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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    I take Thiamine, Pyridoxine, and Cobalamine for pain relief. I have back pain due to broken vertebrae and this combination of vitamins relieves the pain without side effects of pharmaceuticals. Thiamine, Pyridoxine and Cobalamin are vitamins that are water soluble and safe. References: Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine...
  2. knitty kitty
    @heyitsme, Anemia, diabetes and Thiamine deficiency will cause poor production of tTg IgA antibodies. Have you had a Total IgA test done? DGP IgG antibodies are still produced with these conditions. Some of us are seronegative.
  3. knitty kitty
    Welcome to the forum! I've suffered with severe Ataxia and Neuropathy. Some people with Celiac produce antibodies that attack the nervous system. These are tTg 6 IgA antibodies. The usual blood test for Celiac measures tTg 2 IgA antibodies. Even if you don't have overt digestive symptoms, Celiac can cause malabsorption of nutrients. ...
  4. knitty kitty
    @PhilHandy, Vitiligo has a connection with Celiac Disease. Vitiligo and Autoantibodies of Celiac Disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3604853/ Anemia can affect not only red blood cell production, but also antibody production, resulting in false negatives. The DGP IgG test should also be run, in addition...
  5. knitty kitty
    @Aya77, You can read excerpts of my journey in my blog.
  6. knitty kitty
    @K M Wade, Are you still consuming dairy? Dairy is High in Iodine which will cause dermatitis herpetiformis flares. Dairy is also connected to eczema.
  7. knitty kitty
    Welcome to the forum, @Carlyallyn, Is that the test results for TTg IgA, which is usually the first seriological test for Celiac? A result this high above the"norm" is usually indicative of Celiac Disease and intestinal damage. Does the gastroenterologist want you to be consuming gluten prior to endoscopy and biopsies? Usually biopsies...
  8. knitty kitty
    Celiac Disease is genetic. Certain HLA genes are associated with the potential of developing Celiac Disease. If one doesn't have any of the known Celiac genes, then Celiac Disease can be ruled out. The most common Celiac genes are HLA DQ 2 and 8. There are others but they occur less frequently, DQ 7, 4, and 9. Celiac Disease genes can be latent...
  9. knitty kitty
    High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7988776/ Thiamine deficiency disorders: a clinical perspective https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/ Thiamine and benfotiamine: Focus on their therapeutic potential https...
  10. knitty kitty
    Here's a link... Thiamine Deficiency Causes Intracellular Potassium Wasting https://www.hormonesmatter.com/thiamine-deficiency-causes-intracellular-potassium-wasting/
  11. knitty kitty
    @normagain, There's a difference between Small Intestinal Bacterial Overgrowth (SIBO) and Candidiasis (Yeast Infection). It's possible to have one or the other or both. Celiac Disease causes damage to the small intestine. The SIBO occurs because the bacteria take advantage of this damage to move in and multiply. Same with Candida. SIBO is...
  12. knitty kitty
    @Richard1973, welcome to the forum! @cristiana is on the right track, stay hydrated. Also have your potassium level checked. Low potassium causes dry skin and dehydration. We need Thiamine B1 to keep our potassium level correct. Without sufficient thiamine, we lose potassium and our skin loses moisture. Ask your doctor about supplementing...
  13. knitty kitty
    I'd like to hear more about the supplements recommended!
  14. knitty kitty
    Good for your doctor to be wondering about it! She's on the right track. Anemia, diabetes and thiamine deficiency can cause seronegative results. Unfortunately, if you go gluten free, your intestines will start healing and damage due to Celiac might not be apparent. But, on the other hand, PPI's cause intestinal damage, too, so they might...
  15. knitty kitty
    Acid reflux is not an overproduction of stomach acid, it's underproduction of stomach acid. We need Niacin B 3 and Thiamine B1 to make and secrete stomach acid and digestive enzymes. Deficiencies in several of the eight B vitamins can present with gastrointestinal symptoms. Thiamine deficiency can cause Gastrointestinal Beriberi. Niacin and...
  16. knitty kitty
    Yes, I understand. I get outbreaks on my legs if I wear leggings. I switched to flannel, nice and soft. Do ask your doctor about supplementing with B vitamins. Niacin B3 helps the dermatitis herpetiformis spots heal. Have you asked about a genetic test? You have to have specific genes for Celiac Disease to develop.
  17. knitty kitty
    Omega Threes, Vitamins A, D, E, Biotin B7, and Pantothenic Acid B5 are helpful in healing tendons. I'm so glad to hear of your improvement with high dose Thiamine. Are you taking a B Complex and magnesium as well?
  18. knitty kitty
    dermatitis herpetiformis that resembles folliculitis is a thing. I've had blisters as well as the follicular type. Any area is susceptible to an outbreak. Keep in mind that dermatitis herpetiformis is pressure sensitive, so avoid wearing elastic waistbands, belts, and tight fitting clothing.
  19. knitty kitty
    Removing dairy from my diet significantly improved my dermatitis herpetiformis. My skin and itch cleared rapidly afterwards. I suggest you try removing dairy and see if it makes a difference. Taking the flushing kind of Niacin, Nicotinic Acid (not related to nicotine in cigarettes), sounds counterintuitive because of the flushing, but it really helps...
  20. knitty kitty
    Welcome to the forum, @Nicola flaherty, Proton pump inhibitors like omeprazole results in negative blood tests for Celiac Disease. The Impact of Acid Suppression Medications and Non-steroidal Anti-Inflammatory Drugs on Clinical and Histologic Features in Celiac Disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5511753/ Talk to your...
  21. knitty kitty
    Welcome to the forum, @MMH13, Yes, @trents and @Scott Adams have good advice. Do try to get off the ppi, omeprazole. This study found that people with Celiac taking PPI's like omeprazole are seronegative. The Impact of Acid Suppression Medications and Non-steroidal Anti-Inflammatory Drugs on Clinical and Histologic Features in Celiac...
  22. knitty kitty
    Welcome to the forum, @ItchyHell, Have you tried antihistamines? Niacin Vitamin B 3 helps. I use Vintage Traditions Tallow Balm which is absorbed into the skin and calms my dermatitis herpetiformis down. I'm concerned about your dermatitis herpetiformis being widespread and frequent. Are you getting gluten in your diet? Eliminating...
  23. knitty kitty
    @DebJ14, Dr. Derek Lonsdale and Dr. Chandler Marrs have done research on fluoroquinones and how they induce Thiamine deficiency. High dose Thiamine is used to treat being floxxed. Thiamine also helps UTIs. References: A Fluoroquinolone Reaction After Just One Pill https://www.hormonesmatter.com/fluoroquinolone-reaction-one-pill...
  24. knitty kitty
    Hi, @Katanya, How are you doing? I hope you're feeling better. Did you decide to do a gluten challenge? You could have an endoscopy and biopsy without a gluten challenge. This would give a baseline with which to compare future endoscopies. I believe a positive blood test for anti gluten antibodies is a positive for Celiac Disease. In the early...
  25. knitty kitty
    @lydialoo, Tell me about your high dose Thiamine routine. What kind of Thiamine are you taking? How much (mg) are you taking? When do you take it? Are you taking a B Complex? Are you taking Magnesium?
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