dlp252

Grrrr, ANOTHER sleepless night. It's got to be one of the two parasite things, lol. Course I'm also taking a couple of new neurotransmitter supplements, but the new ones I'm taking are supposed to calm me, lol. I guess I'll know for sure in a couple of weeks when I stop taking the antibiotic/antifungal stuff.

Never fear, ecoffe is here!

No, never! :lol:

I havent done one in months anyway...I think my ecoffee days are over.

See, that's good enough for me!

But now you, Kassandra, Donna, Rachel (others?) have had that treatment. I wish I could understand why some and not others.

Mine wasn't by LED, but yeah, mine was cleared with BioSET. The pathway has remained clear too...she retests me every once in a while.

Oooooh, fun order!!!

I went over to see if there was enough I wanted to buy, but shoot me if there wasn't. I don't think I need to order full sizes of anything else just yet. Wonder if I should order $34 worth of non makeup things.

I also had and ASYRA and LED treatment done yesterday. We cleared sulpher, which my practitioner thinks that is going to make a significant difference for me.

And that about summarizes it. I hope everyone is well, I've thought about you lots

Very exciting report! I'm thinking the sulphur pathway will make a difference too! I was getting a little worried about you!

This is insanely ironic.

Yep, we talk about all kinds of stuff here and it almost always comes at a good time.

... cleaning the bathroom floor (before, not after )

Another good reason no ecoffee for me, lol. If I had to clean the bathroom floor FIRST, well, let's just say that's not going to happen. (Besides, couldn't lay down on the floor if I wanted to--it's not big enough.

Yay, just called the pharmacy and they said the amphotericin was fine for a couple of days without refrigeration. They put that sticker on the bottle so we'll refrigerate it when we get it.

Three whole days now and still no herxing from the Tindamax, but I AM seeing signs that the antifungal is working.

Some of these people have serious emotional issues as far as their make-up is concerned :ph34r:. :lol:

Tell me about it, lol! They get pretty worked up over there.

Donna, congrats on the stimulus check! I bet that was a great little surprise!!! We got ours too, it went directly to a credit card.

Well, fortunately I just paid off all my cards, this wouldn't have even covered the minimum payments, lol. I love little surprises like this!

I got mine too ( I am spending it in foreign lands )

Well, indirectly you're helping our economy...the extra money means that you have more to spend on EM makeup.

Now I want all of you to search your minds for what you can buy that is NOT a necessity and you wouldn't otherwise get.

Well, I DID need shoes, but I don't think I needed 8 pairs, which is what I got. :lol:

I think you all need to buy train cases for your gluten free makeup lol

Still contemplating this...

And some shoes to go with 'in the garden'

Thank you, wearing them NOW! They came on Friday. :lol: Tomorrow I shall wear the ones that go with Mojave Camping! The following day I shall wear the ones that go with...oh wait, is there anything that goes with lime green? :lol:

Donna,

Do the think thin bars have soy in them? I used to LOVE those!

Hum, I can't remember. I used to eat them too, but haven't in a while.

Donna,

When you do your B12 shots (or when you DID), do you feel better on those days? I don't know if it was coincidental, but I felt a lot better today...it was a B12 day. Hmm...

It's funny because it wasn't a huge noticable difference, but there was a difference on shot days. I just seemed to be happier, more cheerful...cracking myself up kind of thing. I haven't seen my LLMD yet (he's the one who wanted me to do them), but the other doctor I saw last week said that I could stop them if I wanted. She told me about a patient of hers who can tell when it's time to get a shot, so I'm thinking yeah, it would make us feel better. Remember my crazy happy posts on the EM thread, lol...that was on a shot day! :lol:

Yes, I was sight-reading in front of 1500 people!

Wow, BRAVE soul! Course, at least you can sight read!!! My good friend Becky had to do that today too because she practiced the wrong song. :lol: She has to play keyboard for the first service.

the tea party does sound fun. I had a lot of trouble falling asleep last night too which is very unusual for me. Usually I pretty much pass out and than have all my sleeping problems in the morning like waking up at two am and not being able to go back to bed. Not very fun. I hope you continue to not herx!!!!!

HOw is the think green bar I always see it and think to try it. Bars are good for me because I am always trying to get extra calories.

Yeah, your sleep pattern sounds almost exactly like mine, but I start waking up at 1:00. I probably go to bed a little earlier than you do though.

The Think Thin bars are pretty good. They've got lots of good ingredients even spirulina I think (hence the green in the name, lol). They are gluten and dairy free, but I think they are produced in a factory that produces gluten items. Still, if you're eating what you've been eating, I think that would be okay. I put cashew butter on them. Yummm.

I've never felt bad after DMPS IV's. I sometimes feel better for a period of time....I actually look forward to my treatments. On the contrary I HATED my mineral IV's and sometimes I felt worse after those.

...

They will spray a small amount on your tongue to make sure you dont have a negative reaction. You'll have to wait 10-15 minutes after that...and then you'll get the IV.

Everyone's different and some people cannot handle it at all...my own experience has been very positive though.

Yeah, I was pretty sure that the DMPS was good for you, but the minerals weren't, but I couldn't remember for sure. I'm thinking I'm going to feel fine...I'm trying to decide if I want to make an appointment to get new tires on Saturday.

Okay, that's two nights in a row now that I haven't been able to get to sleep. Last night wasn't quite as bad as the night before and once I finally got to sleep I slept pretty well. The legs weren't as restless, so that's good. I've been having a little bit of pain in the intestinal area, but I think that's probably normal for both the antibiotic and the anti-fungal. So far so good still....still no signs of serious herxing. Yay!

Rachel, can you remember how you felt after your DMPS challenge? The nurses said that sometimes people feel kind of bad afterwards so suggested I do it on a Friday so I have a weekend to recover if necessary.

Uggghhh... today's been a bad day. Terrible D all day (liquid and yellow, and my hemorrhoids are acting up :ph34r:). I'm still not sure what caused it. I had a couple gluten-free oats a few days ago... and a small amount of dairy two days in a row. On the other hand it could be the sucralfate.

I'm pretty certain I'm allergic to the sucralfate. This last time I took it I noticed my tongue and the back of my mouth swelled a little for about 5-10min. Not a big deal in itself, but I thought I noticed something similar the last 2-3 times I took it. So it would be getting worse.

Hope you feel better soon! I have a couple of things I'm not looking forward to telling my LLMD, lol.

Does anyone know how to interpret a CBC, or how lyme affects people's CBC?

Is CBC the standard blood panel that most doctor's run? Um, I think I just had one. Yep, it's a CBC that I had as part of my annual physical. For the most part my levels seem to be within range, but my lymphocytes have been really, really low for the last two years, and this year my neutrophil was way high. Last year I looked up lymphocytes on the internet and it seemed like it was related to infection in my case. Since I have chronic infections in my body, I'm sure that's what it is. That seems like it could be either directly or indirectly related to lyme. In my case though, I actually have infections in my digestive and intestinal tracts, so it could be that too. I haven't gotten around to looking up neutrophil yet.

I've also read (I think I'm remembering correctly) on LN that lyme can affect cholesterol, but I haven't read any studies on that. My creatinine was really, really, low, but not sure what that means...that's one of the things I have to ask my LLMD when I see him...my regular doctor wasn't much help with that.

Donna, Sounds like an great time, Im so jealous. I had a great day at soccer games at the park tho lol. my boys were scoring machines lol

Yeah, definitely pop in when you can especially if you get your results back. Yay on the scoring machines!

Gosh Birdy, hope you aren't allergic!!

Sherry, it's a wonderful thing you are doing!

Everyone,

I just got back from a tea party. It was really fun. The one of the ladies in the ensemble I sing with hosted at her house. She has the most beautiful house and garden, so we sat outside in her garden and had (well I didn't have much, lol) the most scrumptous looking food--I just watched that part, lol. Her husbamd dressed up in tux (minus the jacket cuz it's darned hot here, lol) and he and her kids served us. I didn't eat (just a little fruit) and I didn't have tea, lol. I brought my own dessert, which was a Think Green bar and drank water, but it was still fun to exeperience it through everyone else.

Tomorrow is a pool party at another one of the ladies' homes...I'm probably going to skip that one because it starts kind of late for me on a Sunday.

Donna,

The Tindamax and leg thing might be a herx? Or it could be a side effect, I'm not sure.

I think I use the same pharmacy in Washington... Clark's Pharmacy? They're really nice. All of their stuff is gluten free, lol. Usually they send their stuff with cold packs. Did yours have an ice pack in the box?

Yep Clark's, nope no cold pack! It was just in a tiny little shipping box with just the prescription bottle...no cold pack. It wouldn't have been so bad if we weren't having 100 degree weather here, lol.

I took Tindamax but it didnt go over well AT ALL.

It was a really bad experience....not like a herx...but more like my body was REALLY reactive to it. I actually BEGGED Dr. Carrie to switch me to Flagyl....if that tells you anything.

I only took one or two doses of Tindamax because it was clearly not good for me. The pill was pink....so I figured I was reacting to the dye.

I'm pretty sure thats what it was...so it was most likely putting a burden on the PST/sulfation pathway and making me more toxic.

I still totally avoid anything with dyes...I remember being worried about the Tindamax as soon as I saw that it was pink.

Flagyl wasnt a pleasant experience either...but it wasnt as bad as the Tindamax.

Wow Okay, requesting Flagyl over Tindamax is definitely saying something They have another internist there now, Dr. Geneveive...she's the one helping me with the neurotransmitter stuff and the one who I see mostly now. She's nice too, but my only issue is that she only works on Wednesdays and Fridays in the mornings. I didn't think of calling Dr. Carrie...if I can't reach the pharmacy on Monday I'll call Dr. Carrie. I guess it's probably too late...I've already started taking it, but if it's not effective I may have to increase the time in Tindamax since they're supposed to be taken together.

Mr. Clark is really well informed about gluten intolerance. A long time ago I had a lengthy discussion with him over the phone. I was soooo impressed with him. We were mostly talking about Ketotifen (Clark's pharmacy was the only place to get it), gluten intolerance and leaky gut.

I'm pretty sure I probably posted the whole conversation here because I remember being really excited after talking to him.

Yeah...Donna see's the same Dr.'s as me and I know the ones at the HN clinic use Clarks Pharmacy. Dr. Amy mostly uses College Pharmacy which is another really good compounding pharmacy.

Mia,

Hope you feel better soon!!!

Paula,

I may be almost as anxious as you to see the results of your hair analysis.

Everyone,

I started the Tindamax and Amphotericin-B (anti-fungal) last night. So far so good. I think I was more worried about the antibiotic making me sick than the herx caused by it, lol. So now I just have to try to minimize any herxing it may produce.

They shipped the antifungal in a regular ole box...there is a label in huge print that says to keep it refrigerated! The instruction sheet that came with it said that it COULD be left unrefrigerated if used up within 1 week--I'm supposed to take it for 14 days. I'm hoping that the refrigeration thing is for after it is opened, but since it's not sealed (came in a regular little orange prescription bottle), I can't imagine how that would work. I tried calling the pharmacy in Washington, but they don't work on Fridays, and my doctor (who prescribed it) works Fridays, but only in the morning and I didn't get it until afternoon. Didn't bother to call any local pharmacies since my doctor said that most pharmacies don't carry it.

I also called Dr. S's nurse to see if either medication would interfere with my DMPS challenge on Friday...looks like the challenge is a go! YAY! They said the only thing that should interfere is vitamin/mineral supplements, so I just can't take those on the day of the challenge.

So a question for those who've taken Tindamax...did it cause sleeplessness? I could NOT get to sleep last night. That's usually not my problem...I fall asleep okay, but just start waking up around 1:00...and my legs were really active...it's like I couldn't get comfortable and felt like I needed to move and stretch them (I haven't had this symptom in a long time--since I've been taking lots of magnesium I think). I went to bed at 9:00 (my usual time) and finally got up at 10:40 to take an epsom salt bath. That seemed to do the trick...it seemed to calm me down enough to relax and get to sleep.

Okay, what's with Spring Clean, lol! That was one of the freebies they sent out as a special...I think it's supposed to be a blush. It is really gray...I put it on, and well, it's still gray. But, it wasn't gray in a horrid way, I think there may have been a hint of nice color, but I'm not sure. Not quite a bronzer, not quite a blush...what the heck is it?! So that was on my cheeks...not really any color that I could discern, but it did look like I had a little blush on...it just didn't have a color. Then I put Summer Stroll overit (you know, the really VIVID ORANGE in the jar thing)...ahhhhhh, Donna is happy again, lol.

Oh, and don't go rushing out to buy a heated eyelash curler either...can't say that that works any better than the standard old fashioned kind, and in fact, may not have done even as good a job as the old fashioned kind.

Still no kits this morning.

BUT, I should be getting two deliveries this morning...I ordered some shoes and they are out for delivery...AND my antibiotics that had to be ordered from a pharmacy in Washington should also be delivered today. Woohoo fun times in California!

Sorry, I'm cracking myself up again.

Yeah, it's HOT here, lol. Rachel is LOVING this I'd bet!

Yeah, I already get up at 4:00 and that's actually sleeping in a bit, lol.

I think you need to buy us all new makeup when the site is up lol

I think I might need a little bit more than I've received, lol. Still it's going a long way towards getting rid of my mold ladden carpet.

OK, bracing myself to get slapped around, but,

stop driving

take public transportation, carpool, combine errands, work from home if possible...

I put gas in my truck once a month, if I've done a lot of driving that month.

No slapping from me, lol. I'd actually LOVE to take public transportation, lol. I HATE driving, especially in traffic. With my weird hours and the area I work in it's not the safest thing in the world, and I'd probbly have to get up even earlier than I already do, which is WAY too early for a normal human being. I DO combine errands though and I've cut my driving speed down a little (they say that helps, lol). I'm even looking at some more feul efficient cars (although admittedly the one in my avatar isn't a huge step greener than the one I have).

I can still get into the new site but DO get the certificate warning.

Harrumphf for those who can't!

On a much more pleasant note...I got my stimulus check. I wasn't even sure I would get one, but that must be what it was...it was direct deposited into my account!

Yeah, it was over $4.00 on Tuesday when I filled up...talk about sticker shock, lol. Fortunately I have a small tank and fill up when it reaches 1/4 tank...still spending the same amount of money anyone else would, it just doesn't seem so bad when you do a smaller amount more often.

Nope I can't see the kits either. Maybe it will just take a while to trickle through to all the servers/browsers etc.

Today's new color: Salon Fun

Very nice. A bit more pigmented than the Raspberry Sherbert and a bit more pink/red. It's still sheer enough though so that it's not harsh when you put it on. Also wearing one of the new lip glosses I got yesterday which looks very good with the blush, lol.

See, I don't even have to watch anymore, lol! I just tune in here for the results.

I TRIED to watch the results show, but gosh, I just get annoyed that it takes 1 hour (or even if they shorten it to 30 minutes, it's still annoying, lol) just to tell me who goes home. Oh, wait, what was I saying...

Oh yeah, I tried to watch the results show, but just had to go to bed, lol.

I thought Marissa would be the one to go this week and looks like that's what happened. I thought everyone did pretty well, and as a non-dancer, I didn't even notice the misstep that Marissa apparently had. It all looked good to me.

Is it possible to snap a tendon in your pelvic area? I went to the gym for about 20 minutes yesterday, and I was on the treadmill and heard a pop. Ever since I can barely walk because my silly leg connector joint thing is KILLING me. Is that even possible?

Is it in the front of the leg/thigh...could also be a hip flexor...mine was out for a LONGGGG time.