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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    @DebJ14 The Spectracell Test for Micronutrient Deficiencies tests intracellular levels of the nutrients INSIDE Leukocytes (white blood cells) which are in the bloodstream. This still is not reflective of current stored vitamin levels inside organs. The genetic MTHFR mutation does occur frequently with Celiac Disease. Taking the methylated ...
  2. knitty kitty
    @SB04, Have you been checked for B12 deficiency? A deficiency in Vitamin B12 will cause hives and also raise the tTg 3 IgG level, even in people without Celiac Disease. You can have B12 deficiency without having Celiac Disease. All eight B vitamins work together. Do not supplement just a single B vitamin. Best wishes.
  3. knitty kitty
    @Yaya, Vitamin supplements should be stopped eight to twelve weeks before testing blood levels. If vitamin supplements are not stopped, the tests will reflect the vitamins in circulation in the blood stream from the supplements, and blood levels may appear within "normal" limits. Blood tests do not reflect the amount of vitamins stored inside cells...
  4. knitty kitty
    I know I'm late to the party, but I thought these articles are very interesting. Doctors don't recognize vitamin deficiency symptoms. Thiamine deficiency is linked to Long haulers syndrome, too. I had palpitations that only resolved with thiamine Vitamin B 1 supplementation. Association of vitamin B1 with cardiovascular diseases...
  5. knitty kitty
    @ohmichael, Have you tried contacting your state's Employment Services? There should be job opportunities and training programs especially for previous service members and veterans. Look into trade schools. Some offer training programs which provide scholarships and housing, and possible employment after completion. Some scholarships are funded...
  6. knitty kitty
    @badastronaut, I'm so glad you got your folate and zinc up! I'm a big fan of Benfotiamine. It's a form of thiamine that promotes intestinal healing. I take 250 mg Benfotiamine with the first two meals of the day along with a B 50 Complex. The B vitamins all work together so taking a B Complex with Benfotiamine is great. I also take a form of...
  7. knitty kitty
    @nanny marley, I had great improvement by supplementing with a B Complex and extra thiamine in the form Benfotiamine which promotes intestinal healing. I followed the AutoImmune Protocol Diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne. The AIP diet removes everything from the diet that can be irritating or hard to digest...
  8. knitty kitty
    @nanny marley, Have you been taking any vitamins or mineral supplements besides Vitamin D? What are you eating? Do you eat processed gluten free foods? You said your symptoms included fatigue, body hair loss, low vitamin d, Restless Leg Syndrome, Raynaud's Syndrome, contact dermatitis, rhinitis, body aches, TMJ, heart palpitations, sleep...
  9. knitty kitty
    @nanny marley, Are you having an endoscopy at the same appointment as your colonoscopy? You said you have been going through testing for Celiac. An endoscopy with several biopsies from the small intestine (after the stomach at the beginning of the digestive tract) is the gold standard for diagnosing Celiac Disease. Celiac cannot be diagnosed by examining...
  10. knitty kitty
    A combination of Thiamine B 1, Pyridoxine B 6, and Cobalamine B12 relieve pain. Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan is the brand I get for a convenient, all-in-one pill. However separate vitamin supplements of each if the three vitamins works just the same. This works for pain from all sorts of reasons...
  11. knitty kitty
    I've found some articles that might be of interest to you. The malabsorption of Celiac Disease does lower your vitamin levels, essential nutrients our bodies cannot make. Vitamin B1 is especially important to our heart health. Current Evidence and Future Perspectives of the Best Supplements for Cardioprotection: Have We Reached the Final Chapter...
  12. knitty kitty
    No, I haven't tried Gliadin X, although @Scott Adams might be able to discuss his experiences. I think it's a bad idea to take GliadinX during your gluten challenge. You won't mount a strong enough autoimmune response.
  13. knitty kitty
    Yes, it is possible to have Celiac Disease without lymphocytosis.
  14. knitty kitty
    @jamiet06, Have you thought about getting a genetic test done? You have to have genes for Celiac Disease to develop. If you don't have any of the commonly known Celiac genes, you can look for another diagnosis. Genes don't change. You don't have to do a gluten challenge to test for genetic markers of Celiac Disease.
  15. knitty kitty
    Yes, @Ginger38, there are other genes for Celiac besides the two most common HLA DQ 2 and HLA DQ 8. There are DQ 7 and DQ 9 to name a couple. There are others. I understand how frustrating the diagnosis journey can be. I had a difficult time getting diagnosed, too. But you're through that now! Focus on your recovery and healing. Try the...
  16. knitty kitty
    Yes, @Ginger38, anti gluten antibodies are only found in Celiac Disease. NCGS does have similar gastrointestinal symptoms as Celiac Disease, but no autoimmune antibodies are produced in NCGS. NCGS may be a pre-Celiac state in people with a genetic predisposition for Celiac Disease. Have you had a genetic test? You have to have inherited certain...
  17. knitty kitty
    Yes, everyone reacts with their own individual set of reactions. I think a B Complex along with a multivitamin helpful, yes. Do not take vitamin supplements for at least eight weeks before a test for vitamin levels. Otherwise the vitamin supplements will show up in the blood tests as normal or high levels, masking any deficiencies you might actually...
  18. knitty kitty
    Blood tests for vitamin deficiencies are not an accurate measurement of vitamin stores within cells where the vitamins are actually utilized. The brain will order cells in tissues and organs to put their stored vitamins into the blood stream to supply the brain and heart. Deficiency symptoms can appear before there's a change in blood levels. The...
  19. knitty kitty
    There's a Vegetarian version of the Autoimmune Protocol Diet. There are vegetables that can provide Calcium...broccoli, kale, lentils, tofu. Talking to a nutritionist can help identify vegetables that can provide you with the minerals and vitamins you need. Getting dietary advice is part of proper follow up care for people with Celiac disease. tTg...
  20. knitty kitty
    Ten grams of gluten per day for two weeks or longer is needed to get antibody levels up high enough so that they can be measured in the blood stream and intestinal damage can be seen in the small intestines. HOWEVER, only THREE grams if gluten is needed to produce symptoms...like running to the bathroom. Some people have much worse symptoms after...
  21. knitty kitty
    @Jane07, welcome to the forum! Have you been checked for nutritional deficiencies? Malabsorption of essential nutrients is common in Celiac Disease. Supplementing with vitamins and minerals that are commonly low in the newly diagnosed can help immensely with recovery. Vitamin D is frequently low. Vitamin D helps regulate the immune system and...
  22. knitty kitty
    Welcome to the forum! A blood test for Celiac looks for the amount of antibodies your body is producing in response to gluten. An endoscopy looks at the damage done by the antibodies attacking the villi lining the intestines. When you have a cold or infection, antibodies are made that attack the foreign invader. In Celiac Disease, our immune...
  23. knitty kitty
    There are thirteen essential vitamins: eight B vitamins, four fat soluble vitamins, and Vitamin C. They all work together. If you are deficient in one, you are probably low in the other dozen. Celiac Disease affects the absorption of all the vitamins, and the dozen or so essential minerals, as well. Cobalamine Vitamin B12, needs Folate B9 and Pyridoxine...
  24. knitty kitty
    I suggest you eliminate dairy from your son's diet next. Cow's milk protein, Casein, can trigger tTg IgA antibody production, the same as gluten, because casein contains segments of proteins that resemble gluten protein segments. Mucosal reactivity to cow's milk protein in coeliac disease https://pmc.ncbi.nlm.nih.gov/articles/PMC1810502/ I...
  25. knitty kitty
    Welcome to the forum, @jamiet06, Yes, it does point in that direction. Your report says "Correlation with clinical findings and results of serological studies is recommended" is saying you should undergo a gluten challenge and be tested for antibodies associated with Celiac Disease. These antibodies are produced in celiac disease in response...
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