind of like foodstamps but different. There are all these rules and regulations.....everything has to be done according to the rules. Prices need to be looked up and sometimes there is math involved....not a good thing. I dont know why but it seems like all the customers who use W.I.C......also use DRYER SHEETS....probably BOUNCE...the strongest ones.

Stupid dryer sheets! Stupid Bounce!!!!

Do you think our mojos have gone someplace warm for the winter? Mine seems to have left me while I was in Lake Placid (Brrrrr)...Maybe I (we) should be looking in warmer climes?

I'll look for all missing mojos when I'm cruising in the Caribbean starting next week!