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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Of course, we care about you and your children! Our Celiac tribe is everywhere, including New Zealand! Several of your symptoms are indicative of nutritional deficiencies. Celiac Disease damages the small intestine where vitamins and minerals usually are absorbed. Not being able to absorb these micronutrients affects our health. There are eight...
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@Bobby123, One of my cats used to do the same thing, so I started keeping my toothbrush in a drawer.
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NEW TO CELIAC DISEASE
knitty kitty replied to Slayxbella's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Did you have your pets at that time? -
@cnazrael89, Glad to hear you're doing well! Celiac malabsorption can cause copper deficiency. Elevated B6 and zinc are common in copper deficiency. They will normalize once the enzymes utilizing copper get into production again. Zinc is in denture cream and in zinc oxide used for Sun protection and diaper rash. Did you get a number...
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NEW TO CELIAC DISEASE
knitty kitty replied to Slayxbella's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@dixonpete, Do you have any long haulers symptoms? -
Replace! Toothbrushes should be replaced every three months normally, and immediately after being sick and immediately after being glutened. Keep a few on hand for after glutennings and for guests. Some of us are sensitive enough to be glutened by kissing their gluten consuming partner.
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@Fairy92, Welcome to the forum! You're welcome to use the search function near the top of the page to search for things here on the forum. Google rabbit holes can be very deep indeed. These tests are specific to Celiac Disease so it looks like you're in the club! A weak positive is a positive. Examining biopsies from the parts of the...
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NEW TO CELIAC DISEASE
knitty kitty replied to Slayxbella's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thought this might interest you... https://www.healthline.com/health/covid-and-parasites -
@Anonimo9719, I found some interesting articles... Having diarrhea for a long period of time can affect how much nutrients you absorb from your food. Nutritional deficiencies can affect hair loss. “Let Food be Thy Medicine”: Value of Nutritional Treatment for Hair Loss https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8647708/ And... ...
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Supplementing with Benfotiamine, a form of thiamine proven to help heal the digestive tract, helps with constipation. Here's more information.... https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/
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I found this interesting article that discusses how one specific kind of IEL in Celiac disease disappears completely. "Intraepithelial lymphocytes subsets in different forms of celiac disease" https://autoimmunhighlights.biomedcentral.com/articles/10.1007/s13317-016-0085-y "On the other hand, CD3− IELs are present in healthy duodenal mucosa a...
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Where's the 'good' food?
knitty kitty replied to Maddie6332's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks, @Maddie6332, I can't wait to try this recipe! Sounds so good! -
I like Life Extension Benfotiamine. Thiamax is a brand of TTFD (thiamine tetrahydrofurfuryl disulfide), that is wonderful for brain fog and anxiety. Both are available at Amazon.
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Thiamine insufficiency will cause these symptoms. Thiamine is needed for energy production and digestion of meats as well as carbohydrates. Intense training will use up lots of Thiamine. Supplementing with Benfotiamine, a form of thiamine that helps intestinal healing and working out. Here's some interesting articles.... Effect of physical...
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I'm leaning towards your son just hasn't developed IEL infiltration yet. The damage gets worse as uncontrolled Celiac continues. Maybe you will find this article helpful... "Progression of pediatric celiac disease from potential celiac disease to celiac disease: a retrospective cohort study" https://www.ncbi.nlm.nih.gov/pmc/articles...
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Start with 100 mg of benfotiamine with each meal. You can increase the amount. Everyone is different and has differing degrees of Thiamine insufficiency. You have to find what works best for you. I take 100 mg Thiamax and 200mg benfotiamine with breakfast and lunch. I found taking more after 5 pm can make me wide awake at bedtime. Lol! ...
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excessive nausea
knitty kitty replied to honeycomb4's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@honeycomb4, Welcome to the forum! Your "completely flat" intestine is probably having difficulty absorbing enough vitamins and minerals. Supplementing with vitamins and minerals is a good idea while you are healing. Our bodies need vitamins and minerals to repair and heal our bodies. Nausea can be caused by an insufficiency of Thiamine... -
I know how you feel. Thiamine will help with the anxiety and brain fog, too. You can also try Thiamax, another form of thiamine that is great for neurological symptoms like anxiety and brain fog. Be sure to take Magnesium Glycinate or magnesium taurate with Thiamine. Magnesium helps thiamine to work properly. Keep us posted on your progress...
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Yes, I've experienced this. It's called "sailors' asthma" which is another symptom of Thiamine insufficiency. I've experienced this, too. Thiamine is needed to carry oxygen in the blood. Without enough thiamine, we get "air hunger" like you describe. You just can't get a deep enough breath. Try Benfotiamine, a form of thiamine that gets into...
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Smoking
knitty kitty replied to Voltage's topic in Gluten-Free Foods, Products, Shopping & Medications
No. Smoke does not contain gluten. What problems are you having? -
@Evan0529, Welcome to the forum! The eye droop, anxiety, shakiness and brain fog will be helped by taking Thiamine. I had the same symptoms which improved when I took high dose Thiamine and a B Complex supplement. Celiac Disease damages the small intestine where vitamins are absorbed, so supplementing with vitamins and minerals helps our...
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Stool color
knitty kitty replied to Hypo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello, @Hypo, I had color changes in my stools before my gallbladder was removed prior to my Celiac diagnosis. I later learned that color changes in stools can be due to how much bile (digestive enzymes) is released by the gallbladder. Gallbladder dysfunction can be helped by taking Thiamine Vitamin B 1. Thiamine is a water soluble, nontoxic vitamin... -
@Sabaarya, Are you taking Thiamine? https://www.hormonesmatter.com/sibo-ibs-constipation-thiamine-deficiency/
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Nausea and fatigue almost all day
knitty kitty replied to itarachiu's topic in Related Issues & Disorders
@itarachiu, Can you order Thiamax where you are? https://www.amazon.com/Objective-Nutrients-Thiamax-Thiamine-Capsules/dp/B0898T6NX3/ref=sr_1_2?crid=186Z8F43JPU9K&keywords=Thiamax&qid=1668374818&sprefix=thiamax%2Caps%2C221&sr=8-2 https://www.objectivenutrients.com/products/thiamax/ This is the kind I use. -
Toddler Testing
knitty kitty replied to paxmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@paxmom, Here's an article from National Institute of Health that says positive DGP tests in children two and under are an accurate diagnosis of Celiac Disease. Children this young haven't quite developed their immune systems and don't have a Ttg immune response yet. "The correct way Celiac Disease diagnosis passes through DGP IgG levels in children...