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knitty kitty

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Latest Celiac Disease News & Research:

Everything posted by knitty kitty

  1. knitty kitty
    @BadHobit, You don't need to eat gluten to have a DNA test for Celiac Disease genes. You need to let your doctors know how severe your reaction to gluten is. It's endangering your health. I could not finish a gluten challenge after having been gluten free for a while beforehand. My doctors diagnosed me by positive genes for celiac disease and...
  2. knitty kitty
    Welcome to the forum, @BadHobit Were you tested for H. Pylori infection? Sometimes this infection can cause stomach irritation and even ulcers. H. Pylori infection can trigger Celiac Disease. H.Pylori infection is frequently found in celiac disease. Ask for DNA testing to see if you have any of the genes seen in Celiac Disease. Having the genes...
  3. knitty kitty
    Hello, @glucel, I lost sixty pounds in six weeks. It was shocking. Fat loss as well as muscle wasting. Thiamine is needed to turn carbohydrates, fats, and protein into energy. With insufficient Thiamine, the body uses a shortcut to save thiamine. The body stores carbohydrates as fat, and later burns the stored fat for energy, a process which...
  4. knitty kitty
    Hello, @glucel, Unintended weight loss is symptomatic of Thiamine deficiency. Our bodies use more Thiamine when we are ill and stressed. Switching to a gluten free diet can also result in a lower intake of Thiamine. Interesting Reading: Coronary Artery Bypass Graft (CABG) surgery depletes plasma thiamine levels https://www.ncbi.nlm...
  5. knitty kitty
    Hello, @Neat1, Yes, neck and shoulder pain can be symptoms of Gerd, which is fairly common in Celiac Disease. Ask for a DNA test, too. Celiac Disease is genetic. If you've got celiac disease genes, further testing is warranted. Some people have Celiac genes, but don't have active Celiac Disease. If you've got symptoms, your genes are probably...
  6. knitty kitty
    Not really. Blood tests for vitamin deficiencies are not accurate. You can have "normal" blood levels and have vitamin deficiency symptoms before blood levels change. The brain sends messages to the body to release into the bloodstream any extra vitamins stored within cells of tissues and organs so that important organs like the brain and heart can...
  7. knitty kitty
    Welcome to the forum, @Sarah Grace, I had symptoms like yours. I thought at first it was hypoglycemia, but having type two diabetes, my blood glucose meter didn't register a low. If anything, my blood glucose levels were slightly high, but quickly returned to normal with me stirring around after waking. I was certain dehydration, having similar...
  8. knitty kitty
    Hello, @Kate1990, I reacted to calcium citrate because it's made from oyster shells and I react to seafood. I chose calcium malate and chelated calcium. Be sure to take a magnesium supplement as well, but several hours away from calcium. Magnesium and calcium compete for absorption. We need calcium for bones, but magnesium and potassium keep...
  9. knitty kitty
    Check the label and tell us what kind of B12 is in your gummies. If it's Cyanocobalamin, switch to a methylated (active) form of B12. Some of us need to take the active form of B12 because our bodies have problems turning other forms of B12 into the active methylated form due to MTHFR genetic variations. Take a B Complex supplement, too...
  10. knitty kitty
    @Zoe26, Has he been checked for vitamin deficiencies? Is he pulling up to standing position? Does he crawl? I ask because delayed development can be associated with nutritional deficiencies. Having a hoarse low voice is symptomatic of Thiamine deficiency in children and adults. Complete loss of voice is possible, too. ...
  11. knitty kitty
    I found this article very interesting... Carrier frequency of HLA-DQB1*02 allele in patients affected with celiac disease: A systematic review assessing the potential rationale of a targeted allelic genotyping as a first-line screening https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7109277/ Not a doctor.
  12. knitty kitty
    @Zoe26, Does your son have a hoarse voice?
  13. knitty kitty
    Yes, a company that has dedicated lines where gluten is never processed on it is optimal.
  14. knitty kitty
    This is the label from my store brand "tater bites" : "Potatoes, Vegetable Oil (Contains One or More of the Following Oils: Canola, Soybean, Cottonseed, Sunflower, Corn). Contains 2% or Less of Modified Corn Starch, Dehydrated Onion, Dextrose, Salt, Sodium Acid Pyrophosphate (To Promote Color Retention). Allergen Info Free from Does Not Contain...
  15. knitty kitty
    Hi, @Eldene, Make sure you're getting sufficient Omega Three fats which will help with satiety. Omega Threes vegetarian sources are Chia seeds, flaxseed, and walnuts. What are the ingredients in your protein smoothie? What do you normally include in your "plant-based healthy meals, with enough protein"?
  16. knitty kitty
    @Wormsy22, B12 and Folate can be high if there's a deficiency in Pyridoxine B6 and Thiamine B1. Do consider a gluten challenge with 10 grams (4-6 slices of bread or equivalents) for several weeks before having complete blood tests for antigluten antibodies as @trents and @Scott Adams mentioned. Do ask for DNA screening to check for Celiac...
  17. knitty kitty
  18. knitty kitty
    Yes, unfortunately many doctors are not clear on proper testing protocol for Celiac Disease, much less the treatment. If we remove gluten from our diet, the antibodies our bodies produce against gluten go down. I went gluten free on my own. My doctors had laughed at me when I suggested testing for Celiac Disease. Later, to get a proper diagnosis...
  19. knitty kitty
    Welcome to the forum, @Wormsy22! Yes, unfortunately many doctors are not clear on proper testing protocol for Celiac Disease, much less the treatment. If we remove gluten from our diet, the antibodies our bodies produce against gluten go down. I went gluten free on my own. My doctors had laughed at me when I suggested testing for Celiac...
  20. knitty kitty
    I take Niacin Vitamin B 3 for my Dermatitis Herpetiformis outbreaks. I take the form of Niacin that causes flushing. The flushing only lasts for half an hour or so and lessens the longer one takes Niacin. The flushing is caused by a dilation of small blood vessels in the skin, but this helps reduce the dermatitis herpetiformis bumps. B12 is only...
  21. knitty kitty
    These are some of the symptoms I have had while deficient in Thiamine (and the other B vitamins). Tachycardia (chest pain) can be a symptom of Thiamine deficiency. Yawning can be called "air-hunger" or "sailors' asthma" and is a symptom of low thiamine because Thiamine is needed to help red blood cells carry oxygen. The part of the brain that...
  22. knitty kitty
    Welcome to the forum, @Maureen1, Have your daughter checked for vitamin and mineral deficiencies! Celiac Disease causes malabsorption of essential nutrients. Most newly diagnosed Celiacs are deficient in Vitamin D. Vitamin D is extremely important in hormone production, as well as (auto)immune system regulation. Low Vitamin D is associated...
  23. knitty kitty
    @Celiac momma, I use oxtails (from beef). I've also used beef neck bones, too.
  24. knitty kitty
    Welcome to the forum, @NimaWishing, I cannot tolerate Ore Ida Tater Tots either. Ore Ida Tots contain corn, which some Celiacs, like me, react to. Those Tots also use Sulfites to keep the potatoes from discoloration and to promote browning. Some Celiacs, like me, develop a Hypersensitivity to Sulfutes in foods and medications. I buy store...
  25. knitty kitty
    Were you taking supplements in the weeks before having your B12 measured? Taking supplements before testing for deficiencies can cause falsely high readings. Weight gain or weight loss can be caused by low thiamine, needed to process fats, carbohydrates and proteins into energy for the body. Low Thiamine and low magnesium can also cause constipation...
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